Literature DB >> 19660631

The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents.

James W Varni1, Christine A Limbers.   

Abstract

Health-related quality of life (HRQOL) has been recognized as an important outcome, some contend the most important outcome for children's health care interventions. The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, developed to integrate the relative merits of generic and disease-specific approaches. We suggest that part of the process of improving the quality of health care includes measuring HRQOL outcomes from the perspective of children and their parents on a routine basis, consistent with a consumer-based health care system approach.

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Year:  2009        PMID: 19660631     DOI: 10.1016/j.pcl.2009.05.016

Source DB:  PubMed          Journal:  Pediatr Clin North Am        ISSN: 0031-3955            Impact factor:   3.278


  95 in total

1.  Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods.

Authors:  Julie A Panepinto; Sylvia Torres; James W Varni
Journal:  Qual Life Res       Date:  2011-06-03       Impact factor: 4.147

2.  Feasibility of using a handheld electronic device for the collection of patient reported outcomes data from children.

Authors:  Lisa A Vinney; John D Grade; Nadine P Connor
Journal:  J Commun Disord       Date:  2011-10-20       Impact factor: 2.288

3.  Feasibility, reliability and validity of the Thai version of the Pediatric Quality of Life Inventory 3.0 cerebral palsy module.

Authors:  Pinailug Tantilipikorn; Pauline Watter; Saipin Prasertsukdee
Journal:  Qual Life Res       Date:  2012-03-25       Impact factor: 4.147

Review 4.  The design of future pediatric mechanical ventilation trials for acute lung injury.

Authors:  Robinder G Khemani; Christopher J L Newth
Journal:  Am J Respir Crit Care Med       Date:  2010-08-23       Impact factor: 21.405

5.  Health-related quality of life of "left-behind children": a cross-sectional survey in rural China.

Authors:  Zhaobao Jia; Lizheng Shi; Yang Cao; James Delancey; Wenhua Tian
Journal:  Qual Life Res       Date:  2010-03-25       Impact factor: 4.147

6.  The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module.

Authors:  Susan T Iannaccone; Linda S Hynan; Anne Morton; Renee Buchanan; Christine A Limbers; James W Varni
Journal:  Neuromuscul Disord       Date:  2009-10-28       Impact factor: 4.296

7.  Social impact of dialysis on children and their families.

Authors:  Jameela Abdulaziz Kari; Majed Alzahrany; Basem El-Deek; Muhanad Maimani; Sherif El-Desoky
Journal:  Indian J Pediatr       Date:  2013-10-10       Impact factor: 1.967

8.  Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome.

Authors:  Jill C Handisides; Danielle Hollenbeck-Pringle; Karen Uzark; Felicia L Trachtenberg; Victoria L Pemberton; Teresa W Atz; Timothy J Bradley; Elizabeth Cappella; Sylvia De Nobele; Georgeann Keh-Teng Groh; Michelle S Hamstra; Rosalind Korsin; Jami C Levine; Bergen Lindauer; Aimee Liou; Meghan K Mac Neal; Larry W Markham; Tonia Morrison; Kathleen A Mussatto; Aaron K Olson; Mary Ella M Pierpont; Reed E Pyeritz; Elizabeth A Radojewski; Mary J Roman; Mingfen Xu; Ronald V Lacro
Journal:  J Pediatr       Date:  2018-09-27       Impact factor: 4.406

9.  Factorial invariance of pediatric patient self-reported fatigue across age and gender: a multigroup confirmatory factor analysis approach utilizing the PedsQL™ Multidimensional Fatigue Scale.

Authors:  James W Varni; A Alexander Beaujean; Christine A Limbers
Journal:  Qual Life Res       Date:  2013-02-20       Impact factor: 4.147

10.  Collaborative Care for Adolescents With Persistent Postconcussive Symptoms: A Randomized Trial.

Authors:  Carolyn A McCarty; Douglas Zatzick; Elizabeth Stein; Jin Wang; Robert Hilt; Frederick P Rivara
Journal:  Pediatrics       Date:  2016-09-13       Impact factor: 7.124

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