Literature DB >> 33250622

Building and Sustaining a Community Advisory Board of African American Older Adults as the Foundation for Volunteer Research Recruitment and Retention in Health Sciences.

Jamie Mitchell1, Tam Perry2, Vanessa Rorai3, Joan Ilardo4, Peter A Lichtenberg5, James S Jackson6.   

Abstract

Older African Americans' participation in health-related research is severely limited; they are not involved in sufficient numbers to ensure the applicability of advancements in medical and behavioral health. This research participation gap exacerbates older African Americans' vulnerability to poor health outcomes and disparities. The Michigan Center for Urban African American Aging Research employs a progressive community-based participatory model that utilizes a structured community advisory board (CAB) of African American older adults in metro Detroit, Michigan to oversee the research recruitment and retention of fellow minority older adult research participants. CAB members develop and support community health programming that provides free resources to older adults and also serves as fertile ground for recruiting participants in a volunteer research registry. CAB members are also provided ongoing training on social and behavioral health research and are supported in acting as a consultancy to outside researchers where they can be compensated for their expertise and engagement. This community-engaged model of sustaining a CAB of African American older adults offers key lessons learned on building relationships and trust, valuing and leveraging community members' expertise and time, sharing decision-making, and fostering genuine community all while promoting research recruitment and retention among underserved populations.
Copyright © 2020, Ethnicity & Disease, Inc.

Entities:  

Keywords:  African American; Aging; Community-based Participatory Approach; Research Recruitment

Mesh:

Year:  2020        PMID: 33250622      PMCID: PMC7683030          DOI: 10.18865/ed.30.S2.755

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   2.006


  25 in total

1.  The resources that matter: fundamental social causes of health disparities and the challenge of intelligence.

Authors:  Bruce G Link; Jo C Phelan; Richard Miech; Emily Leckman Westin
Journal:  J Health Soc Behav       Date:  2008-03

2.  Building a registry of research volunteers among older urban African Americans: recruitment processes and outcomes from a community-based partnership.

Authors:  Letha A Chadiha; Olivia G M Washington; Peter A Lichtenberg; Carmen R Green; Karen L Daniels; James S Jackson
Journal:  Gerontologist       Date:  2011-06

3.  The Healthy African American Families (HAAF) project: from community-based participatory research to community-partnered participatory research.

Authors:  Cynthia D Ferré; Loretta Jones; Keith C Norris; Diane L Rowley
Journal:  Ethn Dis       Date:  2010       Impact factor: 1.847

4.  Expanding Ethics Review Processes to Include Community-Level Protections: A Case Study from Flint, Michigan.

Authors:  Kent D Key
Journal:  AMA J Ethics       Date:  2017-10-01

5.  African American participation in health-related research studies: indicators for effective recruitment.

Authors:  Rosalyn Lang; Vinaya A Kelkar; Jennifer R Byrd; Christopher L Edwards; Margaret Pericak-Vance; Goldie S Byrd
Journal:  J Public Health Manag Pract       Date:  2013 Mar-Apr

6.  Keys to Recruiting and Retaining Seriously Ill African Americans With Sickle Cell Disease in Longitudinal Studies: Respectful Engagement and Persistence.

Authors:  Marie L Suarez; Judith M Schlaeger; Veronica Angulo; David A Shuey; Jesus Carrasco; Keesha L Roach; Miriam O Ezenwa; Yingwei Yao; Zaijie Jim Wang; Robert E Molokie; Diana J Wilkie
Journal:  Am J Hosp Palliat Care       Date:  2019-08-08       Impact factor: 2.500

7.  The Role of Age and Multimorbidity in Shaping Older African American Men's Experiences with Patient⁻Provider Communication.

Authors:  Ramona G Perry; Jamie A Mitchell; Jaclynn Hawkins; Vicki Johnson-Lawrence
Journal:  Geriatrics (Basel)       Date:  2018-10-24

8.  "You Have to Be Part of the Process": A Qualitative Analysis of Older African American Men's Primary Care Communication and Participation.

Authors:  Jamie Mitchell; Ed-Dee G Williams; Ramona Perry; Kavitha Lobo
Journal:  Am J Mens Health       Date:  2019 Jul-Aug

9.  Challenges in recruiting African-American women for a breast cancer genetics study.

Authors:  Amanda J Compadre; Melinda E Simonson; Katy Gray; Gail Runnells; Susan Kadlubar; Kristin K Zorn
Journal:  Hered Cancer Clin Pract       Date:  2018-04-24       Impact factor: 2.857

10.  Socioeconomic status and the 25 × 25 risk factors as determinants of premature mortality: a multicohort study and meta-analysis of 1·7 million men and women.

Authors:  Silvia Stringhini; Cristian Carmeli; Markus Jokela; Mauricio Avendaño; Peter Muennig; Florence Guida; Fulvio Ricceri; Angelo d'Errico; Henrique Barros; Murielle Bochud; Marc Chadeau-Hyam; Françoise Clavel-Chapelon; Giuseppe Costa; Cyrille Delpierre; Silvia Fraga; Marcel Goldberg; Graham G Giles; Vittorio Krogh; Michelle Kelly-Irving; Richard Layte; Aurélie M Lasserre; Michael G Marmot; Martin Preisig; Martin J Shipley; Peter Vollenweider; Marie Zins; Ichiro Kawachi; Andrew Steptoe; Johan P Mackenbach; Paolo Vineis; Mika Kivimäki
Journal:  Lancet       Date:  2017-02-01       Impact factor: 202.731

View more
  2 in total

1.  Racial Differences in Trust and Risk Disclosure Preferences Among Older Registered Research Volunteers Screened for Prodromal Synucleinopathies.

Authors:  Carly Marshall; Isabelle Havis; Emily Herreshoff; Cate Lewis; Vikas Kotagal
Journal:  Gerontol Geriatr Med       Date:  2022-05-18

2.  Promoting Inclusive Recruitment: a Qualitative Study of Black Adults' Decision to Participate in Genetic Research.

Authors:  Jade Connor; Ashley Kyalwazi; Ruth-Alma Turkson-Ocran; Daniele Ölveczky
Journal:  J Urban Health       Date:  2022-07-25       Impact factor: 5.801

  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.