Literature DB >> 33825628

We Have "Gifted" Enough: Indigenous Genomic Data Sovereignty in Precision Medicine.

Krystal S Tsosie1,2, Joseph M Yracheta1,3, Jessica A Kolopenuk4, Janis Geary4,5.   

Abstract

Year:  2021        PMID： 33825628     DOI： 10.1080/15265161.2021.1891347

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  10 in total

Review 1.  Functional genomics data: privacy risk assessment and technological mitigation.

Authors:  Gamze Gürsoy; Tianxiao Li; Susanna Liu; Eric Ni; Charlotte M Brannon; Mark B Gerstein
Journal:  Nat Rev Genet       Date:  2021-11-10       Impact factor: 53.242

Review 2.  Ethical microbiome research with Indigenous communities.

Authors:  Shani Msafiri Mangola; Justin R Lund; Stephanie L Schnorr; Alyssa N Crittenden
Journal:  Nat Microbiol       Date:  2022-05-16       Impact factor: 30.964

3.  Exome/Genome-Wide Testing in Newborn Screening: A Proportionate Path Forward.

Authors:  Vasiliki Rahimzadeh; Jan M Friedman; Guido de Wert; Bartha M Knoppers
Journal:  Front Genet       Date:  2022-07-04       Impact factor: 4.772

4.  Response to Open Peer Commentaries: Distinguishing the "Gift" from "Donation" as a Path toward Reciprocity and Relational Ethics.

Authors:  Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2021-04       Impact factor: 11.229

Review 5.  Twenty Important Research Questions in Microbial Exposure and Social Equity.

Authors:  Jake M Robinson; Nicole Redvers; Araceli Camargo; Christina A Bosch; Martin F Breed; Lisa A Brenner; Megan A Carney; Ashvini Chauhan; Mauna Dasari; Leslie G Dietz; Michael Friedman; Laura Grieneisen; Andrew J Hoisington; Patrick F Horve; Ally Hunter; Sierra Jech; Anna Jorgensen; Christopher A Lowry; Ioana Man; Gwynne Mhuireach; Edauri Navarro-Pérez; Euan G Ritchie; Justin D Stewart; Harry Watkins; Philip Weinstein; Suzanne L Ishaq
Journal:  mSystems       Date:  2022-01-04       Impact factor: 6.496

Review 6.  Trust in Scholarly Communications and Infrastructure: Indigenous Data Sovereignty.

Authors:  Katharina Ruckstuhl
Journal:  Front Res Metr Anal       Date:  2022-01-12

Review 7.  Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics.

Authors:  Rodney C Haring; Jessica W Blanchard; Josephine D Korchmaros; Justin R Lund; Emily A Haozous; Josie Raphaelito; Maui Hudson; Krystal S Tsosie
Journal:  Front Public Health       Date:  2021-11-11

Review 8.  A framework for operationalising Aboriginal and Torres Strait Islander data sovereignty in Australia: Results of a systematic literature review of published studies.

Authors:  Skye Trudgett; Kalinda Griffiths; Sara Farnbach; Anthony Shakeshaft
Journal:  EClinicalMedicine       Date:  2022-02-17

9.  The Articulation of Genomics, Mestizaje, and Indigenous Identities in Chile: A Case Study of the Social Implications of Genomic Research in Light of Current Research Practices.

Authors:  Constanza P Silva; Constanza de la Fuente Castro; Tomás González Zarzar; Maanasa Raghavan; Ayelén Tonko-Huenucoy; Felipe I Martínez; Nicolás Montalva
Journal:  Front Genet       Date:  2022-03-03       Impact factor: 4.599

10.  Codesigning a community-based participatory research project to assess tribal perspectives on privacy and health data sharing: A report from the Strong Heart Study.

Authors:  Cynthia Triplett; Burgundy J Fletcher; Riley I Taitingfong; Ying Zhang; Tauqeer Ali; Lucila Ohno-Machado; Cinnamon S Bloss
Journal:  J Am Med Inform Assoc       Date:  2022-05-11       Impact factor: 7.942
  10 in total

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