Ingrid Johansen Skogestad1,2, Marit Kirkevold3,4, Petra Larsson5,6, Christine Råheim Borge6,7, Bent Indredavik8,9, Caryl L Gay7,10, Anners Lerdal6,7. 1. Medical Department, Lovisenberg Diaconal Hospital, Oslo, Norway. ingridjohansen.skogestad@lds.no. 2. Department of Nursing Science, Faculty of Medicine, Institute of Health and Society, University of Oslo, Oslo, Norway. ingridjohansen.skogestad@lds.no. 3. Department of Nursing Science, Faculty of Medicine, Institute of Health and Society, University of Oslo, Oslo, Norway. 4. Department of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway. 5. Surgical Department, Lovisenberg Diaconal Hospital, Oslo, Norway. 6. Department for Interdisciplinary Health Sciences, Faculty of Medicine, Institute of Health and Society, University of Oslo, Oslo, Norway. 7. Department of Research and Development, Lovisenberg Diaconal Hospital, Oslo, Norway. 8. Department of Neuromedicine and Movement Science, NTNU, Trondheim, Norway. 9. Department of Stroke, St. Olavs Hospital, Trondheim, Norway. 10. Department of Family Health Care Nursing, University of California San Francisco, San Francisco, USA.
Abstract
BACKGROUND: Post-stroke fatigue (PSF) is commonly reported and described as disabling by patients recovering from stroke. However, a major challenge is how to accurately diagnose and assess PSF. Therefore, the aim of this study was to explore PSF as it is experienced by stroke survivors and described by health professionals to guide future development of a PSF-specific PROM. METHODS: Individual semi-structured interviews were conducted with stroke survivors experiencing PSF (n = 9) and three focus groups were conducted with health professionals (n = 16). Data were analyzed through inductive content analysis. RESULTS: The analysis revealed four themes illustrating the experience and descriptions of PSF: 1) PSF characteristics, 2) interfering and aggravating factors, 3) management, and 4) PSF awareness, which refers to stroke survivors first becoming aware of PSF after their initial hospital admission. CONCLUSION: This study highlights the complexity and multidimensionality of PSF. The results from this study will guide future development of a PSF-PROM and support its content validity.
BACKGROUND: Post-stroke fatigue (PSF) is commonly reported and described as disabling by patients recovering from stroke. However, a major challenge is how to accurately diagnose and assess PSF. Therefore, the aim of this study was to explore PSF as it is experienced by stroke survivors and described by health professionals to guide future development of a PSF-specific PROM. METHODS: Individual semi-structured interviews were conducted with stroke survivors experiencing PSF (n = 9) and three focus groups were conducted with health professionals (n = 16). Data were analyzed through inductive content analysis. RESULTS: The analysis revealed four themes illustrating the experience and descriptions of PSF: 1) PSF characteristics, 2) interfering and aggravating factors, 3) management, and 4) PSF awareness, which refers to stroke survivors first becoming aware of PSF after their initial hospital admission. CONCLUSION: This study highlights the complexity and multidimensionality of PSF. The results from this study will guide future development of a PSF-PROM and support its content validity.
Authors: Toby B Cumming; Ai Beng Yeo; Jodie Marquez; Leonid Churilov; Jean-Marie Annoni; Umaru Badaru; Nastaran Ghotbi; Joe Harbison; Gert Kwakkel; Anners Lerdal; Roger Mills; Halvor Naess; Harald Nyland; Arlene Schmid; Wai Kwong Tang; Benjamin Tseng; Ingrid van de Port; Gillian Mead; Coralie English Journal: J Psychosom Res Date: 2018-08-16 Impact factor: 3.006
Authors: Gabriele Kitzmüller; Margrete Mangset; Anne S Evju; Sanne Angel; Lena Aadal; Randi Martinsen; Berit A Bronken; Kari Kvigne; Line K Bragstad; Ellen G Hjelle; Unni Sveen; Marit Kirkevold Journal: Qual Health Res Date: 2019-03-12