| Literature DB >> 33804862 |
Marta Marsilio1, Floriana Fusco1, Eleonora Gheduzzi2, Chiara Guglielmetti1.
Abstract
Co-produced practices and publications in the healthcare sector are gaining momentum, since they can be a useful tool in addressing the sustainability and resilience challenges of health systems. However, the investigation of positive and, mainly, negative outcomes is still confused and fragmented, and above all, a comprehensive knowledge of the metrics used to assess these outcomes is lacking. To fill this gap, this study aims to systematically review the extant literature to map the methods, tools and metrics used to empirically evaluate co-production in health services. The search took place in six databases: Scopus, Web of Science, Psych INFO, PubMed, Cochrane and CINAHL. A total of 2311 articles were screened and 203 articles were included in the analysis, according to PRISMA guidelines. Findings show that outcomes are mainly investigated through qualitative methods and from the lay actor or provider perspective. Moreover, the detailed categorisation of the quantitative measures found offers a multidimensional performance measurement system and highlights the impact areas where research is needed to develop and test new measures. Findings should also promote improvements in empirical data collection on the multiple faceted co-produced activities and spur the consciousness of the adoption of sustainable co-productive initiatives.Entities:
Keywords: co-creation; co-production; evaluation; healthcare; measure; outcome; performance; performance evaluation system
Year: 2021 PMID: 33804862 PMCID: PMC8037812 DOI: 10.3390/ijerph18073336
Source DB: PubMed Journal: Int J Environ Res Public Health ISSN: 1660-4601 Impact factor: 3.390
Search query structure.
| Levels | Keywords_Health Dataset | Keywords_Public Dataset |
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| Co-product* OR Co-creat* OR Coprod* OR Cocreat* | Co-product* OR Co-creat* OR Coprod* OR Cocreat* |
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| Health* | “Public Servic*” OR “Public Sector*” |
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| Evaluat* OR Impact* OR Assess* OR Outcome* OR Indicator* OR Measur* | Evaluat* OR Impact* OR Assess* OR Outcome* OR Indicator* OR Measur* |
Figure 1PRISMA flowchart.
Figure 2Outcomes’ coding framework.
Figure 3Annual scientific production—health and public.
Studies’ contexts in the healthcare domain.
| Context | n. Papers | |
|---|---|---|
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| Mental health, Elder care, Cancer, Diabetes, Heart disease, Rare chronic disease | 100 |
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| Health prevention and promotion, Health inequalities (cancer screening, maternity, mental health, healthy lifestyle, palliative care) | 23 |
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| Osteoarthritis, Acute coronary syndrome, Self-harm | 6 |
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| Integrated care, Primary care, Secondary care, Homecare in rural areas, Multiple settings | 13 |
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| 19 | |
Research approach of reviewed articles.
| Research Approach | Total Dataset | Healthcare | Public | |||
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| n. | % | n. | % | n. | % | |
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| 96 | 47.3 | 72 | 44.7 | 24 | 57.1 |
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| 54 | 26.6 | 47 | 29.2 | 7 | 16.7 |
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| 53 | 26.1 | 42 | 26.1 | 11 | 26.2 |
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Mono-stakeholder/multi-stakeholder evaluation approach.
| Mono-Stakeholder | Multi-Stakeholder | |
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| 47.8% | 52.2% |
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| 42.9% | 57.1% |
Methods for stakeholder outcome evaluation.
| Methods of Data Analysis | Outcome for | Outcome for | Outcome for | Outcome for | ||||||||
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| 32 | 43 |
| 18 | 15 |
| 44 | 31 |
| 6 | 11 |
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H% refers to health publications only; P% refers to public publications only; T% refers to the overall publications. In bold, the total outcome per stakeholder.
Figure 4Analytical components framework.
Measures and metrics of outcomes for provider.
| Outcome | International Validated Scales | Other Tools | Indicators | Main | |
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| Cost—benefits analysis (cost-minimization analysis [ | Length of admission x average costs per night [ | [ | |
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| Reductions of: occupied bed days; hospital admission; days on a community treatment and community contacts [ | [ | |||
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| Ad hoc [ |
N. person using the service [ N. persons screened/target [ Offering a specific type of service or not [ Students’ examination results and game scores [ % of recycling on the total amount of waste achieved by each municipality [ Count variable calculating by summing the pro-environmental activities undertaken [ | [ | |
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| System usability scale (SUS) [ | Ad hoc [ | N. of user requests for service support [ | [ | |
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Social Support Programme Acceptability Rating Scale [ Patient Education Materials Assessment Tool (PEMAT) [ Training Acceptability Rating Scale (TARS) [ | Ad hoc [ | N. or % of patients declining (or accepting) the intervention [ | [ | |
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| Ad hoc [ | [ | |||
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| Ad hoc [ | [ | |||
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Construct of Dagger et al. (2007) [ Construct of Zeithaml et al. 1996 [ Ad hoc [ | [ | |||
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| Ad hoc [ | [ | |||
| CSHCN | Adaptation from Voorberg et al. 2015 [ | [ | |||
The asterisk * indicates publications in the public domain.
Measures and metrics of outcomes for professionals.
| Outcome | International Validated Scales | Other Tools | Main References | |
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| Measurement of Job Satisfaction (MJS) [ | Ad hoc [ | [ | |
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Social production function scale (SPF-IL) [ Maslach Burnout Inventory [ | [ | ||
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| Utrecht Work Engagement | Co-productive-taxpayer-as-supervisor (CTS) construct [ | [ | |
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| Staff Positive Contributions Questionnaire (short version) [ | [ | ||
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| Adapted from Schneider et al. 2005 [ | [ | |
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Personality disorder-knowledge, Attitudes and Skills Questionnaire [ Similarities and empowerment attitude sub-scales from the Community Living Attitudes Scale [ Staff Empathy for people with Challenging Behaviour Questionnaire (SECBQ) [ The borderline personality disorder-cognitive/emotional attitudes inventory (BPD-CAI/FAI) [ | Attitude towards self-harm in CYP of Crawford et al. (2003) [ | [ | |
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Personality Disorder-Knowledge, Attitudes and Skills Questionnaire [ Borderline personality disorder- cognitive/emotional attitudes inventory (BPD-CAI/FAI) [ | Adapted from Crawford et al. (2003) [ | [ | |
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Challenging Behaviour Self-Efficacy Scale (CBSE) [ Adapted version of the Self-efficacy Towards Helping Scale [ | [ | ||
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| Continuing Professional Development Reaction Questionnaire [ | [ | ||
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| Ad hoc [ | [ | ||
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Adapted from Hall et al., 2001 [ Adapted from Rajah et al. (2008) [ | [ | ||
The asterisk * indicates publications in public domain.
Measures and metrics of outcomes for lay actors.
| Outcome | International Validated Scales | Other Tools | Indicators | Main | |
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General Health Questionnaire-12 [ Health of the Nation Outcome Scales HoNOS [ Generalized Anxiety Disorder Questionnaire (GAD-7) [ Patient Health Questionnaire (PHQ-9) [ Hospital Anxiety and Depression Scale (HADS) [ EORTC QLQ-C30 [ Functional Assessment of Chronic Illness Therapy—Fatigue FACIT-F [ Insomnia Severity Index (ISI) [ Saltin Grimby Physical Activity Level Scale (SGPALS) [ Strengths and Difficulties Questionnaire [ Post-Traumatic Stress Disorder (PCL-C); [ Mood andFeelings Questionnaire (MFQ) [ Revised Child Anxiety and Depression Scale (RCADS) [ Western Ontario and McMaster University Osteoarthritis Index (WOMAC) [ | Ad hoc [ |
Improved/deteriorated or unchanged clinical indicators (e.g., waist-to-height ratio; carotid artery reactivity (CAR); blood biochemical parameters; death) [ Re-admission/re-hospitalization for unscheduled reasons; occurrence of an adverse outcome [ | [ |
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Quality Quality-Adjusted Life-Years (QALYs) using HAE-BOIS-Europe survey [ EuroQol index (EQ 5D index) and the EuroQol Visual Analogue Scale (EQ VAS) [ Quality of Life Questionnaire for family (QLQ-F) and treatment group (QLQ-G) [ | Fox Simple Quality-of-Life Scale [ | |||
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15-item version ofthe Social Production Function Instrument for the Level of Well-being (SPF-ILs) (both patients and carers); [ Warwick-Edinburgh Mental Well-being Scale (WEMWBS); [ McGill Quality of Life Questionnaire (MQOL index) [ McGill quality of life questionnaire (MQOL index)-revised [ | Perceived well-being construct of Sweeney et al. (2015) [ | |||
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Social Support Programme Acceptability Rating Scale [ Patient Assessment of Chronic Illness Care Short version (PACIC-S) [ Psychological Needs Satisfaction in Exercise Scale [ Family Experiences with Coordination of Care (FECC) Measure Set [ Diabetes Management and Evaluation Tool (DMET) [ | Perceived service quality and satisfaction construct of Dagger et al., 2007 [ Perceived quality of service questionnaires of Veltro et al. (2007) [ Service satisfaction scale of Oliver 2010 [ Outcome value scale of Hau and Thuy, 2012 [ Adjusted version of the caregivers’ satisfaction with inpatient stroke care (C-SASC) 11-item scale [ Adjusted version of the Satisfaction with Stroke Care questionnaire (SASC) [ Rajah et al., 2008 [ Aiken and Patrician (2000) [ Yu and Dean (2001) [ Wang et al. (2004) and Sweeney and (2001) [ Sweeney and Soutar (2001) and Mathwick et al. (2001) [ Sweeney and Soutar (2001) [ Suarez-Alvarez et al. (2020) [ Ad Hoc [ | [ | |
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| - Process value of Hau and Thuy, 2012 [ Wang et al. (2004) and Sweeney and Soutar (2001) [ Nelson and Byus (2002) [ Ad hoc [ | [ | |||
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| Patient Activation Measure [ | Ad hoc [ | [ | ||
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Family Empowerment Scale [ Patient Activation Measure (PAM) [ SIS Communication/Behavior Skills Questionnaire [ Diabetes Empowerment Scale Short Form (DES-SF) [ |
Adaptation from spidergram tool of Draper et al. (2010) [ Ad hoc [ | [ | ||
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Health Education Impact Questionnaire (heiQ) [ Summary of Diabetes Self-Care Activities (DSCA) [ | [ | |||
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| General Self-Efficacy Scale (GSE scale) [ | Ad hoc [ | [ | ||
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| Rosenberg Self-Esteem Scale [ | [ | |||
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| Ad hoc [ | [ | |||
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| Adaptation from: | [ | |||
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| Burden Assessment Scale (BAS) [ | Family worry of Center for Medical Home Improvement [ | [ | ||
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Newest Vital Sign UK (NVS-UK) [ Diabetes Knowledge Test (DKT) [ | Ad hoc [ | Score of learning test [ | [ |
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Adaptation from Hausman 2004 [ Ad hoc [ | Tracking completion of indicated quarterly follow-up screens [ | [ | ||
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Decisional Conflict Scale (dcs) [ SURE (Sure of myself, Understand information, Risk–benefit ratio, Encouragement) [ Self-Determination Theory (SDT) scales [ | Adaptation from: Behavioural Regulation in Exercise Questionnaire [ Patient Self-Advocacy Scale [ | [ | ||
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Recovery Attitudes Questionnaire7 (RAQ-7) [ ATT-19 [ Physical Activity Questionnaire for adolescent [ |
Unhealthy eating adapted from Stansfeld et al., 2003 [ Ad hoc [ |
N. of consultations offered and attended were measured by exercise referral practitioners [ Job opportunities after or during recovery [ | [ | |
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| Adaptation from Rajah et al., 2008 [ | [ | |||
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| Ad hoc [ | [ | |||
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| Cost minimization analysis [ | [ | |||
The asterisk * indicates publications in public domain.
Measures and metrics of outcomes for community.
| Outcome | International Validated Scales | Other Tools | Indicators | Main | |
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| Arizona Social Support Interview Schedule (ASSIS) [ | Adapted Social Capital Questionnaire [ | [ | |
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| National Survey of Children with Special Health Care Needs [ | Ad hoc [ |
% Increase in participation in the screening program with vulnerable population [ Increase access to health or public services [ Count variable calculating by summing the pro-environmental activities undertaken [ | [ |
The asterisk * indicates publications in public domain.