Lisa Beatty1, Bogda Koczwara2,3, Phyllis Butow4, Jane Turner5, Afaf Girgis6, Penelope Schofield7, Nicholas J Hulbert-Williams8, Billingsley Kaambwa2, Emma Kemp2. 1. Flinders University, Adelaide, South Australia, Australia. lisa.beatty@flinders.edu.au. 2. Flinders University, Adelaide, South Australia, Australia. 3. Medical Oncology, Flinders Medical Centre, Adelaide, SA, Australia. 4. Sydney University, Sydney, Australia. 5. University of Queensland, Brisbane, Australia. 6. University of New South Wales & Ingham Institute for Applied Medical Research, Sydney, Australia. 7. Swinburne University of Technology, Melbourne, Australia. 8. University of Chester, Chester, UK.
Abstract
PURPOSE: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. METHODS: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians, and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. RESULTS: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), and with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the program, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets, and layout. Participants noted that having/making time for the intervention would be important to program engagement. CONCLUSIONS: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. IMPLICATIONS FOR CANCER SURVIVORS: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
PURPOSE:Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. METHODS: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians, and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. RESULTS:Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), and with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the program, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets, and layout. Participants noted that having/making time for the intervention would be important to program engagement. CONCLUSIONS: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. IMPLICATIONS FOR CANCER SURVIVORS: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
Entities:
Keywords:
Digital health; Metastatic breast cancer; Psychosocial intervention
Authors: Lisa Beatty; Emma Kemp; Joseph R Coll; Jane Turner; Phyllis Butow; Donna Milne; Patsy Yates; Sylvie Lambert; Addie Wootten; Desmond Yip; Bogda Koczwara Journal: Support Care Cancer Date: 2018-11-09 Impact factor: 3.603