Lesli E Skolarus1, Devin L Brown2, Casey L Corches2, Evan Reynolds3, Sarah Bailey4, Maria Mansour2, Maria Cielito Robles2, Tia Rice2, Mellanie V Springer5, James F Burke6, Rebecca L Sudore7. 1. Stroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan. Electronic address: lerusche@umich.edu. 2. Stroke Program, University of Michigan Medical School, Ann Arbor, Michigan. 3. Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan. 4. Bridges into the Future, Flint Michigan. 5. Stroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan. 6. Stroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan; Ann Arbor Veterans Affairs Health Care System, Ann Arbor, Michigan. 7. Division of Geriatrics, Department of Medicine, University of California, San Francisco, California; San Francisco Veterans Affairs Health Care System, San Francisco, California.
Abstract
CONTEXT: Advance care planning (ACP) is underutilized, especially among Black Americans. Yet, no ACP interventions have been tested at the community level. OBJECTIVES: Within an established academic and community partnership, we sought to determine whether ACP is a community-identified need and if so, to conduct a pilot study of an evidence-based ACP program, PREPARE (PrepareForYourCare.org). METHODS: We conducted open discussions and in-depth interviews to determine the relevance of ACP to the community. We then conducted a pre- to 3-week postpilot study of a virtual peer facilitated brief session to introduce ACP and encourage participants to engage with PREPARE. We conducted thematic content analysis for qualitative data and used paired t-tests to assess within-participant changes in the validated ACP Engagement Survey measured on a 1-5 scale (5 = greatest engagement). RESULT: We conducted two discussion groups with community leaders (n = 12) and key informant interviews (n = 6), including leaders in aging, public health, health care and faith. We concluded that ACP is a community priority. In the pilot study, we enrolled 13 Black Americans; 85% were women and the mean age was 59.7 years (SD 15.1). There was a trend toward increased ACP engagement after the peer facilitated PREPARE (mean 3.2 (SD 0.6) pre vs. 3.5 (SD 0.6) post, paired t-test P = 0.06). All participants found the intervention to be acceptable and were satisfied with it. CONCLUSION: Community members identified ACP as important for their community. Peer facilitated PREPARE program is a promising community-based strategy to increase engagement in ACP and may promote health equity.
CONTEXT: Advance care planning (ACP) is underutilized, especially among Black Americans. Yet, no ACP interventions have been tested at the community level. OBJECTIVES: Within an established academic and community partnership, we sought to determine whether ACP is a community-identified need and if so, to conduct a pilot study of an evidence-based ACP program, PREPARE (PrepareForYourCare.org). METHODS: We conducted open discussions and in-depth interviews to determine the relevance of ACP to the community. We then conducted a pre- to 3-week postpilot study of a virtual peer facilitated brief session to introduce ACP and encourage participants to engage with PREPARE. We conducted thematic content analysis for qualitative data and used paired t-tests to assess within-participant changes in the validated ACP Engagement Survey measured on a 1-5 scale (5 = greatest engagement). RESULT: We conducted two discussion groups with community leaders (n = 12) and key informant interviews (n = 6), including leaders in aging, public health, health care and faith. We concluded that ACP is a community priority. In the pilot study, we enrolled 13 Black Americans; 85% were women and the mean age was 59.7 years (SD 15.1). There was a trend toward increased ACP engagement after the peer facilitated PREPARE (mean 3.2 (SD 0.6) pre vs. 3.5 (SD 0.6) post, paired t-test P = 0.06). All participants found the intervention to be acceptable and were satisfied with it. CONCLUSION: Community members identified ACP as important for their community. Peer facilitated PREPARE program is a promising community-based strategy to increase engagement in ACP and may promote health equity.
Authors: Lauren J Van Scoy; Michael J Green; Jean M Reading; Allison M Scott; Cynthia H Chuang; Benjamin H Levi Journal: Am J Hosp Palliat Care Date: 2016-07-12 Impact factor: 2.500
Authors: Jerry Johnson; Tara Hayden; Lynne Allen Taylor; Arthur Gilbert; Cedric Hughes Jones; Marshall Paul Hughes Mitchell; Brenda Curtis Journal: J Palliat Care Date: 2018-12-12 Impact factor: 2.250
Authors: Lauren Jodi Van Scoy; Benjamin H Levi; Pamela Witt; Cindy Bramble; Christopher Richardson; Irene Putzig; A Rose Levi; Emily Wasserman; Vernon Chinchilli; Amy Tucci; Michael J Green Journal: JAMA Netw Open Date: 2020-05-01