Literature DB >> 34569604

Transphobia, encoded: an examination of trans-specific terminology in SNOMED CT and ICD-10-CM.

A Ram1, Clair A Kronk2, Jacob R Eleazer3,4, Joseph L Goulet3,5, Cynthia A Brandt3,5, Karen H Wang6.   

Abstract

Transgender people experience harassment, denial of services, and physical assault during healthcare visits. Electronic health record (EHR) structure and language can exacerbate the harm they experience by using transphobic terminology, emphasizing binary genders, and pathologizing transness. Here, we investigate the ways in which SNOMED CT and ICD-10-CM record gender-related terminology and explore their shortcomings as they contribute to this EHR-mediated violence. We discuss how this "standardized" gender-related medical terminology pathologizes transness, fails to accommodate nonbinary patients, and uses derogatory and outmoded language. We conclude that there is no easy fix to the transphobia beleaguering healthcare, provide options to reduce harm to patients, and ultimately call for a critical examination of medicine's role in transphobia. We aim to demonstrate the ways in which the [mis]use and [mis]understanding of gender-specific terminology in healthcare settings has harmed and continues to harm trans people by grounding our discussion in our personal experiences.
© The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  ICD-10; ICD-11; SNOMED CT; electronic health record; transgender

Mesh:

Year:  2022        PMID: 34569604      PMCID: PMC8757305          DOI: 10.1093/jamia/ocab200

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   7.942


  33 in total

1.  Barriers to insurance coverage for transgender patients.

Authors:  Claire Learmonth; Rebekah Viloria; Cei Lambert; Hilary Goldhammer; Alex S Keuroghlian
Journal:  Am J Obstet Gynecol       Date:  2018-05-05       Impact factor: 8.661

2.  "I don't think this is theoretical; this is our lives": how erasure impacts health care for transgender people.

Authors:  Greta R Bauer; Rebecca Hammond; Robb Travers; Matthias Kaay; Karin M Hohenadel; Michelle Boyce
Journal:  J Assoc Nurses AIDS Care       Date:  2009 Sep-Oct       Impact factor: 1.354

3.  Healthcare Experiences of Transgender People of Color.

Authors:  Susanna D Howard; Kevin L Lee; Aviva G Nathan; Hannah C Wenger; Marshall H Chin; Scott C Cook
Journal:  J Gen Intern Med       Date:  2019-08-05       Impact factor: 5.128

4.  Transphobia rather than education predicts provider knowledge of transgender health care.

Authors:  Daphna Stroumsa; Deirdre A Shires; Caroline R Richardson; Kim D Jaffee; Michael R Woodford
Journal:  Med Educ       Date:  2019-01-21       Impact factor: 6.251

5.  The Misuse of Gender Dysphoria: Toward Greater Conceptual Clarity in Transgender Health.

Authors:  Florence Ashley
Journal:  Perspect Psychol Sci       Date:  2019-11-20

6.  Correlations between healthcare provider interactions and mental health among transgender and nonbinary adults.

Authors:  Shanna K Kattari; Matthew Bakko; Hillary K Hecht; Leonardo Kattari
Journal:  SSM Popul Health       Date:  2019-11-29

7.  Toward Nonbinary Nuance in Research and Care: Mapping Differences in Gender Affirmation and Transgender Congruence in an Online National U.S. Survey.

Authors:  Aaron S Breslow; Hailey Wojcik; Robert Cox; Nathaniel M Tran; Melanie E Brewster
Journal:  Transgend Health       Date:  2021-06-02

Review 8.  Structural violence and clinical medicine.

Authors:  Paul E Farmer; Bruce Nizeye; Sara Stulac; Salmaan Keshavjee
Journal:  PLoS Med       Date:  2006-10       Impact factor: 11.069

9.  Electronic medical records and the transgender patient: recommendations from the World Professional Association for Transgender Health EMR Working Group.

Authors:  Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall
Journal:  J Am Med Inform Assoc       Date:  2013-04-30       Impact factor: 4.497

Review 10.  Bridging Barriers to Cervical Cancer Screening in Transgender Men: A Scoping Review.

Authors:  Navdeep Dhillon; John L Oliffe; Mary T Kelly; Jennifer Krist
Journal:  Am J Mens Health       Date:  2020 May-Jun
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  3 in total

1.  Informatics for sex- and gender-related health: understanding the problems, developing new methods, and designing new solutions.

Authors:  Mary Regina Boland; Noémie Elhadad; Wanda Pratt
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 7.942

2.  Pediatric sexual orientation and gender identity data collection in the electronic health record.

Authors:  Hilary Goldhammer; Chris Grasso; Sabra L Katz-Wise; Katharine Thomson; Allegra R Gordon; Alex S Keuroghlian
Journal:  J Am Med Inform Assoc       Date:  2022-06-14       Impact factor: 7.942

Review 3.  Transgender Individuals and Digital Health.

Authors:  Asa E Radix; Keosha Bond; Pedro B Carneiro; Arjee Restar
Journal:  Curr HIV/AIDS Rep       Date:  2022-09-22       Impact factor: 5.495

  3 in total

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