Melissa Young1,2, Megan Voll3, Robert B Noll3, Diane L Fairclough4, Cate Flanagan-Priore5. 1. Department of Psychology, The Hospital for Sick Children, Toronto, Ontario, Canada. 2. Department of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital, Cincinnati, Ohio. 3. Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania. 4. Department of Biostatistics and Informatics, Colorado School of Public Health, Aurora, Colorado. 5. Joint Division of Hematology/Oncology, Oishei Children`s Hospital and Roswell Park Comprehensive Cancer Center, Buffalo, New York.
Abstract
BACKGROUND: Bright IDEAS problem-solving skills training (BI) is an evidence-based behavioral intervention that has been utilized extensively with caregivers of children recently diagnosed with cancer. Considerable evidence has shown that BI is acceptable to caregivers of children recently diagnosed with cancer, and improvements in problem-solving skills mediate reduced symptoms of distress. PROCEDURES: A slightly modified version of BI was offered to caregivers of children with sickle cell disease (SCD) in a two-site pilot feasibility trial. BI was modified to reduce barriers to care, logistical challenges, and stigma associated with receiving behavioral health services. Our goal was to establish high rates of recruitment and retention among caregivers of children with SCD. Recruitment was acceptable (94%; N = 72) and retention reasonable (49%) across both sites with 35 caregivers successfully completing the BI program. RESULTS: Results showed that caregivers of children with SCD, who successfully completed the BI program reported, significant improvements in problem-solving skills immediately and three months after intervention completion. Interestingly, initial levels of distress were low with few caregivers reporting clinically significant levels of distress; distress remained low over time. CONCLUSIONS: Findings are discussed in the context of psychosocial screening and resilience of caregivers of children with SCD.
BACKGROUND: Bright IDEAS problem-solving skills training (BI) is an evidence-based behavioral intervention that has been utilized extensively with caregivers of children recently diagnosed with cancer. Considerable evidence has shown that BI is acceptable to caregivers of children recently diagnosed with cancer, and improvements in problem-solving skills mediate reduced symptoms of distress. PROCEDURES: A slightly modified version of BI was offered to caregivers of children with sickle cell disease (SCD) in a two-site pilot feasibility trial. BI was modified to reduce barriers to care, logistical challenges, and stigma associated with receiving behavioral health services. Our goal was to establish high rates of recruitment and retention among caregivers of children with SCD. Recruitment was acceptable (94%; N = 72) and retention reasonable (49%) across both sites with 35 caregivers successfully completing the BI program. RESULTS: Results showed that caregivers of children with SCD, who successfully completed the BI program reported, significant improvements in problem-solving skills immediately and three months after intervention completion. Interestingly, initial levels of distress were low with few caregivers reporting clinically significant levels of distress; distress remained low over time. CONCLUSIONS: Findings are discussed in the context of psychosocial screening and resilience of caregivers of children with SCD.
Authors: Emily A Iobst; Melissa A Alderfer; Olle Jane Z Sahler; Martha A Askins; Diane L Fairclough; Ernest R Katz; Robert W Butler; Michael J Dolgin; Robert B Noll Journal: J Pediatr Psychol Date: 2009-01-07
Authors: Olle Jane Z Sahler; Diane L Fairclough; Sean Phipps; Raymond K Mulhern; Michael J Dolgin; Robert B Noll; Ernest R Katz; James W Varni; Donna R Copeland; Robert W Butler Journal: J Consult Clin Psychol Date: 2005-04
Authors: Michel Hofmann; Mariane de Montalembert; Bérengère Beauquier-Maccotta; Philippe de Villartay; Bernard Golse Journal: Am J Hematol Date: 2007-02 Impact factor: 10.047
Authors: Olle Jane Z Sahler; James W Varni; Diane L Fairclough; Robert W Butler; Robert B Noll; Michael J Dolgin; Sean Phipps; Donna R Copeland; Ernest R Katz; Raymond K Mulhern Journal: J Dev Behav Pediatr Date: 2002-04 Impact factor: 2.225
Authors: O S Platt; D J Brambilla; W F Rosse; P F Milner; O Castro; M H Steinberg; P P Klug Journal: N Engl J Med Date: 1994-06-09 Impact factor: 91.245
Authors: Olle Jane Z Sahler; Michael J Dolgin; Sean Phipps; Diane L Fairclough; Martha A Askins; Ernest R Katz; Robert B Noll; Robert W Butler Journal: J Clin Oncol Date: 2013-01-28 Impact factor: 44.544
Authors: Adrienne S Viola; Gary Kwok; Kristine Levonyan-Radloff; Sharon L Manne; Robert B Noll; Sean Phipps; Olle Jane Z Sahler; Katie A Devine Journal: Cancers (Basel) Date: 2022-06-25 Impact factor: 6.575