| Literature DB >> 34094992 |
Bridget Kiely1, Deirdre Connolly2, Barbara Clyne1, Fiona Boland3, Patrick O'Donnell4, Eamon O Shea5, Susan M Smith1.
Abstract
INTRODUCTION: Individuals with multimorbidity in deprived areas experience worse health outcomes and fragmented care. Research suggests that primary care-based link workers providing social prescribing have potential to improve health and well-being. This paper reports the results of a pilot study conducted in preparation for a randomised controlled trial (RCT) that aims to test the effectiveness of primary care-based link workers providing social prescribing in improving health outcomes for people with multimorbidity who attend general practices in deprived areas in Ireland.Entities:
Keywords: Link worker; complex intervention; general practice; multimorbidity; primary care; social deprivation; social prescribing
Year: 2021 PMID: 34094992 PMCID: PMC8142241 DOI: 10.1177/26335565211017781
Source DB: PubMed Journal: J Multimorb Comorb ISSN: 2633-5565
Public patient involvement reported according to GRIPP 2 short form.
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| The aim of the PPI was to provide the perspective of people living with multimorbidity on specific issues identified during the pilot study |
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| An advisory panel of 12 people living with multimorbidity was recruited via existing networks of students on a PhD programme in multimorbidity. The panel meets quarterly to provide input on issues brought to them by the PhD students. The members are voluntary but receive a voucher to acknowledge their time and associated costs attending. The panel had been meeting for a year prior to providing input on this study. The meeting at which this study was discussed took place at the Royal College of Surgeons in Ireland, lasted 2 hours in total including a break and was facilitated by BK and 2 other PhD students on the multimorbidity PhD programme. There was 1 hour to discuss issues with them and so their input was sought on three areas only outlined below. For this study BK asked the panel to read the patient information leaflet and comment on their understanding of the link worker intervention. They also provided feedback on the wording and layout of the patient information leaflet. The group tested a revised version of the community resources costs questionnaire by filling it in and feeding back suggestions to BK. They were asked how best to phrase the reason they had been invited by their GP to be part of the study. |
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| The PPI advisory group reviewed the patient information leaflet and made suggestions to improve it including reordering of sections to prioritise information about the intervention, adjusting language, and reducing repetition. They gave feedback on what they felt the essential information was and contributed to a brochure summarising this. They found the revised version of the patient costs section of the questionnaire straightforward to fill in. Their opinion was sought on informing patients why they had been chosen to take part in the research. They approved the wording in the leaflet informing people that they had been invited due to having two or more ongoing health conditions and that their GP felt they may benefit from meeting the link worker. |
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| The input of this group led to changes to recruitment materials which will hopefully lead to a better understanding of the intervention and enhance recruitment. Notably the PPI group felt the term ‘multimorbidity’ and ‘chronic condition’ were negative and recommended removing these from any literature. They also felt that the information leaflets were overly cautious and read more like the small print in an insurance policy rather than a research study. The group unprompted brought up changing the name. Ultimately, the researchers did not act on the groups suggestion to rename as the link worker concept was already familiar to many GPs and community resource providers. |
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| The PPI group gave useful feedback on the recruitment material, but it will not be possible to objectively test the impact this has on recruitment. The PPI group composition differed slightly from that of the target group for the intervention in that they came from all socioeconomic backgrounds. However, all members of the PPI group had experience of multimorbidity. The group have developed a relationship with the researcher over time and this allowed for a frank and productive conversation. Ultimately it would have been preferable to get the PPI group input prior to the pilot and again afterwards, but research team time constraints and capacity issues for the group, as they advise on 3 other projects, meant this was not possible. |
Patient characteristics at baseline.
| Characteristic | Value |
|---|---|
| Age γ (SD) | 63 (9.9) |
| Female % | 70 |
| Primary education only % | 45 |
| Employed % | 18 |
| Lives alone % | 36 |
| GMS Card 1 % | 64 |
| Number of self-reported health conditions γ (SD) | 2.6 (1.1) |
| EQ-5D-5L γ (SD) | 0.513 (0.21) |
| HADS A γ (SD) | 8.4 (4.6) |
| HADS D γ (SD) | 7.5 (5.1) |
| Multimorbidity Burden of Treatment: Medium or above % | 54 |
| Patient Activation Measure: Level 2 or below % | 54 |
| Activity Level: Inactive % | 9 |
1 The general medical service (GMS) card entitles holders to free primary care services and reduced medication fees. It is means tested and about 40% of the Irish population hold one. EQ-5D-5L = a standardised measure of self-reported health-related quality of life that assesses 5 dimensions at 5 levels of severity where 1 is the preferred state of health; HADS-A = Hospital Anxiety and Depression Scale, Anxiety, where a score above 8 indicates possible caseness; HADS-D = Hospital Anxiety and Depression Scale, Depression, where a score above 8 indicates possible caseness; Multimorbidity burden of treatment questionnaire categorises burden as none, low, medium or high; Patient Activation Measure categorises activation from level 1 to 4 with 1 being least activated; Frenchay activity index categorises people as inactive, moderately active or very active based on work, leisure and domestic activity.
Figure 1.Self-reported health conditions.
Demographics of interview participants.
| Interview participants characteristics | |
|---|---|
| Characteristic | Value |
| Age γ (SD) | 66.3 (8.82) |
| Female % | 66 |
| Primary education only % | 33 |
| Employed % | 18 |
| Lives alone % | 33 |
| GMS Card 1 % | 66 |
| Number of self reported health conditions γ (SD) | 2.8 (1.16) |
| EQ5D5L γ (SD) | 0.519 (0.21) |
| HADS A γ (SD) | 7.5 (3.01) |
| HADS D γ (SD) | 7.3 (4.81) |
| Multimorbidity Burden of Treatment: Medium or above % | 33 |
| Activity Level: Inactive % | 18 |
1 The general medical service (GMS) card entitles holders to free primary care services and reduced medication fees. It is means tested and about 40% of the Irish population hold one. EQ-5D-5L = a standardised measure of self-reported health-related quality of life that assesses 5 dimensions at 5 levels of severity where 1 is the preferred state of health; HADS-A = Hospital Anxiety and Depression Scale, Anxiety, where a score above 8 indicates possible caseness; HADS-D = Hospital Anxiety and Depression Scale, Depression, where a score above 8 indicates possible caseness; Multimorbidity burden of treatment questionnaire categorises burden as none, low, medium or high; Patient Activation Measure categorises activation from level 1 to 4 with 1 being least activated; Frenchay activity index categorises people as inactive, moderately active or very active based on work, leisure and domestic activity.