Literature DB >> 33588579

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals.

Charli Babb1, Janina Brede2, Catherine R G Jones1, Mair Elliott, Cathy Zanker, Kate Tchanturia3, Lucy Serpell2,4, Will Mandy2, John R E Fox1.   

Abstract

LAY ABSTRACT: This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals.

Entities:  

Keywords:  anorexia nervosa; autism; co-occurrence; eating disorder services; females; qualitative research

Year:  2021        PMID: 33588579     DOI: 10.1177/1362361321991257

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  5 in total

Review 1.  Cognitive Behavioral and Cognitive Remediation Strategies for Managing Co-Occurring Anorexia Nervosa and Elevated Autism Spectrum Traits.

Authors:  Emma Saure; Monica Ålgars; Marja Laasonen; Anu Raevuori
Journal:  Psychol Res Behav Manag       Date:  2022-04-20

2.  A comparison of the eating disorder service experiences of autistic and non-autistic women in the UK.

Authors:  Charli Babb; Janina Brede; Catherine R G Jones; Lucy Serpell; William Mandy; John Fox
Journal:  Eur Eat Disord Rev       Date:  2022-07-01

Review 3.  Investigating service users' perspectives of eating disorder services: A meta-synthesis.

Authors:  Charli Babb; Catherine R G Jones; John R E Fox
Journal:  Clin Psychol Psychother       Date:  2022-02-25

4.  Towards identifying a method of screening for autism amongst women with restrictive eating disorders.

Authors:  James Adamson; Janina Brede; Charli Babb; Lucy Serpell; Catherine R G Jones; John Fox; Will Mandy
Journal:  Eur Eat Disord Rev       Date:  2022-07-05

5.  The associations between autistic traits and disordered eating/drive for muscularity are independent of anxiety and depression in females but not males.

Authors:  John Galvin; Elizabeth H Evans; Catherine V Talbot; Claire Wilson; Gareth Richards
Journal:  PLoS One       Date:  2022-10-17       Impact factor: 3.752

  5 in total

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