Literature DB >> 34539049

Re-evaluating standards of human subjects protection for sensitive health data in social media networks.

Kar-Hai Chu1, Jason Colditz1, Jaime Sidani1, Michael Zimmer2, Brian Primack1.   

Abstract

This study addresses ethical questions about conducting health science research using network data from social media platforms. We provide examples of ethically problematic areas related to participant consent, expectation of privacy, and social media networks. Further, to illustrate how researchers can maintain ethical integrity while leveraging social media networks, we describe a study that demonstrates the ability to use social media to identify individuals affected by cancer. We discuss best practices and ethical guidelines for studying social media network data, including data collection, analysis, and reporting.

Entities:  

Keywords:  Research ethics; health data; privacy; social media

Year:  2019        PMID: 34539049      PMCID: PMC8447877          DOI: 10.1016/j.socnet.2019.10.010

Source DB:  PubMed          Journal:  Soc Networks        ISSN: 0378-8733


  19 in total

1.  HIPAA and Protecting Health Information in the 21st Century.

Authors:  I Glenn Cohen; Michelle M Mello
Journal:  JAMA       Date:  2018-07-17       Impact factor: 56.272

2.  How scientists can take the lead in establishing ethical practices for social media research.

Authors:  Sherry Pagoto; Camille Nebeker
Journal:  J Am Med Inform Assoc       Date:  2019-04-01       Impact factor: 4.497

3.  Twitter chatter about marijuana.

Authors:  Patricia A Cavazos-Rehg; Melissa Krauss; Sherri L Fisher; Patricia Salyer; Richard A Grucza; Laura Jean Bierut
Journal:  J Adolesc Health       Date:  2015-02       Impact factor: 5.012

4.  Pandemics in the age of Twitter: content analysis of Tweets during the 2009 H1N1 outbreak.

Authors:  Cynthia Chew; Gunther Eysenbach
Journal:  PLoS One       Date:  2010-11-29       Impact factor: 3.240

5.  Using Social Media as a Research Recruitment Tool: Ethical Issues and Recommendations.

Authors:  Luke Gelinas; Robin Pierce; Sabune Winkler; I Glenn Cohen; Holly Fernandez Lynch; Barbara E Bierer
Journal:  Am J Bioeth       Date:  2017-03       Impact factor: 11.229

6.  OMG U got flu? Analysis of shared health messages for bio-surveillance.

Authors:  Nigel Collier; Nguyen Truong Son; Ngoc Mai Nguyen
Journal:  J Biomed Semantics       Date:  2011-10-06

7.  Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact.

Authors:  Shaodian Zhang; Erin O'Carroll Bantum; Jason Owen; Suzanne Bakken; Noémie Elhadad
Journal:  J Am Med Inform Assoc       Date:  2017-03-01       Impact factor: 4.497

8.  Using twitter to examine smoking behavior and perceptions of emerging tobacco products.

Authors:  Mark Myslín; Shu-Hong Zhu; Wendy Chapman; Mike Conway
Journal:  J Med Internet Res       Date:  2013-08-29       Impact factor: 5.428

9.  Characterizing the followers and tweets of a marijuana-focused Twitter handle.

Authors:  Patricia Cavazos-Rehg; Melissa Krauss; Richard Grucza; Laura Bierut
Journal:  J Med Internet Res       Date:  2014-06-27       Impact factor: 5.428

10.  Establishing a Link Between Prescription Drug Abuse and Illicit Online Pharmacies: Analysis of Twitter Data.

Authors:  Takeo Katsuki; Tim Ken Mackey; Raphael Cuomo
Journal:  J Med Internet Res       Date:  2015-12-16       Impact factor: 5.428

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