Literature DB >> 18816323

Citizens' juries in planning research priorities: process, engagement and outcome.

Rachael Gooberman-Hill1, Jeremy Horwood, Michael Calnan.   

Abstract

BACKGROUND: Involving members of the public in setting priorities for health research in becoming increasingly common practice. One method used in public involvement exercises is the citizens' jury.
OBJECTIVE: This article examines some challenges and benefits of citizens' juries, including issues relating to process, public engagement and outcome.
DESIGN: In Bristol, UK, a citizens' jury was held with the aim of identifying local priorities for research into health and social care. This jury is used as an example through which key issues in public involvement and jury processes are explored. SETTING AND PARTICIPANTS: The Bristol Citizens' Jury comprised 20 members of the public ('jurors'), an oversight panel and a steering group. The jurors met at 11 consecutive sessions during 2006 over a period of 16 weeks, which culminated in a written report. All the sessions were audio-recorded, five sessions were observed and video-recorded, and 16 jurors completed written feedback forms at the end of the jury process. FINDINGS AND
CONCLUSION: In this article we discuss degree and timing of public involvement in the process of health research; the role of context; representation of communities; processes of deliberation and knowledge production; and how constraints of time and cost may affect public involvement. It was clear that jurors who took part in the Bristol Citizens' Jury were engaged and committed. This engagement may be related to jurors' belief in their ability to shape future research alongside concern about the relevance of the issues under discussion. Opposing emotions of tension and harmony are a crucial part of the deliberation process.

Entities:  

Mesh:

Year:  2008        PMID: 18816323      PMCID: PMC5060449          DOI: 10.1111/j.1369-7625.2008.00502.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  12 in total

1.  'The public is too subjective': public involvement at different levels of health-care decision making.

Authors:  Andrea Litva; Joanna Coast; Jenny Donovan; John Eyles; Michael Shepherd; Jo Tacchi; Julia Abelson; Kieran Morgan
Journal:  Soc Sci Med       Date:  2002-06       Impact factor: 4.634

Review 2.  Deliberations about deliberative methods: issues in the design and evaluation of public participation processes.

Authors:  Julia Abelson; Pierre-Gerlier Forest; John Eyles; Patricia Smith; Elisabeth Martin; Francois-Pierre Gauvin
Journal:  Soc Sci Med       Date:  2003-07       Impact factor: 4.634

3.  Commentary: the people know best.

Authors:  Michael Calnan
Journal:  Int J Epidemiol       Date:  2004-05-20       Impact factor: 7.196

Review 4.  Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach.

Authors:  S Oliver; L Clarke-Jones; R Rees; R Milne; P Buchanan; J Gabbay; G Gyte; A Oakley; K Stein
Journal:  Health Technol Assess       Date:  2004-04       Impact factor: 4.014

5.  Grounded citizens' juries: a tool for health activism?

Authors:  Elham Kashefi; Maggie Mort
Journal:  Health Expect       Date:  2004-12       Impact factor: 3.377

6.  Public assessment of priorities for research: a citizens' jury.

Authors:  Michael Calnan; Helen Masey; Jeremy Horwood
Journal:  Lancet       Date:  2007-01-06       Impact factor: 79.321

7.  User involvement in the development of a research bid: barriers, enablers and impacts.

Authors:  Sophie Staniszewska; Nicola Jones; Mary Newburn; Shanit Marshall
Journal:  Health Expect       Date:  2007-06       Impact factor: 3.377

8.  Informed consent in a changing environment.

Authors:  Mary Boulton; Michael Parker
Journal:  Soc Sci Med       Date:  2007-09-25       Impact factor: 4.634

Review 9.  Lay perspectives: advantages for health research.

Authors:  V A Entwistle; M J Renfrew; S Yearley; J Forrester; T Lamont
Journal:  BMJ       Date:  1998-02-07

10.  Explorations in consultation of the public and health professionals on priority setting in an inner London health district.

Authors:  A Bowling; B Jacobson; L Southgate
Journal:  Soc Sci Med       Date:  1993-10       Impact factor: 4.634

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  34 in total

1.  Patient participation as dialogue: setting research agendas.

Authors:  Tineke A Abma; Jacqueline E W Broerse
Journal:  Health Expect       Date:  2010-06       Impact factor: 3.377

Review 2.  Consumer participation and organizational development in health care: a systematic review.

Authors:  Clemens B Tempfer; Peter Nowak
Journal:  Wien Klin Wochenschr       Date:  2011-07-07       Impact factor: 1.704

Review 3.  Community participation for rural health: a review of challenges.

Authors:  Amanda Kenny; Jane Farmer; Virginia Dickson-Swift; Nerida Hyett
Journal:  Health Expect       Date:  2014-12-03       Impact factor: 3.377

Review 4.  Mapping the impact of patient and public involvement on health and social care research: a systematic review.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Health Expect       Date:  2012-07-19       Impact factor: 3.377

5.  A CTSA agenda to advance methods for comparative effectiveness research.

Authors:  Mark Helfand; Sean Tunis; Evelyn P Whitlock; Stephen G Pauker; Anirban Basu; Jon Chilingerian; Frank E Harrell; David O Meltzer; Victor M Montori; Donald S Shepard; David M Kent
Journal:  Clin Transl Sci       Date:  2011-06       Impact factor: 4.689

Review 6.  Communicating the benefits and harms of cancer screening.

Authors:  Lindsay J L Forbes; Amanda J Ramirez
Journal:  Curr Oncol Rep       Date:  2014-05       Impact factor: 5.075

7.  Addressing Health Disparities Through Deliberative Methods: Citizens' Panels for Health Equity.

Authors:  Andrew M Subica; Brandon J Brown
Journal:  Am J Public Health       Date:  2019-12-19       Impact factor: 9.308

Review 8.  A systematic review of the impact of patient and public involvement on service users, researchers and communities.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Patient       Date:  2014       Impact factor: 3.883

9.  Exploring public perspectives on e-health: findings from two citizen juries.

Authors:  Gerry King; David J Heaney; David Boddy; Catherine A O'Donnell; Julia S Clark; Frances S Mair
Journal:  Health Expect       Date:  2010-10-28       Impact factor: 3.377

Review 10.  Patient and service user engagement in research: a systematic review and synthesized framework.

Authors:  Nathan D Shippee; Juan Pablo Domecq Garces; Gabriela J Prutsky Lopez; Zhen Wang; Tarig A Elraiyah; Mohammed Nabhan; Juan P Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia J Erwin; Victor M Montori; M Hassan Murad
Journal:  Health Expect       Date:  2013-06-03       Impact factor: 3.377

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