| Literature DB >> 33266393 |
Rocío Palomo-Carrión1,2, Helena Romay-Barrero1, Rita-Pilar Romero-Galisteo3, Elena Pinero-Pinto4, Purificación López-Muñoz1,2, Inés Martínez-Galán1.
Abstract
Modified constraint-induced movement therapy (mCIMT) is efficient at improving upper limb non-use. The experiences of families and children with mCIMT could allow researchers to understand how it influences their day-to-day life and to improve the function of the affected upper limb without altering family life and avoiding frustration. In this qualitative study, we aimed to collect the experiences of parents and their children (aged 4-8 years) who did mCIMT at home regarding the application of low-intensity modified constraint-induced movement therapy to improve the affected upper limb functionality in infantile hemiplegia with moderate manual ability. Individual semi-structured interviews were performed to obtain insights into their experience with mCIMT. The experiences of parents and children were described in thematic sections. Eight children with hemiplegia (six years, standard deviation, SD: 1.77) and their parents were asked about their experiences after applying 50 h of mCIMT at home. Three main themes emerged from the children's interview data: (1) the experience of wearing the containment in the modified constraint-induced movement therapy (CIMT) intervention, (2) the reaction to performing the therapy at home with his/her family, and (3) learning of the affected upper limb. In the parents' interview data, there were two main themes: (1) the difficulty of executing an intensive therapy protocol (mCIMT: 50 h) at home and (2) the feeling of not wanting to finish the intervention. The experiences of the parents and their children regarding mCIMT allowed us to understand the facilitators and barriers that affect the execution of mCIMT at home, and this understanding allows us to improve its future application.Entities:
Keywords: child; constraint-induced movement therapy; experience; family; home; infantile hemiplegia; qualitative; self-determination; upper extremity
Year: 2020 PMID: 33266393 PMCID: PMC7700425 DOI: 10.3390/children7110248
Source DB: PubMed Journal: Children (Basel) ISSN: 2227-9067
Questions asked to the parent involved in the intervention and the children who performed 50 h modified constraint-induced movement therapy (mCIMT) at home.
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| How did you feel during the application of this therapy? | What was your experience from this therapy? |
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| What did you feel when they covered your hand with the bandage so that you could use your “less-used” hand? | Can you tell me about your family? |
Characteristics of the participants (children and parents who conducted the intervention).
| P | A | SEX | G. W | Lesion | MACS | GMFCS | Hemip. Side | Add. Impairs | Parent | Parent’s Status | Parent’s Education |
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| 4 | F | Term | PS | II | I | Left | No | Mother | Married | High Sch. |
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| 5 | M | Term | PS | II | I | Right | No | Mother | Married | High Sch. |
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| 5 | M | Preterm | PS | II | I | Left | No | Mother | Married | Elem. Sch. |
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| 5 | M | Preterm | PS | II | I | Left | No | Mother | Married | Elem. Sch. |
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| 7 | F | Term | PS | II | I | Right | Speech | Mother | Divorced | Elem. Sch. |
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| 6 | F | Term | PS | II | I | Right | Speech | Mother | Married | High Sch. |
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| 8 | F | Preterm | PS | II | I | Left | Speech | Father | Divorced | High Sch. |
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| 8 | M | Term | PS | II | I | Left | No | Mother | Married | Elem. Sch. |
P: Participants; Ch: Child; A: Age; Sex: F: Female; M: Male. G. W: Gestational Week: preterm (>32 weeks and <36 weeks), term: >36 weeks; PS: Perinatal Stroke; MACS: Manual Ability Classification System; GMFCS: Gross Motor Function Classification System. Hemip. side: Hemiplegic side; Add. impairs: Added impairments. Parent: Parent who conducted the intervention at home; Elem. Sch: Elementary school; Sch: School.
Figure 1Facilitators and barriers for the children and parents (who conducted the intervention) after applying mCIMT at home.