Aliki Christou1, Ashraful Alam2, Sayed Murtaza Sadat Hofiani3, Adela Mubasher4, Mohammad Hafiz Rasooly3, Mohammad Khakerah Rashidi5, Camille Raynes-Greenow2. 1. Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia. aliki.christou@sydney.edu.au. 2. Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia. 3. Afghanistan National Public Health Institute, Ministry of Public Health, Kabul, Afghanistan. 4. World Health Organisation, Kabul, Afghanistan. 5. Ministry of Public Health, Kabul, Afghanistan.
Abstract
OBJECTIVE: This study aimed to explore bereaved parents' and healthcare providers experiences of care after stillbirth. STUDY DESIGN: Qualitative in-depth interviews with 55 women, men, female elders, healthcare providers and key informants in Kabul province, Afghanistan between October and November 2017. RESULTS: Inadequate and insensitive communication and practices by healthcare providers, including avoiding or delaying disclosing the stillbirth were recurring concerns. There was a disconnect between parents' desires and healthcare provider's perceptions. The absence of shared decision-making on seeing and holding the baby and memory-making, manifested as profound regret. Health providers' reported hospitals were not equipped to separate women who had a stillbirth and acknowledged that psychological support would be beneficial. However, the absence of trained personnel and resource constraints prevented provision of such support. CONCLUSION: Findings can inform future provision of perinatal bereavement care. Given resource constraints, communication training can be considered with longer term goals to develop context-appropriate bereavement care guidelines.
OBJECTIVE: This study aimed to explore bereaved parents' and healthcare providers experiences of care after stillbirth. STUDY DESIGN: Qualitative in-depth interviews with 55 women, men, female elders, healthcare providers and key informants in Kabul province, Afghanistan between October and November 2017. RESULTS: Inadequate and insensitive communication and practices by healthcare providers, including avoiding or delaying disclosing the stillbirth were recurring concerns. There was a disconnect between parents' desires and healthcare provider's perceptions. The absence of shared decision-making on seeing and holding the baby and memory-making, manifested as profound regret. Health providers' reported hospitals were not equipped to separate women who had a stillbirth and acknowledged that psychological support would be beneficial. However, the absence of trained personnel and resource constraints prevented provision of such support. CONCLUSION: Findings can inform future provision of perinatal bereavement care. Given resource constraints, communication training can be considered with longer term goals to develop context-appropriate bereavement care guidelines.
Authors: Carol J R Hogue; Corette B Parker; Marian Willinger; Jeff R Temple; Carla M Bann; Robert M Silver; Donald J Dudley; Janet L Moore; Donald R Coustan; Barbara J Stoll; Uma M Reddy; Michael W Varner; George R Saade; Deborah Conway; Robert L Goldenberg Journal: Paediatr Perinat Epidemiol Date: 2015-02-14 Impact factor: 3.980
Authors: Kaniz Gausia; Allisyn C Moran; Mohammed Ali; David Ryder; Colleen Fisher; Marge Koblinsky Journal: BMC Public Health Date: 2011-06-09 Impact factor: 3.295
Authors: Alexander E P Heazell; Dimitrios Siassakos; Hannah Blencowe; Christy Burden; Zulfiqar A Bhutta; Joanne Cacciatore; Nghia Dang; Jai Das; Vicki Flenady; Katherine J Gold; Olivia K Mensah; Joseph Millum; Daniel Nuzum; Keelin O'Donoghue; Maggie Redshaw; Arjumand Rizvi; Tracy Roberts; H E Toyin Saraki; Claire Storey; Aleena M Wojcieszek; Soo Downe Journal: Lancet Date: 2016-01-19 Impact factor: 79.321