Literature DB >> 33616460

Avoiding "toxic knowledge": the importance of framing personalized risk information in clinical decision-making.

Kristin M Kostick1, J S Blumenthal-Barby1.   

Abstract

Entities:  

Keywords:  Precision Medicine Initiative; clinical decision-making; decision aids; decision support; personalized risk; precision medicine; preparedness planning; quality decision-making; risk communication; uncertain significance

Mesh：

Year:  2021        PMID： 33616460      PMCID： PMC8153713          DOI： 10.2217/pme-2020-0174

Source DB:  PubMed          Journal:  Per Med        ISSN： 1741-0541            Impact factor:   2.512


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  20 in total

1.  Impacts of variants of uncertain significance on parental perceptions of children after prenatal chromosome microarray testing.

Authors:  Preeya Desai; Hannah Haber; Jessica Bulafka; Amita Russell; Rebecca Clifton; Julia Zachary; Seonjoo Lee; Tianshu Feng; Ronald Wapner; Catherine Monk; Wendy K Chung
Journal:  Prenat Diagn       Date:  2018-07-24       Impact factor: 3.050

2.  Being Precise About Precision Medicine: What Should Value Frameworks Incorporate to Address Precision Medicine? A Report of the Personalized Precision Medicine Special Interest Group.

Authors:  Eric Faulkner; Anke-Peggy Holtorf; Surrey Walton; Christine Y Liu; Hwee Lin; Eman Biltaj; Diana Brixner; Charles Barr; Jennifer Oberg; Gurmit Shandhu; Uwe Siebert; Susan R Snyder; Simran Tiwana; John Watkins; Maarten J IJzerman; Katherine Payne
Journal:  Value Health       Date:  2020-04-01       Impact factor: 5.725

3.  Palliative medicine consultation for preparedness planning in patients receiving left ventricular assist devices as destination therapy.

Authors:  Keith M Swetz; Monica R Freeman; Omar F AbouEzzeddine; Kari A Carter; Barry A Boilson; Abigale L Ottenberg; Soon J Park; Paul S Mueller
Journal:  Mayo Clin Proc       Date:  2011-06       Impact factor: 7.616

4.  Older people's understanding of cumulative risks when provided with annual stroke risk information.

Authors:  R Fuller; N Dudley; J Blacktop
Journal:  Postgrad Med J       Date:  2004-11       Impact factor: 2.401

5.  Assessment of patients' and caregivers' informational and decisional needs for left ventricular assist device placement: Implications for informed consent and shared decision-making.

Authors:  Jennifer S Blumenthal-Barby; Kristin M Kostick; Estevan D Delgado; Robert J Volk; Holland M Kaplan; L A Wilhelms; Sheryl A McCurdy; Jerry D Estep; Matthias Loebe; Courtenay R Bruce
Journal:  J Heart Lung Transplant       Date:  2015-03-31       Impact factor: 10.247

6.  Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.

Authors:  Anna Middleton; Katherine I Morley; Eugene Bragin; Helen V Firth; Matthew E Hurles; Caroline F Wright; Michael Parker
Journal:  Eur J Hum Genet       Date:  2015-04-29       Impact factor: 4.246

7.  Utility and First Clinical Application of Screening Embryos for Polygenic Disease Risk Reduction.

Authors:  Nathan R Treff; Jennifer Eccles; Lou Lello; Elan Bechor; Jeffrey Hsu; Kathryn Plunkett; Raymond Zimmerman; Bhavini Rana; Artem Samoilenko; Steven Hsu; Laurent C A M Tellier
Journal:  Front Endocrinol (Lausanne)       Date:  2019-12-04       Impact factor: 5.555

Review 8.  Establishing the effectiveness of patient decision aids: key constructs and measurement instruments.

Authors:  Karen R Sepucha; Cornelia M Borkhoff; Joanne Lally; Carrie A Levin; Daniel D Matlock; Chirk Jenn Ng; Mary E Ropka; Dawn Stacey; Natalie Joseph-Williams; Celia E Wills; Richard Thomson
Journal:  BMC Med Inform Decis Mak       Date:  2013-11-29       Impact factor: 2.796

9.  The known unknown: the challenges of genetic variants of uncertain significance in clinical practice.

Authors:  Lily Hoffman-Andrews
Journal:  J Law Biosci       Date:  2018-01-22

10.  Women's experiences receiving abnormal prenatal chromosomal microarray testing results.

Authors:  Barbara A Bernhardt; Danielle Soucier; Karen Hanson; Melissa S Savage; Laird Jackson; Ronald J Wapner
Journal:  Genet Med       Date:  2012-09-06       Impact factor: 8.822
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