Melissa Day 1 , Kemberlee Bonnet 2 , David G Schlundt 2 , Michael DeBaun 1 , Deva Sharma 1 Show Affiliations »
Abstract
Background: Acute vaso-occlusive pain, herein referred to as acute sickle cell disease (SCD) pain, associated with menstruation has received little attention. Key unanswered questions include how women differentiate acute SCD pain and menstrual cramps, and how both types of pain impact quality of life. Methods: Using inductive/deductive qualitative research methods, three focus groups were conducted to understand the patient experience of acute SCD pain associated with menstruation. Results: Fourteen women with SCD participated in our focus groups. Major themes were identified: (1) clinical sequelae of SCD surrounding menstruation, (2) coping with psychosocial challenges, (3) interpersonal difficulties and support systems, (4) impacts on quality of life, (5) impacts on emotional well-being, and (6) proposed solutions for health care systems. Conclusions: Women with SCD can distinguish acute SCD pain from menstrual cramps. Health care providers should become more familiar with acute SCD pain associated with menstruation and encourage a patient-centered dialogue to determine appropriate courses of action. © Melissa Day et al. 2020; Published by Mary Ann Liebert, Inc.
Background: Acute vaso-occlusive pain , herein referred to as acute sickle cell disease (SCD) pain , associated with men struation has received little attention. Key unanswered questions include how women differentiate acute SCD pain and men strual cramps, and how both types of pain impact quality of life. Methods: Using inductive/deductive qualitative research methods, three focus groups were conducted to understand the patient experience of acute SCD pain associated with men struation. Results: Fourteen women with SCD participated in our focus groups. Major themes were identified: (1) clinical sequelae of SCD surrounding men struation, (2) coping with psychosocial challenges, (3) interpersonal difficulties and support systems, (4) impacts on quality of life, (5) impacts on emotional well-being, and (6) proposed solutions for health care systems. Conclusions: Women with SCD can distinguish acute SCD pain from men strual cramps. Health care providers should become more familiar with acute SCD pain associated with men struation and encourage a patient -centered dialogue to determine appropriate courses of action. © Melissa Day et al. 2020; Published by Mary Ann Liebert, Inc.
Entities: Chemical
Disease
Gene
Species
Keywords:
menstruation; sickle cell disease; vaso-occlusive pain
Year: 2020
PMID： 33786471 PMCID： PMC7784793 DOI： 10.1089/whr.2019.0008
Source DB: PubMed Journal: Womens Health Rep (New Rochelle) ISSN： 2688-4844