Shucheng Pan1, Jinjiao Mao1, Lijuan Wang1, Yun Dai1, Wei Wang2. 1. The First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou, China. 2. The First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou, China. wangw2005@zju.edu.cn.
Abstract
PURPOSE: Despite increasing development in decision-making strategies for patients with prostate cancer, little is known about patients' individual experience and perception throughout the decision-making process. The objective of this study was to explore patients' experiences and perceptions towards treatment decision-making. METHODS: We conducted a qualitative interview study with 30 patients diagnosed with prostate cancer. We transcribed interviews verbatim and inductively identified codes. Thematic analysis was used to develop and refine a codebook that aided in the identification of themes. RESULTS: Three key themes and nine subthemes emerged, which were as follows: I. less involved in treatment decision-making, (i) passive decisional control, (ii) lack of medical knowledge, and (iii) domination by family members; II. the right to be informed of the disease condition and to choose treatment options, (i) sociocultural influences, (ii) patients believe that they should know the true facts of the disease, and (iii) patient autonomy during treatment; and III. future consideration and advance care planning, (i) fewer future concerns, (ii) advance care planning is poorly understood, and (iii) acceptance of advance care planning. CONCLUSION: The study results show that patients with prostate cancer have a diversity of needs to cultivate their ability to make treatment decisions, and healthcare professionals should empower patients, as well as provide decision aids or decision support for patients.
PURPOSE: Despite increasing development in decision-making strategies for patients with prostate cancer, little is known about patients' individual experience and perception throughout the decision-making process. The objective of this study was to explore patients' experiences and perceptions towards treatment decision-making. METHODS: We conducted a qualitative interview study with 30 patients diagnosed with prostate cancer. We transcribed interviews verbatim and inductively identified codes. Thematic analysis was used to develop and refine a codebook that aided in the identification of themes. RESULTS: Three key themes and nine subthemes emerged, which were as follows: I. less involved in treatment decision-making, (i) passive decisional control, (ii) lack of medical knowledge, and (iii) domination by family members; II. the right to be informed of the disease condition and to choose treatment options, (i) sociocultural influences, (ii) patients believe that they should know the true facts of the disease, and (iii) patient autonomy during treatment; and III. future consideration and advance care planning, (i) fewer future concerns, (ii) advance care planning is poorly understood, and (iii) acceptance of advance care planning. CONCLUSION: The study results show that patients with prostate cancer have a diversity of needs to cultivate their ability to make treatment decisions, and healthcare professionals should empower patients, as well as provide decision aids or decision support for patients.
Authors: M Maffoni; S Traversoni; E Costa; L Midão; P Kardas; M Kurczewska-Michalak; A Giardini Journal: Eur Geriatr Med Date: 2020-03-30 Impact factor: 1.710
Authors: Martin C S Wong; William B Goggins; Harry H X Wang; Franklin D H Fung; Colette Leung; Samuel Y S Wong; Chi Fai Ng; Joseph J Y Sung Journal: Eur Urol Date: 2016-06-08 Impact factor: 20.096
Authors: Catherine de Martel; Damien Georges; Freddie Bray; Jacques Ferlay; Gary M Clifford Journal: Lancet Glob Health Date: 2019-12-17 Impact factor: 26.763