Literature DB >> 34558157

Key stakeholder perspectives on obstacles to an autism-specific Medicaid waiver service delivery model.

Calliope Holingue1,2,3, Yeon Jang1, Gazi Azad4,5, Rebecca Landa1,6.   

Abstract

BACKGROUND: Children and youth with autism spectrum disorder have significant, multi-system needs that require supports, such as the autism waiver (AW) service delivery model. This study aimed to identify and describe characteristics of the AW, define obstacles and strengths in the provision of adequate services and provide recommendations for improving overall effectiveness.
METHODS: This mixed-methods exploratory study used an electronic survey to gain information and perceptions of AW provider agency directors (n = 27) and service coordinators (n = 30).
RESULTS: The key barriers reported were the shortage of qualified staff, inadequate staff training, complexity of cases or symptom severity of clients and lack of communication at multiple levels throughout the agency as well as with parents.
CONCLUSIONS: Recommendations include reinforcing the workforce through higher salaries, greater training and communication interventions. These strategies may reduce staff turnover and shortage, lighten the caseload, reduce the waitlist period and improve the effectiveness and responsiveness of AW services.
© 2021 John Wiley & Sons Ltd.

Entities:  

Keywords:  autism spectrum disorder (ASD); autism waiver; services

Mesh:

Year:  2021        PMID: 34558157      PMCID: PMC8995080          DOI: 10.1111/jar.12940

Source DB:  PubMed          Journal:  J Appl Res Intellect Disabil        ISSN: 1360-2322


  43 in total

1.  Do challenging behaviors affect staff psychological well-being? Issues of causality and mechanism.

Authors:  Richard P Hastings
Journal:  Am J Ment Retard       Date:  2002-11

2.  Home and Community Based Services (HCBS) waivers: a nationwide study of the states.

Authors:  Mary C Rizzolo; Carli Friedman; Amie Lulinski-Norris; David Braddock
Journal:  Intellect Dev Disabil       Date:  2013-02

3.  Autism spectrum disorder: parenting stress, family functioning and health-related quality of life.

Authors:  Norah Johnson; Marilyn Frenn; Suzanne Feetham; Pippa Simpson
Journal:  Fam Syst Health       Date:  2011-09       Impact factor: 1.950

4.  Family well-being in a participant-directed autism waiver program: the role of relational coordination.

Authors:  M E Warfield; G Chiri; W N Leutz; M Timberlake
Journal:  J Intellect Disabil Res       Date:  2013-11-25

5.  Developing physician communication skills for patient-centered care.

Authors:  Wendy Levinson; Cara S Lesser; Ronald M Epstein
Journal:  Health Aff (Millwood)       Date:  2010-07       Impact factor: 6.301

6.  The impact of overtime and long work hours on occupational injuries and illnesses: new evidence from the United States.

Authors:  A E Dembe; J B Erickson; R G Delbos; S M Banks
Journal:  Occup Environ Med       Date:  2005-09       Impact factor: 4.402

7.  Shared Decision Making and Treatment Decisions for Young Children With Autism Spectrum Disorder.

Authors:  Susan E Levy; Rosemary Frasso; Stephanie Colantonio; Hayley Reed; Gail Stein; Frances K Barg; David S Mandell; Alexander G Fiks
Journal:  Acad Pediatr       Date:  2016-04-27       Impact factor: 3.107

Review 8.  Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: a review of the literature within the International Classification of Functioning, Disability and Health (ICF) framework.

Authors:  Robyn O'Halloran; Louise Hickson; Linda Worrall
Journal:  Int J Lang Commun Disord       Date:  2008 Nov-Dec       Impact factor: 3.020

9.  The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress.

Authors:  Karen Goldrich Eskow; Gregory S Chasson; Jean Ann Summers
Journal:  J Autism Dev Disord       Date:  2019-05

10.  The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder.

Authors:  Stephanie A Hayes; Shelley L Watson
Journal:  J Autism Dev Disord       Date:  2013-03
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