Literature DB >> 33936465

Title: The Children's Oncology Planning for Emergencies (COPE) Tool: Prototyping with Caregivers of Children with Cancer.

Emily L Mueller1,2, Anneli R Cochrane1,2, Courtney M Moore1, Andrew D Miller1, Sarah E Wiehe1,2.   

Abstract

As part of a larger project to co-design and create a mHealth tool to support caregivers of children with cancer, we performed a pilot, qualitative study. For this portion of the project, we engaged with caregivers of children with cancer to co-create and refine a low-fidelity prototype of the Children's Oncology Planning for Emergencies mHealth tool. Testing was accomplished through recorded semi-structured interviews with each caregiver as they interacted with a low-fidelity wireframe using Adobe Xd. Through the engagement of our key stakeholders, we were able to refine the COPE tool to provide the key elements they desired including pertinent patient medical information, checklist for planning when seeking urgent care, and coordination of care with the medical team and other caregivers. ©2020 AMIA - All rights reserved.

Entities:  

Year:  2021        PMID: 33936465      PMCID: PMC8075434     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  23 in total

1.  Which children with fever and neutropenia can be safely treated as outpatients?

Authors:  C A Mullen
Journal:  Br J Haematol       Date:  2001-03       Impact factor: 6.998

2.  Developing "Care Assistant": A smartphone application to support caregivers of children with acute lymphoblastic leukaemia.

Authors:  Jingting Wang; Nengliang Yao; Yuanyuan Wang; Fen Zhou; Yanyan Liu; Zhaohui Geng; Changrong Yuan
Journal:  J Telemed Telecare       Date:  2015-08-12       Impact factor: 6.184

3.  A user-centered model for designing consumer mobile health (mHealth) applications (apps).

Authors:  Rebecca Schnall; Marlene Rojas; Suzanne Bakken; William Brown; Alex Carballo-Dieguez; Monique Carry; Deborah Gelaude; Jocelyn Patterson Mosley; Jasmine Travers
Journal:  J Biomed Inform       Date:  2016-02-20       Impact factor: 6.317

4.  Characteristics of Children With Cancer Discharged or Admitted From the Emergency Department.

Authors:  Emily L Mueller; Matthew Hall; Samir S Shah; Keith J August; Mohamed A Radhi; Michelle L Macy
Journal:  Pediatr Blood Cancer       Date:  2015-12-29       Impact factor: 3.167

5.  Experience-based design: from redesigning the system around the patient to co-designing services with the patient.

Authors:  Paul Bate; Glenn Robert
Journal:  Qual Saf Health Care       Date:  2006-10

Review 6.  A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer.

Authors:  Penny E Bee; Pamela Barnes; Karen A Luker
Journal:  J Clin Nurs       Date:  2009-04-08       Impact factor: 3.036

7.  The Oncology Family App: Providing Information and Support for Families Caring for Their Child With Cancer.

Authors:  Penelope J Slater; Philippa E Fielden; Natalie K Bradford
Journal:  J Pediatr Oncol Nurs       Date:  2017-11-21       Impact factor: 1.636

8.  Acute stress in parents of children newly diagnosed with cancer.

Authors:  Anna Maria Patiño-Fernández; Ahna L H Pai; Melissa Alderfer; Wei-Ting Hwang; Anne Reilly; Anne E Kazak
Journal:  Pediatr Blood Cancer       Date:  2008-02       Impact factor: 3.167

Review 9.  Review of health information technology usability study methodologies.

Authors:  Po-Yin Yen; Suzanne Bakken
Journal:  J Am Med Inform Assoc       Date:  2011-08-09       Impact factor: 4.497

Review 10.  The effect of patient portals on quality outcomes and its implications to meaningful use: a systematic review.

Authors:  Clemens Scott Kruse; Katy Bolton; Greg Freriks
Journal:  J Med Internet Res       Date:  2015-02-10       Impact factor: 5.428

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  1 in total

1.  An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Co-design and User Testing Study.

Authors:  Emily L Mueller; Anneli R Cochrane; Madison E Campbell; Sarah Nikkhah; Andrew D Miller
Journal:  JMIR Cancer       Date:  2022-03-16
  1 in total

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