Literature DB >> 33302784

Caring, sharing, preparing and declaring: how do hospices support prisons to provide palliative and end of life care? A qualitative descriptive study using telephone interviews.

Chris McParland1,2, Bridget Johnston1,2.   

Abstract

BACKGROUND: Older adults in prison have complex healthcare needs, and many will need palliative care before their sentence ends. Compared with prison-based hospices, little is known about the role played by community-based hospices in providing palliative care to people in prison. AIM: To describe the roles Scottish hospices have adopted to support prisons to provide palliative care, and to discuss the international relevance of these findings in addressing the knowledge gap around community hospices supporting people in prison.
DESIGN: A qualitative descriptive study using semi-structured telephone interviews. SETTING/PARTICIPANTS: Representatives from all Scottish adult hospices were invited to take part in a short telephone interview and all (N = 17) participated.
RESULTS: Four roles were identified: caring, sharing, preparing and declaring. Most hospices employed different combinations of roles. Five (30%) hospices were engaged in caring (providing direct care at the prison or the hospice). Eleven (65%) hospices were engaged in sharing (supporting the prison by sharing knowledge and expertise). Eleven (65%) hospices were engaged in preparing (making preparations to support prisons). All seventeen hospices were described as declaring (expressing a willingness to engage with prisons to provide care).
CONCLUSIONS: There are differences and similarities in the way countries provide palliative care to people in prison: many are similar to Scotland in that they do not operate prison-based hospices. Variations exist in the level of support hospices provide. Ensuring that all people in prison have equitable access to palliative care will require close collaboration between prisons and hospices on a national level.

Entities:  

Keywords:  Qualitative research; hospice care; hospices; palliative care; prisoners; prisons

Mesh:

Year:  2020        PMID: 33302784      PMCID: PMC7975864          DOI: 10.1177/0269216320979194

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  28 in total

Review 1.  CE: Original Research: End-of-Life Care Behind Bars: A Systematic Review.

Authors:  Rachel K Wion; Susan J Loeb
Journal:  Am J Nurs       Date:  2016-03       Impact factor: 2.220

2.  Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

Authors:  Allison Tong; Peter Sainsbury; Jonathan Craig
Journal:  Int J Qual Health Care       Date:  2007-09-14       Impact factor: 2.038

3.  Differences between incarcerated and non-incarcerated patients who die in community hospitals highlight the need for palliative care services for seriously ill prisoners in correctional facilities and in community hospitals: A cross-sectional study.

Authors:  Alex Rothman; Shannon McConville; Renee Hsia; Lia Metzger; Cyrus Ahalt; Brie A Williams
Journal:  Palliat Med       Date:  2017-09-27       Impact factor: 4.762

4.  End of Life in Prison.

Authors:  Marina Richter; Ueli Hostettler
Journal:  J Correct Health Care       Date:  2017-01-01

5.  Valuing palliative care nursing and extending the reach.

Authors:  Jane Phillips; Bridget Johnston; Sonja McIlfatrick
Journal:  Palliat Med       Date:  2020-02       Impact factor: 4.762

6.  Essential Elements of an Effective Prison Hospice Program.

Authors:  Kristin G Cloyes; Susan J Rosenkranz; Patricia H Berry; Katherine P Supiano; Meghan Routt; Kathleen Shannon-Dorcy; Sarah M Llanque
Journal:  Am J Hosp Palliat Care       Date:  2015-03-02       Impact factor: 2.500

7.  Characteristics of Prison Hospice Patients: Medical History, Hospice Care, and End-of-Life Symptom Prevalence.

Authors:  Kristin G Cloyes; Patricia H Berry; Kim Martz; Katherine Supiano
Journal:  J Correct Health Care       Date:  2015-07

8.  Prevalence and characteristics of prisoners requiring end-of-life care: A prospective national survey.

Authors:  Lionel Pazart; Aurélie Godard-Marceau; Aline Chassagne; Aurore Vivot-Pugin; Elodie Cretin; Edouard Amzallag; Regis Aubry
Journal:  Palliat Med       Date:  2017-08-08       Impact factor: 4.762

Review 9.  Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014-2018.

Authors:  Chris McParland; Bridget Margaret Johnston
Journal:  BMJ Open       Date:  2019-12-23       Impact factor: 2.692

10.  Using the framework method for the analysis of qualitative data in multi-disciplinary health research.

Authors:  Nicola K Gale; Gemma Heath; Elaine Cameron; Sabina Rashid; Sabi Redwood
Journal:  BMC Med Res Methodol       Date:  2013-09-18       Impact factor: 4.615

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