BACKGROUND: There is a growing interest in engaging patients in research priorities and project design. This study compared topics patients and surgeons would like to address in upper extremity musculoskeletal research. METHODS: We invited patients on social media-based support groups for specific musculoskeletal illnesses and members of the Science Of Variation Group to indicate the three most important research topics by disease. We also measured agreement that patients should participate in research on a five-point Likert scale. We categorized research priorities into the following categories: treatment, cause and natural history, recovery, diagnostic process, and economic impact. Bivariate analysis was used to detect differences between surgeons and patient responses. Multivariable regression models sought factors associated with agreement whether patients should participate in research. Sixty-two surgeons and 350 patients completed the survey, who had one of the following musculoskeletal illnesses: Dupuytren contracture, adhesive capsulitis, Kienböck disease, complex regional pain syndrome, rotator cuff tendinopathy, carpal- or cubital tunnel syndrome, and rheumatoid arthritis. RESULTS: Both patients and surgeons were most interested in research into treatment options. There were few differences in the number of responses per category between surgeons and patients. Patients and surgeons with fewer years of practice agree most with involving patients in research. CONCLUSION: Patients and surgeons prioritize research about treatment. Surgeons were more interested in natural history of disease and surgical techniques, while patients were more interested in alleviation of pain.
BACKGROUND: There is a growing interest in engaging patients in research priorities and project design. This study compared topics patients and surgeons would like to address in upper extremity musculoskeletal research. METHODS: We invited patients on social media-based support groups for specific musculoskeletal illnesses and members of the Science Of Variation Group to indicate the three most important research topics by disease. We also measured agreement that patients should participate in research on a five-point Likert scale. We categorized research priorities into the following categories: treatment, cause and natural history, recovery, diagnostic process, and economic impact. Bivariate analysis was used to detect differences between surgeons and patient responses. Multivariable regression models sought factors associated with agreement whether patients should participate in research. Sixty-two surgeons and 350 patients completed the survey, who had one of the following musculoskeletal illnesses: Dupuytren contracture, adhesive capsulitis, Kienböck disease, complex regional pain syndrome, rotator cuff tendinopathy, carpal- or cubital tunnel syndrome, and rheumatoid arthritis. RESULTS: Both patients and surgeons were most interested in research into treatment options. There were few differences in the number of responses per category between surgeons and patients. Patients and surgeons with fewer years of practice agree most with involving patients in research. CONCLUSION: Patients and surgeons prioritize research about treatment. Surgeons were more interested in natural history of disease and surgical techniques, while patients were more interested in alleviation of pain.
Entities:
Keywords:
Patient interests; Research topics; Science of variation group; Social media; Surgeon interests
Authors: Rachael Gooberman-Hill; Amanda Burston; Emma Clark; Emma Johnson; Sharon Nolan; Victoria Wells; Lizzy Betts Journal: Musculoskeletal Care Date: 2013-12
Authors: Rachael Gooberman-Hill; Clare Jinks; Sofia Barbosa Bouças; Kelly Hislop; Krysia S Dziedzic; Carol Rhodes; Amanda Burston; Jo Adams Journal: Health Expect Date: 2013-01-14 Impact factor: 3.377