Literature DB >> 33845825

Hospice care providers experiences of grappling with medical assistance in dying in a hospice setting: a qualitative descriptive study.

Shannon Freeman1, Davina Banner2, Valerie Ward3.   

Abstract

BACKGROUND: Rapid implementation of Medical Assistance in Dying (MAiD) across care settings has challenged providers and organizations, including hospices, to develop and implement new modes of practice. The aim of this study was to examine the effects that legalization of MAiD has had on hospice care provider roles within the non-provider context.
METHODS: Eight in-depth semi-structured interviews were conducted and a qualitative descriptive approach used to examine hospice care providers experiences in a small western Canadian city. In the study context, patients who choose MAiD are cared for until immediately prior to the procedure when they are transferred off-site to undergo MAiD. Inductive and thematic analyses were undertaken.
RESULTS: Participants experienced practical, philosophical, and professional challenges. Despite the overwhelming desire to support patient autonomy and decision-making, some interpreted patient choice for MAiD as rejection of the natural death experience at the hospice. Patient choice for MAiD initiated a new and different pathway of end-of-life care. While participants felt uncertain how best to support patients undergoing MAiD, they shared mixed optimism on how their care provider roles were evolving as their level of experience broadened. While implementation of MAiD was rapid, the introduction of practical and professional supports has remained slow to materialize, leaving many providers to navigate their own personal and professional positions and practices.
CONCLUSION: Care providers require a multi-faceted range of clinical, legal, and logistical supports at the practice, organizational, and health system levels, to facilitate care delivery to those requesting and undergoing MAiD and to promote coordinated and holistic patient-centered care. The different pathway for those who chose MAiD may lead care providers to struggle with relational challenges and interpersonal unease. Further research may address how to support those undergoing MAiD within the hospice context.

Entities:  

Keywords:  Advocacy; Euthanasia; Medical assistance in dying; Palliative nursing; Physician assisted suicide; Qualitative; Terminal care

Year:  2021        PMID: 33845825     DOI: 10.1186/s12904-021-00740-3

Source DB:  PubMed          Journal:  BMC Palliat Care        ISSN: 1472-684X            Impact factor:   3.234


  11 in total

1.  What's in a name? Qualitative description revisited.

Authors:  Margarete Sandelowski
Journal:  Res Nurs Health       Date:  2010-02       Impact factor: 2.228

2.  Medical assistance in dying: A political issue for nurses and nursing in Canada.

Authors:  Davina Banner; Catharine J Schiller; Shannon Freeman
Journal:  Nurs Philos       Date:  2019-09-02       Impact factor: 1.279

3.  Moral distress among nursing and non-nursing students.

Authors:  Lillian M Range; Alicia L Rotherham
Journal:  Nurs Ethics       Date:  2010-03       Impact factor: 2.874

4.  Early experience with medical assistance in dying in Ontario, Canada: a cohort study.

Authors:  James Downar; Robert A Fowler; Roxanne Halko; Larkin Davenport Huyer; Andrea D Hill; Jennifer L Gibson
Journal:  CMAJ       Date:  2020-02-11       Impact factor: 8.262

5.  Physician-assisted death: A Canada-wide survey of ALS health care providers.

Authors:  Agessandro Abrahao; James Downar; Hanika Pinto; Nicolas Dupré; Aaron Izenberg; William Kingston; Lawrence Korngut; Colleen O'Connell; Nicolae Petrescu; Christen Shoesmith; Anu Tandon; Ana Beatriz Vargas-Santos; Lorne Zinman
Journal:  Neurology       Date:  2016-05-13       Impact factor: 9.910

6.  Nurses' moral experiences of assisted death: A meta-synthesis of qualitative research.

Authors:  James Elmore; David Kenneth Wright; Maude Paradis
Journal:  Nurs Ethics       Date:  2016-12-28       Impact factor: 2.874

Review 7.  Impact of Medical Assistance in Dying on palliative care: A qualitative study.

Authors:  Jean Jacob Mathews; David Hausner; Jonathan Avery; Breffni Hannon; Camilla Zimmermann; Ahmed Al-Awamer
Journal:  Palliat Med       Date:  2020-10-30       Impact factor: 4.762

8.  Responding to persistent requests for assistance in dying: a phenomenological inquiry.

Authors:  Judith K Schwarz
Journal:  Int J Palliat Nurs       Date:  2004-05

9.  Investigating palliative care nurse attitudes towards medical assistance in dying: An exploratory cross-sectional study.

Authors:  Laurie A Freeman; Kathryn A Pfaff; Lauren Kopchek; Jordyn Liebman
Journal:  J Adv Nurs       Date:  2019-10-24       Impact factor: 3.187

10.  International Association for Hospice and Palliative Care Position Statement: Euthanasia and Physician-Assisted Suicide.

Authors:  Liliana De Lima; Roger Woodruff; Katherine Pettus; Julia Downing; Rosa Buitrago; Esther Munyoro; Chitra Venkateswaran; Sushma Bhatnagar; Lukas Radbruch
Journal:  J Palliat Med       Date:  2016-11-29       Impact factor: 2.947

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  2 in total

1.  "Respecting our patients' choices": making the organizational decision to participate in voluntary assisted dying provision: findings from semi-structured interviews with a rural community hospice board of management.

Authors:  Kirsten Auret; Terri J Pikora; Kate Gersbach; Robert J Donovan
Journal:  BMC Palliat Care       Date:  2022-09-16       Impact factor: 3.113

Review 2.  Nurses' experiences of supporting patients requesting voluntary assisted dying: A qualitative meta-synthesis.

Authors:  Margaret Sandham; Melissa Carey; Emma Hedgecock; Rebecca Jarden
Journal:  J Adv Nurs       Date:  2022-06-24       Impact factor: 3.057

  2 in total

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