Literature DB >> 33387233

Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort.

L Casey White1, J Kiely Law2, Amy M Daniels1, Jaimie Toroney2, Brianna Vernoia1, Sabrina Xiao1, Pamela Feliciano1, Wendy K Chung3,4.   

Abstract

The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.
© 2021. The Author(s).

Entities:  

Keywords:  Autism spectrum disorder; COVID-19; Services; Stress; Telehealth

Mesh：

Year:  2021        PMID： 33387233      PMCID： PMC7775834          DOI： 10.1007/s10803-020-04816-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  18 in total

1.  Coping and care-related stress in parents of a child with autism spectrum disorder.

Authors:  Daniel Shepherd; Jason Landon; Steve Taylor; Sonja Goedeke
Journal:  Anxiety Stress Coping       Date:  2018-02-20

2.  Parental Stress in Families of Children With Autism and Other Developmental Disabilities.

Authors:  Maria Valicenti-McDermott; Katharine Lawson; Kathryn Hottinger; Rosa Seijo; Merryl Schechtman; Lisa Shulman; Shlomo Shinnar
Journal:  J Child Neurol       Date:  2015-04-10       Impact factor: 1.987

3.  Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry.

Authors:  Amy M Daniels; Rebecca E Rosenberg; Connie Anderson; J Kiely Law; Alison R Marvin; Paul A Law
Journal:  J Autism Dev Disord       Date:  2012-02

4.  Accuracy of phenotyping of autistic children based on Internet implemented parent report.

Authors:  Hane Lee; Alison R Marvin; Tamara Watson; Judith Piggot; J Kiely Law; Paul A Law; John N Constantino; Stanley F Nelson
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2010-09       Impact factor: 3.568

5.  The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder.

Authors:  Stephanie A Hayes; Shelley L Watson
Journal:  J Autism Dev Disord       Date:  2013-03

6.  Brief Report: Impact of Challenging Behavior on Parenting Stress in Mothers and Fathers of Children with Autism Spectrum Disorders.

Authors:  Malena Argumedes; Marc J Lanovaz; Serge Larivée
Journal:  J Autism Dev Disord       Date:  2018-07

Review 7.  Parent-Mediated Intervention Training Delivered Remotely for Children With Autism Spectrum Disorder Living Outside of Urban Areas: Systematic Review.

Authors:  Dave Parsons; Reinie Cordier; Sharmila Vaz; Hoe C Lee
Journal:  J Med Internet Res       Date:  2017-08-14       Impact factor: 5.428

8.  Parent Perspectives of an Occupational Therapy Telehealth Intervention.

Authors:  Anna Wallisch; Lauren Little; Ellen Pope; Winnie Dunn
Journal:  Int J Telerehabil       Date:  2019-06-12

9.  Treatment patterns in children with autism in the United States.

Authors:  Brigitta U Monz; Richard Houghton; Kiely Law; Georg Loss
Journal:  Autism Res       Date:  2019-01-10       Impact factor: 5.216

10.  Geographic Differences in COVID-19 Cases, Deaths, and Incidence - United States, February 12-April 7, 2020.

Authors: 
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2020-04-17       Impact factor: 17.586
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  25 in total

1.  The impact of COVID-19 on stress, anxiety, and coping in youth with and without autism and their parents.

Authors:  Blythe A Corbett; Rachael A Muscatello; Mark E Klemencic; Jessica M Schwartzman
Journal:  Autism Res       Date:  2021-04-29       Impact factor: 4.633

2.  Quality of Life Changes during the COVID-19 Pandemic for Caregivers of Children with ADHD and/or ASD.

Authors:  Keith W Pecor; Georgia Barbyannis; Max Yang; Jacklyn Johnson; Sarah Materasso; Mauricio Borda; Disleidy Garcia; Varsha Garla; Xue Ming
Journal:  Int J Environ Res Public Health       Date:  2021-04-01       Impact factor: 3.390

3.  The psychological impact of the COVID-19 pandemic on adults with autism: a survey study across three countries.

Authors:  Danna Oomen; Annabel D Nijhof; Jan R Wiersema
Journal:  Mol Autism       Date:  2021-03-03       Impact factor: 7.509

4.  Impact of the COVID-19 pandemic on children and adolescents with autism spectrum disorder and their families: a mixed-methods study protocol.

Authors:  Linda Dekker; Linde Hooijman; Anneke Louwerse; Kirsten Visser; Dennis Bastiaansen; Leontine Ten Hoopen; Pieter De Nijs; Gwen Dieleman; Wietske Ester; Susan Van Rijen; Femke Truijens; Ruth Van der Hallen
Journal:  BMJ Open       Date:  2022-01-25       Impact factor: 2.692

5.  The (a)typical burden of COVID-19 pandemic scenario in Autism Spectrum Disorder.

Authors:  Lucia Fumagalli; Monica Nicoli; Laura Villa; Valentina Riva; Michele Vicovaro; Luca Casartelli
Journal:  Sci Rep       Date:  2021-11-22       Impact factor: 4.379

6.  Brief Report: Impact of COVID-19 in Individuals with Autism Spectrum Disorders: Analysis of a National Private Claims Insurance Database.

Authors:  Arun Karpur; Vijay Vasudevan; Andy Shih; Thomas Frazier
Journal:  J Autism Dev Disord       Date:  2021-05-26

7.  Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study.

Authors:  Kelsey A Friesen; Jonathan A Weiss; Stephanie J Howe; Connor M Kerns; Carly A McMorris
Journal:  J Autism Dev Disord       Date:  2021-07-08

8.  Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD.

Authors:  Julie Lounds Taylor; Florencia Pezzimenti; Meghan M Burke; Leann Smith DaWalt; Chung Eun Lee; Carol Rabideau
Journal:  J Autism Dev Disord       Date:  2021-07-07

9.  Important Considerations for COVID-19 Vaccination of Children With Developmental Disabilities.

Authors:  Sarah C Tinker; Mary E Cogswell; Georgina Peacock; A Blythe Ryerson
Journal:  Pediatrics       Date:  2021-07-16       Impact factor: 9.703

10.  Mental health of parents of children with autism spectrum disorder during COVID-19 pandemic: A systematic review.

Authors:  Büşra Yılmaz; Merve Azak; Nevin Şahin
Journal:  World J Psychiatry       Date:  2021-07-19
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