Krista M Ekberg1, Chelsea Torres1, Leonard A Jason2. 1. Center for Community Research, DePaul University, 990 W. Fullerton Ave., Suite 3100, Chicago, IL, 60614, USA. 2. Center for Community Research, DePaul University, 990 W. Fullerton Ave., Suite 3100, Chicago, IL, 60614, USA. ljason@depaul.edu.
Abstract
PURPOSE: Few studies have examined parent-child discrepancies on self-report measures of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) symptomatology and health-related quality of life (HRQOL). The aim of this study was to investigate parent-child reporting discrepancies between a pediatric sample of diagnosed patients with ME/CFS and controls to better understand the role of children and adolescent reporting. METHOD: Data for this study were drawn from a community-based epidemiological study of pediatric ME/CFS in the Chicagoland area. A total of 147 parent-child dyads (75 pairs with ME/CFS and 72 control pairs) completed measures assessing HRQOL and ME/CFS symptomatology. At the individual level, agreement was assessed using intra-class correlation coefficient (ICC) scores. Agreement was measured at the group level by a comparison of means using paired-sample t-tests. RESULTS: Intra-class correlations revealed varied agreement in both parent-child pairs of children who met at least one case definition of ME/CFS and in parent-child pairs in the control group. CONCLUSION: The current study provides support for the existence of discrepancies between parent-child reports of ME/CFS symptomatology and HRQOL measures. Limitations and future directions are discussed.
PURPOSE: Few studies have examined parent-child discrepancies on self-report measures of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) symptomatology and health-related quality of life (HRQOL). The aim of this study was to investigate parent-child reporting discrepancies between a pediatric sample of diagnosed patients with ME/CFS and controls to better understand the role of children and adolescent reporting. METHOD: Data for this study were drawn from a community-based epidemiological study of pediatric ME/CFS in the Chicagoland area. A total of 147 parent-child dyads (75 pairs with ME/CFS and 72 control pairs) completed measures assessing HRQOL and ME/CFS symptomatology. At the individual level, agreement was assessed using intra-class correlation coefficient (ICC) scores. Agreement was measured at the group level by a comparison of means using paired-sample t-tests. RESULTS: Intra-class correlations revealed varied agreement in both parent-child pairs of children who met at least one case definition of ME/CFS and in parent-child pairs in the control group. CONCLUSION: The current study provides support for the existence of discrepancies between parent-child reports of ME/CFS symptomatology and HRQOL measures. Limitations and future directions are discussed.
Authors: Tonya M Palermo; Anna C Long; Amy S Lewandowski; Dennis Drotar; Alexandra L Quittner; Lynn S Walker Journal: J Pediatr Psychol Date: 2008-04-22
Authors: Elisha K Josev; Melinda L Jackson; Bei Bei; John Trinder; Adrienne Harvey; Cathriona Clarke; Kelli Snodgrass; Adam Scheinberg; Sarah J Knight Journal: J Clin Sleep Med Date: 2017-09-15 Impact factor: 4.062