Literature DB >> 15626525

The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet.

N J Fox1, K J Ward, A J O'Rourke.   

Abstract

Do 'informed' or 'expert' patients challenge dominant traditions in biomedicine or simply adopt these as conventional ways of thinking about body shape and size, illness and health? This paper examines this question in relation to the use of the weight-loss drug Xenical by participants in an Internet forum for obese and overweight people. Ethnographic and interview data from the forum provides evidence that participants share information and support each other as they use Xenical, and in the process emerge as 'expert patients' in relation to their body shape and its treatment. However, it is argued that while an 'expert patient' can be perceived as desirable, enabling the democratisation of healthcare, it can also be constraining. The exchanges between the users in the forum perpetuate a biomedical model of overweight as a condition to be overcome. The discussion critically considers a number of options for the development of the expert patient, including the emergence of an 'informed consumer'.

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Year:  2005        PMID: 15626525     DOI: 10.1016/j.socscimed.2004.07.005

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  41 in total

1.  Situations of Choice: Configuring the Empowered Consumer of Hearing Technologies.

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2.  German healthcare consumer's perception of the Internet as a source of health related information.

Authors:  Roxana Corina Dumitru; Thomas Ganslandt; Hans Ullrich Prokosch
Journal:  AMIA Annu Symp Proc       Date:  2006

3.  Towards a genealogy of pharmacological practice.

Authors:  Ricardo Camargo; Nicolás Ried
Journal:  Med Health Care Philos       Date:  2016-03

4.  Questioning context: a set of interdisciplinary questions for investigating contextual factors affecting health decision making.

Authors:  Andrea Charise; Holly Witteman; Sarah Whyte; Erica J Sutton; Jacqueline L Bender; Michael Massimi; Lindsay Stephens; Joshua Evans; Carmen Logie; Raza M Mirza; Marie Elf
Journal:  Health Expect       Date:  2010-10-28       Impact factor: 3.377

5.  Becoming in-formed: genetic counselling, ambiguity and choice.

Authors:  Joanna Latimer
Journal:  Health Care Anal       Date:  2007-03

6.  Harvesting experiential expertise to support safe driving for people with diabetes mellitus: a qualitative study evaluated by peers in a survey.

Authors:  Marika H F Burda; Frans van der Horst; Marjan van den Akker; Alexander D M Stork; Ilse Mesters; Silvia Bours; Maarten Ploeg; Bjorn Winkens; Johannes A Knottnerus
Journal:  Patient       Date:  2012       Impact factor: 3.883

7.  An exploration of how young people and parents use online support in the context of living with cystic fibrosis.

Authors:  Susan Kirk; Linda Milnes
Journal:  Health Expect       Date:  2015-02-17       Impact factor: 3.377

8.  Demanding patient or demanding encounter?: A case study of a cancer clinic.

Authors:  Clare Louise Stacey; Stuart Henderson; Kelly R MacArthur; Daniel Dohan
Journal:  Soc Sci Med       Date:  2009-07-18       Impact factor: 4.634

9.  Patients' lay expertise in chronic self-care: a case study in type 1 diabetes.

Authors:  Cristiano Storni
Journal:  Health Expect       Date:  2013-08-28       Impact factor: 3.377

Review 10.  Care planning for long-term conditions – a concept mapping.

Authors:  Monique Lhussier; Simon Eaton; Natalie Forster; Mathew Thomas; Sue Roberts; Susan M Carr
Journal:  Health Expect       Date:  2013-04-09       Impact factor: 3.377

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