Literature DB >> 34394505

"It's like having an evil twin": an interpretative phenomenological analysis of the lifeworld of a person with Parkinson's disease.

Virginia Eatough1, Karen Shaw2.   

Abstract

BACKGROUND: This paper offers an understanding of the lifeworld of a person with Parkinson's Disease derived from interpretative phenomenological analysis (IPA). AIMS: The paper has two main aims: firstly, to demonstrate how a focus on individual experience chimes with and can inform current ideas of a more personalised humanised form of healthcare for people living with Parkinson's disease; and secondly, to demonstrate how an IPA study can illuminate particularity whilst being able to make, albeit cautiously, more general knowledge claims that can inform wider caring practices.
METHODS: It achieves these aims through the detailed description and interpretation of one person's experience of living with Parkinson's disease using the IPA approach.
RESULTS: Three analytic themes point to how the various constituents of the lifeworld, such as embodiment, selfhood, temporality and relationality are made manifest. These enable the IPA researcher to make well-judged inferences, which can have value beyond the individual case.
CONCLUSIONS: A key feature of IPA is its commitment to an idiographic approach that recognises the value of understanding a situated experience from the perspective of a particular person or persons.
© The Author(s) 2019.

Entities:  

Keywords:  case study; chronic illness; compassionate care; lifeworld; older people; phenomenology; qualitative

Year:  2019        PMID: 34394505      PMCID: PMC7932437          DOI: 10.1177/1744987118821396

Source DB:  PubMed          Journal:  J Res Nurs        ISSN: 1744-9871


  9 in total

1.  Defining 'people-centredness': making the implicit explicit.

Authors:  Brian Williams; Gordon Grant
Journal:  Health Soc Care Community       Date:  1998-03

2.  Improving the quality of health care for chronic conditions.

Authors:  J E Epping-Jordan; S D Pruitt; R Bengoa; E H Wagner
Journal:  Qual Saf Health Care       Date:  2004-08

3.  A central unifying focus for the discipline: facilitating humanization, meaning, choice, quality of life, and healing in living and dying.

Authors:  Danny G Willis; Pamela J Grace; Callista Roy
Journal:  ANS Adv Nurs Sci       Date:  2008 Jan-Mar       Impact factor: 1.824

4.  Why the nation needs a policy push on patient-centered health care.

Authors:  Ronald M Epstein; Kevin Fiscella; Cara S Lesser; Kurt C Stange
Journal:  Health Aff (Millwood)       Date:  2010-08       Impact factor: 6.301

5.  Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor-patient communication in general practice.

Authors:  C A Barry; F A Stevenson; N Britten; N Barber; C P Bradley
Journal:  Soc Sci Med       Date:  2001-08       Impact factor: 4.634

6.  'I'm worried about getting water in the holes in my head': A phenomenological psychology case study of the experience of undergoing deep brain stimulation surgery for Parkinson's disease.

Authors:  Virginia Eatough; Karen Shaw
Journal:  Br J Health Psychol       Date:  2016-11-17

7.  The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet.

Authors:  N J Fox; K J Ward; A J O'Rourke
Journal:  Soc Sci Med       Date:  2005-03       Impact factor: 4.634

Review 8.  Self-management support interventions for persons with chronic disease: an evidence-based analysis.

Authors:  J Franek
Journal:  Ont Health Technol Assess Ser       Date:  2013-09-01

9.  Patient and public involvement in chronic illness: beyond the expert patient.

Authors:  Trisha Greenhalgh
Journal:  BMJ       Date:  2009-02-17
  9 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.