Literature DB >> 33407521

Developing and validating measures of self-reported everyday and healthcare discrimination for Aboriginal and Torres Strait Islander adults.

Katherine A Thurber1, Jennie Walker2, Philip J Batterham3, Gilbert C Gee4, Jan Chapman2, Naomi Priest5,6, Rubijayne Cohen2, Roxanne Jones2, Alice Richardson2, Alison L Calear3, David R Williams7, Raymond Lovett2,8.   

Abstract

BACKGROUND: It is well established that racism is a fundamental contributor to poor health and inequities. There is consistent evidence of high exposure to discrimination among Aboriginal and Torres Strait Islander (Indigenous Australian) peoples, but impacts have not been fully quantified, in part due to limited measurement tools. We aim to validate instruments developed to measure interpersonal discrimination.
METHODS: Instruments were discussed at five focus groups and with experts, and field tested in developing Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing. Data from 7501 baseline survey participants were analysed. Acceptability was assessed according to extent of missingness, construct validity using exploratory and confirmatory factor analysis, and reliability using Cronbach's alpha. Associations between each instrument and outcomes conceptually understood to be closely (community-level racism) or less closely (family wellbeing) related were quantified to test convergent and discriminant validity.
RESULTS: An 8-item instrument captures experiences of discrimination in everyday life and a 4-item instrument experiences in healthcare, each followed by a global attribution item. Item missingness was 2.2-3.7%. Half (55.4%) of participants reported experiencing any everyday discrimination, with 65.7% attributing the discrimination to Indigeneity; healthcare discrimination figures were 34.1% and 51.1%. Items were consistent with two distinct instruments, differentiating respondents with varying experiences of discrimination. Scales demonstrated very good reliability and convergent and divergent validity.
CONCLUSION: These brief instruments demonstrate face validity and robust psychometric properties in measuring Aboriginal and Torres Strait Islander adults' experiences of interpersonal discrimination in everyday life and in healthcare. They can be used to quantify population-level experiences of discrimination, and associated wellbeing consequences, and monitor change.

Entities:  

Keywords:  Health inequalities; Measurement; Measurement tool development; Psychometrics; Social Epidemitology

Mesh:

Year:  2021        PMID: 33407521      PMCID: PMC7788827          DOI: 10.1186/s12939-020-01351-9

Source DB:  PubMed          Journal:  Int J Equity Health        ISSN: 1475-9276


  26 in total

1.  Item response theory and health outcomes measurement in the 21st century.

Authors:  R D Hays; L S Morales; S P Reise
Journal:  Med Care       Date:  2000-09       Impact factor: 2.983

2.  Starting at the beginning: an introduction to coefficient alpha and internal consistency.

Authors:  David L Streiner
Journal:  J Pers Assess       Date:  2003-02

3.  Racial/ethnic differences in responses to the everyday discrimination scale: a differential item functioning analysis.

Authors:  Tené T Lewis; Frances M Yang; Elizabeth A Jacobs; George Fitchett
Journal:  Am J Epidemiol       Date:  2012-02-03       Impact factor: 4.897

Review 4.  A systematic review of empirical research on self-reported racism and health.

Authors:  Yin Paradies
Journal:  Int J Epidemiol       Date:  2006-04-03       Impact factor: 7.196

5.  Racism, social resources and mental health for Aboriginal people living in Adelaide.

Authors:  Anna Ziersch; Gilbert Gallaher; Fran Baum; Michael Bentley
Journal:  Aust N Z J Public Health       Date:  2011-03-07       Impact factor: 2.939

6.  Comparative fit indexes in structural models.

Authors:  P M Bentler
Journal:  Psychol Bull       Date:  1990-03       Impact factor: 17.737

7.  Assessing the Everyday Discrimination Scale among American Indians and Alaska Natives.

Authors:  Kelly L Gonzales; Carolyn Noonan; R Turner Goins; William G Henderson; Janette Beals; Spero M Manson; Kelly J Acton; Yvette Roubideaux
Journal:  Psychol Assess       Date:  2015-07-06

8.  Racism and health among urban Aboriginal young people.

Authors:  Naomi Priest; Yin Paradies; Paul Stewart; Joanne Luke
Journal:  BMC Public Health       Date:  2011-07-15       Impact factor: 3.295

Review 9.  Racism as a Determinant of Health: A Systematic Review and Meta-Analysis.

Authors:  Yin Paradies; Jehonathan Ben; Nida Denson; Amanuel Elias; Naomi Priest; Alex Pieterse; Arpana Gupta; Margaret Kelaher; Gilbert Gee
Journal:  PLoS One       Date:  2015-09-23       Impact factor: 3.240

10.  Study protocol: Our Cultures Count, the Mayi Kuwayu Study, a national longitudinal study of Aboriginal and Torres Strait Islander wellbeing.

Authors:  Roxanne Jones; Katherine A Thurber; Jan Chapman; Catherine D'Este; Terry Dunbar; Mark Wenitong; Sandra J Eades; Lisa Strelein; Maureen Davey; Wei Du; Anna Olsen; Janet K Smylie; Emily Banks; Raymond Lovett
Journal:  BMJ Open       Date:  2018-06-27       Impact factor: 2.692

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  4 in total

1.  Racism in Australia: a protocol for a systematic review and meta-analysis.

Authors:  Jehonathan Ben; Amanuel Elias; Ayuba Issaka; Mandy Truong; Kevin Dunn; Rachel Sharples; Craig McGarty; Jessica Walton; Fethi Mansouri; Nida Denson; Yin Paradies
Journal:  Syst Rev       Date:  2022-03-17

2.  Implementing Optimal Care Pathways for Aboriginal and Torres Strait Islander People With Cancer: A Survey of Rural Health Professionals' Self-Rated Learning Needs.

Authors:  Eli Ristevski; Teralynn Ludwick; Michael Leach; Sharyn Thompson; Mahesh Iddawela; Michelle Pryce; Elaine Wood; Kerry Davidson; Joanne Gell
Journal:  Int J Integr Care       Date:  2022-03-30       Impact factor: 5.120

Review 3.  Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys-A Scoping Review and Critical Analysis.

Authors:  Courtney Ryder; Jacqueline H Stephens; Shahid Ullah; Julieann Coombes; Nayia Cominos; Patrick Sharpe; Shane D'Angelo; Darryl Cameron; Colleen Hayes; Keziah Bennett-Brook; Tamara Mackean
Journal:  Int J Environ Res Public Health       Date:  2022-08-19       Impact factor: 4.614

4.  Prevalence of Everyday Discrimination and Relation with Wellbeing among Aboriginal and Torres Strait Islander Adults in Australia.

Authors:  Katherine A Thurber; Emily Colonna; Roxanne Jones; Gilbert C Gee; Naomi Priest; Rubijayne Cohen; David R Williams; Joanne Thandrayen; Tom Calma; Raymond Lovett
Journal:  Int J Environ Res Public Health       Date:  2021-06-18       Impact factor: 3.390

  4 in total

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