Literature DB >> 29766747

A Seat Around the Table: Participatory Data Analysis With People Living With Dementia.

Charlotte L Clarke1, Heather Wilkinson1, Julie Watson1, Jane Wilcockson1, Lindsay Kinnaird2, Toby Williamson3.   

Abstract

The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory of risk and Tronto's Ethic of Care, and (b) analyzed data in workshops with people living with dementia. The design involved cycles of presenting, interpreting, representing and reinterpreting the data, and findings between multiple stakeholders. We explore ways of involving people with experience as co-analysts and explore the role of reflexivity, multiple voicing, literary styling, and performance in participatory data analysis.

Entities:  

Keywords:  United Kingdom; co-analysis; dementia; ethic of care; participatory research; qualitative; risk theory; secondary data analysis

Mesh:

Year:  2018        PMID: 29766747     DOI: 10.1177/1049732318774768

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  6 in total

1.  Community-Engaged Bidirectional Crisis and Emergency Risk Communication With Immigrant and Refugee Populations During the COVID-19 Pandemic.

Authors:  Mark L Wieland; Gladys B Asiedu; Jane W Njeru; Jennifer A Weis; Kiley Lantz; Adeline Abbenyi; Luz Molina; Yahye Ahmed; Ahmed Osman; Miriam Goodson; Gloria Torres-Herbeck; Omar Nur; Graciela Porraz Capetillo; Ahmed A Mohamed; Irene G Sia
Journal:  Public Health Rep       Date:  2022-01-13       Impact factor: 2.792

2.  Ground-Truthing the Experiences of Homeless Older Adults' Recent Stays with Family and Friends: A Case Study of Participatory Data Analysis.

Authors:  Margaret A Handley; Margot Kushel; John Weeks; Pamela Olsen; Janny Castillo; Kelly R Knight
Journal:  J Health Care Poor Underserved       Date:  2022

Review 3.  Partnering with frail or seriously ill patients in research: a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Wendy Gifford; Josee Lavoie; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2020-09-11

4.  Embedding patient and public involvement: Managing tacit and explicit expectations.

Authors:  Fiona Poland; Georgina Charlesworth; Phuong Leung; Linda Birt
Journal:  Health Expect       Date:  2019-09-20       Impact factor: 3.377

5.  Journeying through Dementia Randomised Controlled Trial of a Psychosocial Intervention for People Living with Early Dementia: Embedded Qualitative Study with Participants, Carers and Interventionists.

Authors:  Kirsty Sprange; Jules Beresford-Dent; Gail Mountain; Ben Thomas; Jessica Wright; Clare Mason; Cindy L Cooper
Journal:  Clin Interv Aging       Date:  2021-02-04       Impact factor: 4.458

6.  Stroke survivors partner in research: a case example of collaborative processes.

Authors:  Alyson Kwok; Deacon Cheung; Maysyn Gordon; Evan Mudryk; Patricia J Manns
Journal:  Res Involv Engagem       Date:  2022-09-10
  6 in total

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