Literature DB >> 34263327

Influence of Port-wine Stains on Quality of Life of Children and Their Parents.

Fan Jiang1, Junyi Shao, Lele Chen, Nali Yang, Jingjing Liu, Zhiming Li.   

Abstract

Port-wine stains are congenital vascular malformations that affect the quality of life of children and their parents. This study used the Family Dermatology Life Quality Index and Children's Dermatology Life Quality Index to examine the effects of port-wine stains on the quality of life of children and their parents, including an in-depth, systematic analysis of the moderating effects of the children's sex and port-wine stain classification. The study included 43 children (25 girls and 18 boys) and their parents. The presence of a port-wine stain had a significantly greater impact on the quality of life of mothers than on that of fathers (p < 0.001). Port-wine stains in girls had a greater effect on paternal quality of life than did port-wine stains in boys (girls p < 0.01; boys p = 0.542). Severe types of port-wine stains exerted a greater impact on maternal quality of life (pink-red type, dark-red type, and purple-dark type: p < 0.001, p = 0.948 and p = 0.086, respectively). There-fore, clinicians should consider familial relationships and differences when offering psychological support.

Entities:  

Keywords:  Family Dermatology Life Quality Index; parents’ quality of life; quality of life; port-wine stains

Mesh:

Year:  2021        PMID: 34263327      PMCID: PMC9413813          DOI: 10.2340/00015555-3883

Source DB:  PubMed          Journal:  Acta Derm Venereol        ISSN: 0001-5555            Impact factor:   3.875


  24 in total

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Authors:  Agneta Gånemo; Carl-Fredrik Wahlgren; Åke Svensson
Journal:  Pediatr Dermatol       Date:  2011-07-08       Impact factor: 1.588

Review 2.  Port-wine stain laser treatments and novel approaches.

Authors:  Arisa E Ortiz; J Stuart Nelson
Journal:  Facial Plast Surg       Date:  2012-11-27       Impact factor: 1.446

3.  Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: A prospective, cross-sectional study.

Authors:  Elana Putterman; Deepa P Patel; Gabriela Andrade; Katya L Harfmann; Marcia Hogeling; Carol E Cheng; Carolyn Goh; Rachel S Rogers; Leslie Castelo-Soccio
Journal:  J Am Acad Dermatol       Date:  2019-01-08       Impact factor: 11.527

4.  Burden of Infantile Hemangioma on Family: An International Observational Cross-Sectional Study.

Authors:  Christine Cazeau; Francine Blei; María Del Rosario Fátima Gonzáles Hermosa; Riccardo Cavalli; Olivia Boccara; Regina Fölster-Holst; Gilles Berdeaux; Alain Delarue; Jean-Jacques Voisard
Journal:  Pediatr Dermatol       Date:  2017-04-06       Impact factor: 1.588

Review 5.  Capillary Malformations (Portwine Stains) of the Head and Neck: Natural History, Investigations, Laser, and Surgical Management.

Authors:  Jeong Woo Lee; Ho Yun Chung
Journal:  Otolaryngol Clin North Am       Date:  2018-02       Impact factor: 3.346

6.  The Children's Dermatology Life Quality Index (CDLQI): initial validation and practical use.

Authors:  M S Lewis-Jones; A Y Finlay
Journal:  Br J Dermatol       Date:  1995-06       Impact factor: 9.302

7.  Stigmatization predicts psychological adjustment and quality of life in children and adolescents with a facial difference.

Authors:  Ornella Masnari; Clemens Schiestl; Jochen Rössler; Stefanie K Gütlein; Kathrin Neuhaus; Lisa Weibel; Martin Meuli; Markus A Landolt
Journal:  J Pediatr Psychol       Date:  2012-11-20

8.  Impact of Childhood Psoriasis on Caregivers' Quality of Life, Measured with Family Dermatology Life Quality Index.

Authors:  Magdalena Żychowska; Adam Reich; Joanna Maj; Alina Jankowska-Konsur; Jacek C Szepietowski
Journal:  Acta Derm Venereol       Date:  2020-08-18       Impact factor: 3.875

9.  Childhood vitiligo impacts emotional health of parents: a prospective, cross-sectional study of quality of life for primary caregivers.

Authors:  Gabriela Andrade; Sneha Rangu; Lauren Provini; Elana Putterman; Abigail Gauthier; Leslie Castelo-Soccio
Journal:  J Patient Rep Outcomes       Date:  2020-03-20

10.  Quality of life in infants with atopic dermatitis and their families.

Authors:  Milena Ražnatović Djurović; Janko Janković; Anđa Ćirković; Vesna Tomić Spirić; Nataša Maksimović; Zorica Sojević Timotijević; Danica Vukićević; Zlatica Mirković; Leonida Vitković; Slavenka Janković
Journal:  Postepy Dermatol Alergol       Date:  2020-03-09       Impact factor: 1.837

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  2 in total

1.  Willingness to Pay and Time Trade-off in Thai Patients with Port-Wine Stains.

Authors:  Tatre Jantarakolica; Rungsima Wanitphakdeedecha; Chadakan Yan; Yuri Yogya; Surachet Sirisuthivoranunt; Supisara Wongdama; Phumithep Phumariyapong; Tatchalerm Sudhipongpracha
Journal:  Clinicoecon Outcomes Res       Date:  2022-09-22

2.  A New Nonlinear Photothermal Iterative Theory for Port-Wine Stain Detection.

Authors:  Na Cao; Hongtao Liang; Ruoyu Zhang; Yanhua Li; Hui Cao
Journal:  Int J Environ Res Public Health       Date:  2022-05-05       Impact factor: 4.614

  2 in total

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