Laura Ciria-Suarez1, Paula Jiménez-Fonseca2, María Palacín-Lois3, Mónica Antoñanzas-Basa4, Ana Férnández-Montes5, Aranzazu Manzano-Fernández4, Beatriz Castelo6, Elena Asensio-Martínez7, Susana Hernando-Polo8, Caterina Calderon1. 1. Clinical Psychology and Psychobiology Department, Faculty of Psychology, University of Barcelona, Barcelona, Spain. 2. Medical Oncology Department, Hospital Universitario Central of Asturias, Oviedo, Spain. 3. Social Psychology and Quantitative Psychology Department, Faculty of Psychology, University of Barcelona, Barcelona, Spain. 4. Medical Oncology Department, Hospital Universitario Clínico San Carlos, Madrid, Spain. 5. Medical Oncology Department, Complejo Hospitalario Universitario de Orense, Orense, Spain. 6. Medical Oncology Department, Hospital Universitario La Paz, Madrid, Spain. 7. Medical Oncology Department, Hospital General Universitario de Elche, Elche, Spain. 8. Medical Oncology Department, Hospital Universitario Fundación Alcorcón, Madrid, Spain.
Abstract
BACKGROUND: The current cancer care system must be improved if we are to have in-depth knowledge about breast cancer patients' experiences throughout all the stages of their disease. AIM: This study seeks to describe breast cancer patients' experience over the course of the various stages of illness by means of a journey model. METHODS: This is a qualitative descriptive study. Individual, semi-structured interviews will be administered to women with breast cancer and breast cancer survivors. Patients will be recruited from nine large hospitals in Spain and intentional sampling will be used. Data will be collected by means of a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data will be processed adopting a thematic analysis approach. DISCUSSION: The outcomes of this study will afford new insights into breast cancer patients' experiences, providing guidance to improve the care given to these individuals. This protocol aims to describe the journey of patients with breast cancer through the healthcare system to establish baseline data that will serve as the basis for the development and implementation of a patient-centered, evidence-based clinical pathway.
BACKGROUND: The current cancer care system must be improved if we are to have in-depth knowledge about breast cancerpatients' experiences throughout all the stages of their disease. AIM: This study seeks to describe breast cancerpatients' experience over the course of the various stages of illness by means of a journey model. METHODS: This is a qualitative descriptive study. Individual, semi-structured interviews will be administered to women with breast cancer and breast cancer survivors. Patients will be recruited from nine large hospitals in Spain and intentional sampling will be used. Data will be collected by means of a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data will be processed adopting a thematic analysis approach. DISCUSSION: The outcomes of this study will afford new insights into breast cancerpatients' experiences, providing guidance to improve the care given to these individuals. This protocol aims to describe the journey of patients with breast cancer through the healthcare system to establish baseline data that will serve as the basis for the development and implementation of a patient-centered, evidence-based clinical pathway.
Authors: Charles Harding; Francesco Pompei; Dmitriy Burmistrov; H Gilbert Welch; Rediet Abebe; Richard Wilson Journal: JAMA Intern Med Date: 2015-09 Impact factor: 21.873
Authors: Leslie Kelly Hall; Breanne F Kunz; Elizabeth V Davis; Rose I Dawson; Ryan S Powers Journal: J Med Internet Res Date: 2015-05-28 Impact factor: 5.428