Literature DB >> 33574660

Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists.

Kirsty Sprange1, Jules Beresford-Dent2, Gail Mountain2, Ben Thomas3, Jessica Wright3, Clare Mason2, Cindy L Cooper3.   

Abstract

OBJECTIVE: To identify the barriers and facilitators to the implementation of a complex psychosocial intervention though a study exploring the experiences of participants, carers and interventionists during a trial.
METHODS: Individual semi-structured interviews were conducted with participants, their carers, and interventionists from a sample of recruiting sites that took part in the Journeying through Dementia randomized controlled trial (RCT). Interview data were transcribed and analysed using framework analysis. Co-researcher data analysis workshops were also conducted to explore researcher interpretations of the data through the lens of those with lived experience of dementia. Triangulation enabled comparison of findings from the interviews with findings from the co-researcher workshops.
RESULTS: Three main themes emerged from the interview data: being prepared; intervention engagement; and participation and outcomes from engagement. From these themes, a number of factors that can moderate delivery and receipt of the intervention as intended were identified. These were context and environment; readiness, training, skills and competencies of the workforce; identifying meaningful participation and relationships.
CONCLUSION: This study highlighted that the observed benefit of the intervention was nuanced for each individual. Mechanisms of change were influenced by a range of individual, social and contextual factors. Future research should therefore consider how best to identify and measure the multifaceted interplay of mechanisms of change in complex interventions. TRIAL REGISTRATION: ISRCTN17993825.
© 2021 Sprange et al.

Entities:  

Keywords:  dementia; occupational therapy; psychosocial; qualitative; self-management; wellbeing

Mesh:

Year:  2021        PMID: 33574660      PMCID: PMC7872215          DOI: 10.2147/CIA.S293921

Source DB:  PubMed          Journal:  Clin Interv Aging        ISSN: 1176-9092            Impact factor:   4.458


  19 in total

1.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Authors:  Allison Tong; Peter Sainsbury; Jonathan Craig
Journal:  Int J Qual Health Care       Date:  2007-09-14       Impact factor: 2.038

2.  Involving individuals with dementia as co-researchers in analysis of findings from a qualitative study.

Authors:  Mabel Stevenson; Brian J Taylor
Journal:  Dementia (London)       Date:  2017-01-29

3.  Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research.

Authors:  C Pope; N Mays
Journal:  BMJ       Date:  1995-07-01

Review 4.  Psychosocial Interventions for Community-Dwelling People Following Diagnosis of Mild to Moderate Dementia: Findings of a Systematic Scoping Review.

Authors:  Fiona Keogh; Gail Mountain; Philip Joddrell; Kathryn Lord
Journal:  Am J Geriatr Psychiatry       Date:  2018-12-24       Impact factor: 4.105

5.  Living with uncertainty: Mapping the transition from pre-diagnosis to a diagnosis of dementia.

Authors:  Sarah Campbell; Jill Manthorpe; Kritika Samsi; Clare Abley; Louise Robinson; Sue Watts; John Bond; John Keady
Journal:  J Aging Stud       Date:  2016-03-19

6.  A Seat Around the Table: Participatory Data Analysis With People Living With Dementia.

Authors:  Charlotte L Clarke; Heather Wilkinson; Julie Watson; Jane Wilcockson; Lindsay Kinnaird; Toby Williamson
Journal:  Qual Health Res       Date:  2018-05-16

7.  Process evaluation of complex interventions: Medical Research Council guidance.

Authors:  Graham F Moore; Suzanne Audrey; Mary Barker; Lyndal Bond; Chris Bonell; Wendy Hardeman; Laurence Moore; Alicia O'Cathain; Tannaze Tinati; Daniel Wight; Janis Baird
Journal:  BMJ       Date:  2015-03-19

8.  Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over: a feasibility study to inform a future trial.

Authors:  Kirsty Sprange; Gail A Mountain; Katy Shortland; Claire Craig; Daniel Blackburn; Peter Bowie; Kirsty Harkness; Maggie Spencer
Journal:  Pilot Feasibility Stud       Date:  2015-11-30

9.  Lifestyle Matters Randomized Controlled Trial of a Preventive Health Intervention for Older People: Qualitative Sub Study with Participants and Intervention Facilitators.

Authors:  Gail Mountain; Kirsty Sprange; Robin Chatters
Journal:  Clin Interv Aging       Date:  2020-02-20       Impact factor: 4.458

Review 10.  Dementia prevention, intervention, and care: 2020 report of the Lancet Commission.

Authors:  Gill Livingston; Jonathan Huntley; Andrew Sommerlad; David Ames; Clive Ballard; Sube Banerjee; Carol Brayne; Alistair Burns; Jiska Cohen-Mansfield; Claudia Cooper; Sergi G Costafreda; Amit Dias; Nick Fox; Laura N Gitlin; Robert Howard; Helen C Kales; Mika Kivimäki; Eric B Larson; Adesola Ogunniyi; Vasiliki Orgeta; Karen Ritchie; Kenneth Rockwood; Elizabeth L Sampson; Quincy Samus; Lon S Schneider; Geir Selbæk; Linda Teri; Naaheed Mukadam
Journal:  Lancet       Date:  2020-07-30       Impact factor: 79.321

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  1 in total

1.  The implementation of Journeying through Dementia: Strategies to run a successful pragmatic multicenter trial of a complex intervention.

Authors:  Katherine Berry; Jessica Wright; Kirsty Sprange; Cindy Cooper; Rebecca Courtney-Walker; Gail Mountain
Journal:  Brain Behav       Date:  2021-11-13       Impact factor: 2.708

  1 in total

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