Literature DB >> 32725260

Impact of Childhood Psoriasis on Caregivers' Quality of Life, Measured with Family Dermatology Life Quality Index.

Magdalena Żychowska1, Adam Reich, Joanna Maj, Alina Jankowska-Konsur, Jacek C Szepietowski.   

Abstract

Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (age range 5-17.5 years) was measured using Family Dermatology Life Quality Index (FDLQI). Childhood psoriasis exerted a substantial impact on the QoL of caregivers (mean FDLQI 13.62±6.15 points). Caregivers rated routine household expenditure, time spent caring for the skin of the child, and emotional distress as the areas most impacted by psoriasis. The areas least affected were parent-child relationships, and caregivers' social lives. The impact of other people's reactions to the child's disease was rated as more severe by caregivers of girls compared with those of boys (p=0.004).

Entities:  

Keywords:  family dermatology life quality index; parents’ quality of life; quality of life; childhood psoriasis

Mesh:

Year:  2020        PMID: 32725260      PMCID: PMC9207654          DOI: 10.2340/00015555-3602

Source DB:  PubMed          Journal:  Acta Derm Venereol        ISSN: 0001-5555            Impact factor:   3.875


  23 in total

1.  The impact of childhood atopic dermatitis on the patients' family.

Authors:  Hani A Al Shobaili
Journal:  Pediatr Dermatol       Date:  2010-11-16       Impact factor: 1.588

2.  A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases.

Authors:  P E Beattie; M S Lewis-Jones
Journal:  Br J Dermatol       Date:  2006-07       Impact factor: 9.302

3.  Quality of life and clinical features in Swedish children with psoriasis.

Authors:  Agneta Gånemo; Carl-Fredrik Wahlgren; Åke Svensson
Journal:  Pediatr Dermatol       Date:  2011-07-08       Impact factor: 1.588

4.  Dyadic adjustment, family coping, body image, quality of life and psychological morbidity in patients with psoriasis and their partners.

Authors:  M Graça Pereira; Laura Brito; Tom Smith
Journal:  Int J Behav Med       Date:  2012-09

5.  The burden of childhood psoriasis.

Authors:  Michelle E A de Jager; Elke M G J De Jong; Andrea W M Evers; Peter C M Van De Kerkhof; Marieke M B Seyger
Journal:  Pediatr Dermatol       Date:  2011-06-22       Impact factor: 1.588

Review 6.  The burden of atopic dermatitis: impact on the patient, family, and society.

Authors:  Christie L Carroll; Rajesh Balkrishnan; Steven R Feldman; Alan B Fleischer; Janeen C Manuel
Journal:  Pediatr Dermatol       Date:  2005 May-Jun       Impact factor: 1.588

7.  The first nation-wide study revealing epidemiologic data and life quality aspects of psoriasis in Romania.

Authors:  Andreea Nicoleta Boca; Roxana Flavia Ilies; Stefan Vesa; Raluca Pop; Alexandru Dumitru Tataru; Anca Dana Buzoianu
Journal:  Exp Ther Med       Date:  2019-06-10       Impact factor: 2.447

8.  May the gender of a parent influence assessment of health-related quality of life, family impact and severity of atopic dermatitis in children?

Authors:  P V Chernyshov
Journal:  Pediatr Dermatol       Date:  2009 Jan-Feb       Impact factor: 1.588

9.  Assessing depression and anxiety in the caregivers of pediatric patients with chronic skin disorders.

Authors:  Ana Paula Dornelles da Silva Manzoni; Magda Blessmann Weber; Aline Rodrigues da Silva Nagatomi; Rita Langie Pereira; Roberta Zaffari Townsend; Tania Ferreira Cestari
Journal:  An Bras Dermatol       Date:  2013 Nov-Dec       Impact factor: 1.896

10.  Impact of psoriasis in the quality of life of children, adolescents and their families: a cross-sectional study.

Authors:  Andac Salman; Ayse Deniz Yucelten; Esra Sarac; Merve Hatun Saricam; Nese Perdahli-Fis
Journal:  An Bras Dermatol       Date:  2018 Nov/Dec       Impact factor: 1.896

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  4 in total

1.  Treatment of pediatric psoriasis with TNF-antagonists: a real-life single-center case series.

Authors:  Matteo Megna; Gabriella Fabbrocini; Lucia Gallo; Angelo Ruggiero; Elisa Camela; Sonia Sofía Ocampo-Garza; Eleonora Cinelli
Journal:  An Bras Dermatol       Date:  2022-09-05       Impact factor: 2.113

2.  An Association of Pediatric Psoriasis with Metabolic Syndrome in Thai Children: 20 Years Retrospective Study.

Authors:  Parichat Mhusakunchai; Leelawadee Techasatian
Journal:  Psoriasis (Auckl)       Date:  2021-06-29

3.  Influence of Port-wine Stains on Quality of Life of Children and Their Parents.

Authors:  Fan Jiang; Junyi Shao; Lele Chen; Nali Yang; Jingjing Liu; Zhiming Li
Journal:  Acta Derm Venereol       Date:  2021-08-16       Impact factor: 3.875

4.  Systematic review of psychosocial needs assessment tools for caregivers of paediatric patients with dermatological conditions.

Authors:  Carleen Walsh; Gerard Leavey; Marian McLaughlin
Journal:  BMJ Open       Date:  2022-01-19       Impact factor: 2.692

  4 in total

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