K Mayoral1,2,3, O Garin4,5,6, M A Caballero-Rabasco2,7, M Praena-Crespo8,9, A Bercedo9,10, G Hernandez9,11, J Castillo9,12, C Lizano Barrantes1,13,14, Y Pardo1,3,15, M Ferrer16,17,18. 1. Health Services Research Group, IMIM-Hospital del Mar Medical Research Institute, Barcelona, Spain. 2. Department of Paediatrics, Obstetrics and Gynaecology and Preventive Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain. 3. Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública CIBERESP, Madrid, Spain. 4. Health Services Research Group, IMIM-Hospital del Mar Medical Research Institute, Barcelona, Spain. ogarin@imim.es. 5. Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública CIBERESP, Madrid, Spain. ogarin@imim.es. 6. Pompeu Fabra University UPF, Barcelona, Spain. ogarin@imim.es. 7. Pediatric Allergy and Pulmonology Unit, Pediatric Service, Hospital del Mar, Barcelona, Spain. 8. Centro de Salud la Candelaria, Servicio Andaluz de Salud, Seville, Spain. 9. Grupo de Vías Respiratorias de la Asociación Española de Pediatras de Atención Primaria (AEPAP), Madrid, Spain. 10. Centro de Salud Dobra, Servicio Cántabro de Salud, Cantabria, Spain. 11. CAP Vila Olimpica, Parc Sanitari Pere Virgili, Barcelona, Spain. 12. Pediatric Pneumology Unit, Pediatric Service, Hospital Infantil Universitario Miguel Servet, Zaragoza, Spain. 13. Pompeu Fabra University UPF, Barcelona, Spain. 14. University of Costa Rica, San José, Costa Rica. 15. Department of Psychiatry and Legal Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain. 16. Health Services Research Group, IMIM-Hospital del Mar Medical Research Institute, Barcelona, Spain. mferrer@imim.es. 17. Department of Paediatrics, Obstetrics and Gynaecology and Preventive Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain. mferrer@imim.es. 18. Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública CIBERESP, Madrid, Spain. mferrer@imim.es.
Abstract
PURPOSE: The asthma stepwise treatment approach recommended is based on monitoring patients' symptoms. The Asthma Research in Children and Adolescents (ARCA) cohort was created to provide evidence about the evolution of persistent asthma. This manuscript describes the development of an electronic health tool, comprising a mobile health application for patients with asthma and its associated online platform for pediatricians to monitor them. METHODS: The development process followed 7 phases: the first 5 (Conceptualization, Preparation, Assessment scheduling, Image and user interface, and Technical development) defined and designed the tool, followed by a testing phase (functionality assessment and pilot test with ARCA patients), and a last phase which evaluated usability. Since the target population was aged 6-16 years, three versions were designed within the same smartphone application: parents/proxy, children, and adolescents. The online platform for pediatricians provides real-time information from the application: patients' responses over time with color-coded charts (red/amber/green, as in traffic lights). RESULTS: The pilot test through semi-structured phone interviews of the first 50 participants included in the ARCA study (n = 53) detected their misunderstandings. Pediatricians were trained to emphasize that the application is free of charge and requires monthly answers. Median of the System Usability Scale scores (n = 85), ranging 0 (negative)-100 (positive), was > 93 in the three age versions of the application. CONCLUSIONS: Technology has the capability of transforming the use of patient-reported outcomes. Describing all the development phases of a mobile health application for monitoring children and adolescents with asthma may increase the knowledge on how to design applications for young patients.
PURPOSE: The asthma stepwise treatment approach recommended is based on monitoring patients' symptoms. The Asthma Research in Children and Adolescents (ARCA) cohort was created to provide evidence about the evolution of persistent asthma. This manuscript describes the development of an electronic health tool, comprising a mobile health application for patients with asthma and its associated online platform for pediatricians to monitor them. METHODS: The development process followed 7 phases: the first 5 (Conceptualization, Preparation, Assessment scheduling, Image and user interface, and Technical development) defined and designed the tool, followed by a testing phase (functionality assessment and pilot test with ARCA patients), and a last phase which evaluated usability. Since the target population was aged 6-16 years, three versions were designed within the same smartphone application: parents/proxy, children, and adolescents. The online platform for pediatricians provides real-time information from the application: patients' responses over time with color-coded charts (red/amber/green, as in traffic lights). RESULTS: The pilot test through semi-structured phone interviews of the first 50 participants included in the ARCA study (n = 53) detected their misunderstandings. Pediatricians were trained to emphasize that the application is free of charge and requires monthly answers. Median of the System Usability Scale scores (n = 85), ranging 0 (negative)-100 (positive), was > 93 in the three age versions of the application. CONCLUSIONS: Technology has the capability of transforming the use of patient-reported outcomes. Describing all the development phases of a mobile health application for monitoring children and adolescents with asthma may increase the knowledge on how to design applications for young patients.
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Authors: Karina Mayoral; Olatz Garin; Catalina Lizano-Barrantes; Angels Pont; Araceli M Caballero-Rabasco; Manuel Praena-Crespo; Laura Valdesoiro-Navarrete; María Teresa Guerra; José Antonio Castillo; Inés de Mir; Eva Tato; Jordi Alonso; Vicky Serra-Sutton; Yolanda Pardo; Montse Ferrer Journal: Health Qual Life Outcomes Date: 2022-03-28 Impact factor: 3.186