Literature DB >> 33865169

Perceived protectiveness of research safeguards and influences on willingness to participate in research: A novel MTurk pilot study.

Jane Paik Kim1, Katie Ryan2, Tenzin Tsungmey2, Max Kasun2, Willa A Roberts3, Laura B Dunn3, Laura Weiss Roberts3.   

Abstract

Little is known about how individuals with mood disorders view the protectiveness of research safeguards, and whether their views affect their willingness to participate in psychiatric research. We conducted an online survey with 80 individuals (self-reported mood disorder [n = 25], self-reported good health [n = 55]) recruited via MTurk. We assessed respondents' perceptions of the protectiveness of five common research safeguards, as well as their willingness to participate in research that incorporates each safeguard. Perceived protectiveness was strongly related to willingness to participate in research for four of the safeguards. Our findings add to a limited literature on the motivations and perspectives of key stakeholders in psychiatric research.
Copyright © 2021 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Mood disorders; Perspectives; Research participation; Research safeguards; Willingness

Mesh:

Year:  2021        PMID: 33865169      PMCID: PMC8513533          DOI: 10.1016/j.jpsychires.2021.04.005

Source DB:  PubMed          Journal:  J Psychiatr Res        ISSN: 0022-3956            Impact factor:   5.250


  40 in total

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Review 4.  Global burden of disease attributable to mental and substance use disorders: findings from the Global Burden of Disease Study 2010.

Authors:  Harvey A Whiteford; Louisa Degenhardt; Jürgen Rehm; Amanda J Baxter; Alize J Ferrari; Holly E Erskine; Fiona J Charlson; Rosana E Norman; Abraham D Flaxman; Nicole Johns; Roy Burstein; Christopher J L Murray; Theo Vos
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5.  Empirically supported ethical research practice: the costs and benefits of research from the participants' view.

Authors:  E Newman; T Willard; R Sinclair; D Kaloupek
Journal:  Account Res       Date:  2001       Impact factor: 2.622

6.  Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.

Authors:  Katherine E McDonald; Nicole E Conroy; Carolyn I Kim; Emily J LoBraico; Ellis M Prather; Robert S Olick
Journal:  J Empir Res Hum Res Ethics       Date:  2016-07-31       Impact factor: 1.742

7.  Influence of ethical safeguards on research participation: comparison of perspectives of people with schizophrenia and psychiatrists.

Authors:  Laura W Roberts; Katherine A Green Hammond; Teddy D Warner; Rae Lewis
Journal:  Am J Psychiatry       Date:  2004-12       Impact factor: 18.112

8.  Reactions to research participation in vulnerable subgroups.

Authors:  Cathy Spatz Widom; Sally J Czaja
Journal:  Account Res       Date:  2005 Apr-Jun       Impact factor: 2.622

9.  Impact of gender on the decision to participate in a clinical trial: a cross-sectional study.

Authors:  Lucas Lobato; Jeffrey Michael Bethony; Fernanda Bicalho Pereira; Shannon Lee Grahek; David Diemert; Maria Flávia Gazzinelli
Journal:  BMC Public Health       Date:  2014-11-06       Impact factor: 3.295

10.  Factors influencing trust in doctors: a community segmentation strategy for quality improvement in healthcare.

Authors:  Vijayaprasad Gopichandran; Satish Kumar Chetlapalli
Journal:  BMJ Open       Date:  2013-12-02       Impact factor: 2.692

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