Literature DB >> 35396995

Pediatric sexual orientation and gender identity data collection in the electronic health record.

Hilary Goldhammer1, Chris Grasso1, Sabra L Katz-Wise2,3,4, Katharine Thomson5,6, Allegra R Gordon2,3,7, Alex S Keuroghlian1,6,8.   

Abstract

The systematic documentation of sexual orientation and gender identity data in electronic health records can improve patient-centered care and help to identify and address health disparities affecting sexual and gender minority populations. Although there are existing guidelines for sexual orientation and gender identity data among adult patients, there are not yet standard recommendations for pediatric patients. In this article, we discuss methods that pediatric primary care organizations can use to collect and document sexual orientation and gender identity information with children and adolescents in electronic health records. These recommendations take into consideration children's developmental stages, the role of caregivers, and the need to protect the privacy of this information. We also focus on the current limitations of electronic health records in capturing the nuances of sexual and gender minority identities and make suggestions for addressing these limitations.
© The Author(s) 2022. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  SOGI data; electronic health records; gender identity; health disparities; sexual orientation

Mesh:

Year:  2022        PMID: 35396995      PMCID: PMC9196694          DOI: 10.1093/jamia/ocac048

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   7.942


  54 in total

Review 1.  Patterns of gender development.

Authors:  Carol Lynn Martin; Diane N Ruble
Journal:  Annu Rev Psychol       Date:  2010       Impact factor: 24.137

2.  Collection of Sexual Orientation and Gender Identity Data on the Front Lines of Health Care: More Than Meets the Eye.

Authors:  Madeline B Deutsch
Journal:  Jt Comm J Qual Patient Saf       Date:  2020-06-12

3.  NASPAG/SAHM Statement: The 21st Century Cures Act and Adolescent Confidentiality.

Authors:  Jennifer Carlson; Rachel Goldstein; Kim Hoover; Nichole Tyson
Journal:  J Adolesc Health       Date:  2021-02       Impact factor: 5.012

4.  Documentation of Gender Identity in an Adolescent and Young Adult Clinic.

Authors:  Stanley R Vance; Veronika V Mesheriakova
Journal:  J Adolesc Health       Date:  2016-12-15       Impact factor: 5.012

5.  Updated recommendations from the world professional association for transgender health standards of care.

Authors:  Madeline B Deutsch; Jamie L Feldman
Journal:  Am Fam Physician       Date:  2013-01-15       Impact factor: 3.292

6.  Using sexual orientation and gender identity data in electronic health records to assess for disparities in preventive health screening services.

Authors:  Chris Grasso; Hilary Goldhammer; Russell J Brown; B W Furness
Journal:  Int J Med Inform       Date:  2020-08-07       Impact factor: 4.046

7.  Sexual Orientation and Gender Identity Data Collection in Clinical Settings and in Electronic Health Records: A Key to Ending LGBT Health Disparities.

Authors:  Sean Cahill; Harvey Makadon
Journal:  LGBT Health       Date:  2013-08-02       Impact factor: 4.151

8.  Assessing Whether Medical Students Consistently Ask Patients About Sexual Orientation and Gender Identity as a Function of Year in Training.

Authors:  Keeley D Newsom; Gregory A Carter; Jessica J Hille
Journal:  LGBT Health       Date:  2022-02-01       Impact factor: 4.151

9.  Optimizing gender-affirming medical care through anatomical inventories, clinical decision support, and population health management in electronic health record systems.

Authors:  Chris Grasso; Hilary Goldhammer; Julie Thompson; Alex S Keuroghlian
Journal:  J Am Med Inform Assoc       Date:  2021-10-12       Impact factor: 7.942

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