| Literature DB >> 34180249 |
Julia Cook1, Laura Crane1, Laura Hull1, Laura Bourne1, William Mandy1.
Abstract
LAY ABSTRACT: Camouflaging can be thought of as the process through which autistic people modify their natural social behaviours to adapt to, cope within or influence the largely neurotypical (non-autistic) social world. Many autistic people experience negative reactions to their natural or intuitive social behaviours when interacting with non-autistic people. Over time, in response to these negative reactions, autistic people's social behaviour often changes. We refer to autistic people's changed behaviours as 'camouflaging behaviours'. Research exploring camouflaging behaviours is still at an early stage. This study investigated camouflaging behaviours used by autistic adults in everyday social interactions using a research method that was new to the field of autism. Specifically, 17 autistic adults were filmed taking part in a common everyday social situation - a conversation with a stranger. With the help of the video of this conversation, they then showed and described their camouflaging behaviours to a researcher. These autistic people identified and described a total of 38 different camouflaging behaviours. The detailed and specific information provided by autistic adults about camouflaging behaviours generated important new insights into the ways in which autistic people adapt to, cope within and influence the neurotypical (non-autistic) social world.Entities:
Keywords: autism; camouflaging; masking; social behaviour
Mesh:
Year: 2021 PMID: 34180249 PMCID: PMC8814950 DOI: 10.1177/13623613211026754
Source DB: PubMed Journal: Autism ISSN: 1362-3613
Participant characteristics.
| N | 17 |
| Age (mean years) | 44.53 (SD 12.03) |
| Age range | 24–63 |
| Age at diagnosis (mean years) | 41.71 (SD 12.18) |
| IQ | 112.47 (SD 4.65) |
| AQ | 39.71 (SD 6.02) |
| CAT-Q | 132.71 (SD 18.1) |
| Ethnicity, N (%) | |
| White British | 12 (70.6) |
| White other | 3 (17.6) |
| Mixed (other mixed background) | 1 (5.9) |
| Hispanic | 1 (5.9) |
| Education, N (%) | |
| PhD | 1 (5.9) |
| Master’s degree | 7 (41.2) |
| Bachelor’s degree | 8 (47.1) |
| A-levels (16–18 years) | 1 (5.9) |
| Occupation, N (%) | |
| Working full-time | 6 (35.3) |
| Working part-time | 7 (41.2) |
| Voluntary employment | 2 (11.8) |
| Caring duties | 1 (5.9) |
| Student | 4 (23.5) |
| Unknown | 1 (5.9) |
| Current living circumstances, N (%) | |
| Lives independently | 17 (100) |
Percentage may not sum 100% because of rounding. Mixed Other indicates mixed ethnicity other than Asian and White or Black and White. White Other indicates White ethnicity other than White British or Irish. Occupational categories not mutually exclusive.
Figure 1.Camouflaging behaviour categories and subcategories.
Description and frequencies of camouflaging codes.
| Behaviour | Description | Frequency, N (%) |
|---|---|---|
| Masking | ||
| Avoid or limit discussion related to oneself | Avoiding or limiting time speaking about oneself or disclosing personal information (e.g. information about one’s relationship, financial status, daily activities, special interests or hobbies) | 11 (64.7) |
| Alter or reduce hand or arm movements | Reducing the frequency or minimising the visibility of non-gesture hand movements, including fidgeting movements and stimming hand movements | 8 (47.1) |
| Avoid specific facts and detailed information | Avoiding sharing factual, detailed or precise information | 7 (41.2) |
| Reduce body movements | Reducing repetitive movements involving the torso, legs or entire body including rocking and fidgeting | 3 (17.6) |
| Avoid autism | Avoiding disclosing one’s autism diagnosis or discussing the topic of autism | 2 (11.8) |
| Appearance | Altering physical appearance to appear more conventional or typical | 1 (5.9) |
| Innocuous socialising | ||
| Passive encouragement | ||
| Eye contact | Maintaining eye contact or maintaining the appearance of eye contact (i.e. looking at a social partner’s forehead, nose or mouth) | 11 (64.7) |
| Mirror | Mirroring another person’s verbal (e.g. accent) or non-verbal behaviours (hand movements, body language, smile or facial expressions) | 8 (47.1) |
| Smile | Smiling at others when speaking or listening | 6 (35.3) |
| Verbal minimal encouragers | Using verbal minimal encouragers (e.g. ‘oh really’, ‘yes’, ‘yeah’ and ‘okay’) | 5 (29.4) |
| Laugh | Laughing after one’s own or others’ statements | 3 (17.6) |
| Centring social partner | ||
| Focus on social partner | Guiding discussion to or maintaining discussion on topics of conversation that are related to one’s social partner or that may be of interest to one’s social partner | 9 (52.9) |
| Social partner guides conversation | Allowing or relying on one’s social partner to guide topics of conversation | 4 (23.5) |
| Deferential engagement | ||
| Apologise for/justify social performance | Apologise or provide excuses for perceived social errors or poor social performance | 4 (23.5) |
| Seek approval/permission | Seeking approval, permission or validation from one’s conversational partner | 4 (23.5) |
| Be cooperative | Avoiding confrontation or complaints and/or being cooperative, respectful and agreeable | 2 (11.8) |
| Reducing social risks | ||
| Avoid causing offence or distress | Avoiding words or remarks that could be perceived as rude, offensive, distressing or patronising | 6 (35.3) |
| Small talk | Discussing typical ‘small talk’ topics such as the weather, commuting or weekend activities | 6 (35.3) |
| Avoid or limit honest, direct communication | Avoiding or limiting honest or direct statements | 4 (23.5) |
| Avoid discussion of others’ personal and private lives | Avoiding questions or topics of conversation related to more personal or private aspects of others’ lives (e.g. relationships, social activities or general life outside of work) | 4 (23.5) |
| Avoid controversy | Avoiding or limiting discussion on topics of conversation that may generate controversy or debate | 2 (11.8) |
| Avoid appearing knowledgeable | Avoiding appearing knowledgeable about specific topics or information | 2 (11.8) |
| Avoid jokes | Avoid making jokes | 1 (5.9) |
| Modelling neurotypical communication | ||
| Gestures | Altering communicative gestures so these appear more like neurotypical gestures or increasing use of conventional gestures | 12 (70.6) |
| Body language | Altering body language so this appears more like neurotypical body language | 7 (41.2) |
| Clear verbal communication | Rephrasing or slowing speech, purposefully wording comments or providing clarifying comments | 7 (41.2) |
| Facial expressions | Altering facial expressions so these appear more similar to neurotypical facial expressions | 5 (29.4) |
| Speech intonation | Changing the tone of one’s voice or the emphasis placed on words to sound more conventional or typical | 4 (23.5) |
| Active self-presentation | ||
| Reciprocal social behaviours | ||
| Ask questions | Asking one’s social partner questions | 14 (82.4) |
| Maintain and build conversation | Commenting, providing elaborating information or otherwise talking in a way that builds or maintains a conversation | 11 (64.7) |
| Find and discuss points of commonality | Establishing and discussing points of commonality with one’s social partner | 11 (64.7) |
| Keep balance between listening and talking | Keeping an even balance between talking and listening | 9 (52.9) |
| Share factual information | Sharing factual information (unrelated to oneself) with others | 7 (41.2) |
| Risky social behaviours | ||
| Jokes and humorous anecdotes | Making jokes or sharing humorous anecdotes | 5 (29.4) |
| Disclose personal information | Disclosing information about ones’ education, employment, daily activities or relationships status | 4 (23.5) |
| Disclose weaknesses | Discussing one’s perceived weaknesses, vulnerabilities or feelings of inadequacy | 2 (11.8) |
| Comfortable and familiar social behaviours | ||
| Comfortable topics | Discussing topics of conversations that one is knowledgeable about or interested in, finds easy or is comfortable discussing or have been received well by others in the past | 12 (70.6) |
| Scripts | Use an established repertoire of phrases, comments, questions or anecdotes that are pre-planned or practiced, or have previously been well received by others | 9 (52.9) |