Literature DB >> 21565812

Building a registry of research volunteers among older urban African Americans: recruitment processes and outcomes from a community-based partnership.

Letha A Chadiha1, Olivia G M Washington, Peter A Lichtenberg, Carmen R Green, Karen L Daniels, James S Jackson.   

Abstract

PURPOSE OF THE STUDY: An emerging strategy for increasing public participation in health research is volunteer registries. Using a community-based participatory research framework, we describe recruitment processes and outcomes in building a research volunteer registry of older urban African Americans. The specific research question examined retrospectively was: How does a community outreach partnership between older residents and academic researchers of the Healthier Black Elders Center facilitate recruitment of older urban African Americans for a research volunteer registry? DESIGN AND METHODS: We adapted program evaluation methods, specifically, the logic model, for clarifying how community outreach health education activities supported development of a research volunteer registry of older urban African Americans.
RESULTS: Paralleling the 7 years in which an annual health reception was held, enrollees in a research volunteer registry increased from 102 to 1,273 enrollees. IMPLICATIONS: Targeted outreach to underrepresented groups to build a registry of volunteers for health research may be a promising strategy for addressing recruitment disparities in African Americans' research participation.

Mesh:

Year:  2011        PMID: 21565812      PMCID: PMC3092980          DOI: 10.1093/geront/gnr034

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  17 in total

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5.  Research recruitment through US central cancer registries: balancing privacy and scientific issues.

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Journal:  Am J Public Health       Date:  2006-03-29       Impact factor: 9.308

6.  Women, older persons, and ethnic minorities: factors associated with their inclusion in randomised trials of statins 1990 to 2001.

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7.  Recruitment of older African Americans for survey research: a process evaluation of the community and church-based strategy in The Durham Elders Project.

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Journal:  Gerontologist       Date:  2003-02

8.  Effective recruitment and retention strategies for older members of rural minorities.

Authors:  Dorothy Burns; April C M Soward; Anne H Skelly; Jennifer Leeman; John Carlson
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9.  Factors associated with African Americans' enrollment in a national cancer genetics registry.

Authors:  C S Skinner; J M Schildkraut; B Calingaert; C Hoyo; S S Crankshaw; L Fish; L Susswein; C Jasper; L Reid
Journal:  Community Genet       Date:  2008-04-14

Review 10.  Increasing minority participant enrollment into a cancer family registry: the Cancer Genetics Network.

Authors:  Deborah J Bowen; Thuy Vu; Carol Kasten-Sportes
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  32 in total

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6.  Patient, Family, and Community Advisory Councils in Health Care and Research: a Systematic Review.

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7.  Perceived Cognitive Impairment among African American elders: health and functional impairments in daily life.

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8.  Financial decision-making abilities and financial exploitation in older African Americans: Preliminary validity evidence for the Lichtenberg Financial Decision Rating Scale (LFDRS).

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9.  The relationship between baseline EEG spectra power and memory performance in older African Americans endorsing cognitive concerns in a community setting.

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10.  Falls efficacy and self-rated health in older African American adults.

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