Britta Grüne1, Anja K Köther2, Björn Büdenbender2, Maurice S Michel3, Maximilian C Kriegmair3, Georg W Alpers2. 1. Department of Urology, University Medical Center Mannheim, University of Heidelberg, Theodor-Kutzer-Ufer 1-3, 68167, Mannheim, Germany. britta.gruene@umm.de. 2. Department of Psychology, School of Social Sciences, University of Mannheim, Mannheim, Germany. 3. Department of Urology, University Medical Center Mannheim, University of Heidelberg, Theodor-Kutzer-Ufer 1-3, 68167, Mannheim, Germany.
Abstract
PURPOSE: This study aims to determine the degree of shared decision-making (SDM) from urological patients' perspective and to identify possible predictors. METHODS: Overall, 469 urological patients of a university outpatient clinic were recruited for this prospective study. Before a medical consultation, clinical and sociodemographic information, and patients' emotional distress were assessed by questionnaires. After the consultation, patients completed the SDM-Questionnaire-9 (SDM-Q-9). The SDM-Q-9 scores of relevant subgroups were compared. Logistic regression was used to identify patients at risk for experiencing low involvement (SDM-Q-9 total score ≤ 66) in SDM. RESULTS: Data from 372 patients were available for statistical analyses. The SDM-Q-9 mean total score was 77.8 ± 20.6. The majority of patients (n = 271, 73%) experienced a high degree of involvement (SDM-Q-9 total score > 66). The mean score per SDM-Q-9 item was in the upper range (3.9 ± 1.4 out of 5). The most poorly rated item was "My doctor wanted to know how I want to be involved in decision-making" (3.5 ± 1.6). Immigration status (OR 3.7, p = 0.049), and nonscheduled hospital registration (OR 2.1, p = 0.047) were significant predictors for less perceived involvement. Comorbidity, oncological status, and emotional distress did not significantly predict perceived participation. CONCLUSION: In a university hospital setting, most urological patients feel adequately involved in SDM. Nevertheless, urologists should routinely ask for patients' participation preference. Patients without a scheduled appointment and patients who immigrated may need more support to feel involved in SDM.
PURPOSE: This study aims to determine the degree of shared decision-making (SDM) from urological patients' perspective and to identify possible predictors. METHODS: Overall, 469 urological patients of a university outpatient clinic were recruited for this prospective study. Before a medical consultation, clinical and sociodemographic information, and patients' emotional distress were assessed by questionnaires. After the consultation, patients completed the SDM-Questionnaire-9 (SDM-Q-9). The SDM-Q-9 scores of relevant subgroups were compared. Logistic regression was used to identify patients at risk for experiencing low involvement (SDM-Q-9 total score ≤ 66) in SDM. RESULTS: Data from 372 patients were available for statistical analyses. The SDM-Q-9 mean total score was 77.8 ± 20.6. The majority of patients (n = 271, 73%) experienced a high degree of involvement (SDM-Q-9 total score > 66). The mean score per SDM-Q-9 item was in the upper range (3.9 ± 1.4 out of 5). The most poorly rated item was "My doctor wanted to know how I want to be involved in decision-making" (3.5 ± 1.6). Immigration status (OR 3.7, p = 0.049), and nonscheduled hospital registration (OR 2.1, p = 0.047) were significant predictors for less perceived involvement. Comorbidity, oncological status, and emotional distress did not significantly predict perceived participation. CONCLUSION: In a university hospital setting, most urological patients feel adequately involved in SDM. Nevertheless, urologists should routinely ask for patients' participation preference. Patients without a scheduled appointment and patients who immigrated may need more support to feel involved in SDM.
Authors: Anja K Köther; Georg W Alpers; Björn Büdenbender; Maximilian Lenhart; Maurice S Michel; Maximilian C Kriegmair Journal: Patient Educ Couns Date: 2020-11-05
Authors: Britta Grüne; Maximilian C Kriegmair; Maximilian Lenhart; Maurice S Michel; Johannes Huber; Anja K Köther; Björn Büdenbender; Georg W Alpers Journal: Eur Urol Focus Date: 2021-05-10
Authors: Paul James Barr; Rachel Thompson; Thom Walsh; Stuart W Grande; Elissa M Ozanne; Glyn Elwyn Journal: J Med Internet Res Date: 2014-01-03 Impact factor: 5.428
Authors: Kari A O Tikkinen; Philipp Dahm; Lyubov Lytvyn; Anja F Heen; Robin W M Vernooij; Reed A C Siemieniuk; Russell Wheeler; Bill Vaughan; Awah Cletus Fobuzi; Marco H Blanker; Noelle Junod; Johanna Sommer; Jérôme Stirnemann; Manabu Yoshimura; Reto Auer; Helen MacDonald; Gordon Guyatt; Per Olav Vandvik; Thomas Agoritsas Journal: BMJ Date: 2018-09-05
Authors: Anja K Köther; Björn Büdenbender; Britta Grüne; Sonja Holbach; Johannes Huber; Nicolas von Landenberg; Julia Lenk; Thomas Martini; Maurice S Michel; Maximilian C Kriegmair; Georg W Alpers Journal: Cancer Med Date: 2022-03-24 Impact factor: 4.711