Literature DB >> 33320734

Management and Data Sharing of COVID-19 Pandemic Information.

Frank Gao1, Liang Tao2,3, Yu Huang4, Zhiquan Shu3,5.   

Abstract

The coronavirus disease 2019 (COVID-19) is an ongoing global pandemic caused by severe acute respiratory syndrome coronavirus 2. During the past 10 months, COVID-19 has killed over 1 million people worldwide. Under this global crisis, data sharing and management of the COVID-19 information are urgently needed and critical for researchers, epidemiologists, physicians, bioengineers, funding agencies, and governments to work together in developing new vaccines, drugs, methods, therapeutics, and strategies for the prevention and treatment of this deadly and rapidly spreading disease. The COVID-19 pandemic information includes the database of COVID-19-patient biospecimen resources in hospitals or biorepositories, electronic patient health records, ongoing clinical trials and research results on this disease, policies, guidelines, and regulations related to COVID-19, and the COVID-19 outbreak tracking records, and so on. A study of the current management and data-sharing approaches, tools, software, network, and internet systems developed in the United States is conducted in this article. Based on this study, it is revealed that the existing data-sharing and management systems are facing many big challenges and problems associated with data decentralization, inconsistencies, security and legal issues, limited financial support, international communications, standardization, and globalization. To overcome and solve these problems, several integrated platform models for national and international data-sharing and management are developed and proposed in this article to meet the unprecedented need and demand for COVID-19 pandemic information sharing and research worldwide.

Entities:  

Keywords:  COVID-19 information management; data sharing; database; policy; research

Mesh:

Year:  2020        PMID: 33320734     DOI: 10.1089/bio.2020.0134

Source DB:  PubMed          Journal:  Biopreserv Biobank        ISSN: 1947-5543            Impact factor:   2.300


  6 in total

1.  The Andalusian Registry of Donors for Biomedical Research: Five Years of History.

Authors:  Rocío Aguilar-Quesada; Inés Aroca-Siendones; Leticia de la Torre; Sonia Panadero-Fajardo; Juan David Rejón; Ana María Sánchez-López; Blanca Miranda
Journal:  BioTech (Basel)       Date:  2021-03-12

2.  The future is now: our experience starting a remote clinical trial during the beginning of the COVID-19 pandemic.

Authors:  Hans H Liu; Michael D Ezekowitz; Michele Columbo; Oneib Khan; Jack Martin; Judith Spahr; David Yaron; Lisa Cushinotto; Luciano Kapelusznik
Journal:  Trials       Date:  2021-09-07       Impact factor: 2.279

Review 3.  Pandemic Analytics: How Countries are Leveraging Big Data Analytics and Artificial Intelligence to Fight COVID-19?

Authors:  Nishita Mehta; Sharvari Shukla
Journal:  SN Comput Sci       Date:  2021-11-09

4.  Understanding Health Care Administrators' Data and Information Needs for Decision Making during the COVID-19 Pandemic: A Qualitative Study at an Academic Health System.

Authors:  Christina Guerrier; Cara McDonnell; Tanja Magoc; Jennifer N Fishe; Christopher A Harle
Journal:  MDM Policy Pract       Date:  2022-03-29

5.  Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic.

Authors:  Moawiah Khatatbeh; Lobna F Gharaibeh; Omar F Khabour; Rana K Abu-Farha; Karem H Alzoubi
Journal:  PLoS One       Date:  2022-03-21       Impact factor: 3.240

Review 6.  Institutionalizing Open Science in Africa: Limitations and Prospects.

Authors:  Izuchukwu Azuka Okafor; Smart Ikechukwu Mbagwu; Terkuma Chia; Zuwati Hasim; Echezona Ejike Udokanma; Karthik Chandran
Journal:  Front Res Metr Anal       Date:  2022-04-15
  6 in total

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