| Literature DB >> 33247027 |
Laura Tarzia1,2, Meghan A Bohren3, Jacqui Cameron4, Claudia Garcia-Moreno5, Lorna O'Doherty4,6, Renee Fiolet4, Leesa Hooker7, Molly Wellington4, Rhian Parker4, Jane Koziol-McLain8, Gene Feder9, Kelsey Hegarty4,2.
Abstract
OBJECTIVE: To identify and synthesise the experiences and expectations of women victim/survivors of intimate partner abuse (IPA) following disclosure to a healthcare provider (HCP).Entities:
Keywords: public health; qualitative research; quality in healthcare
Mesh:
Year: 2020 PMID: 33247027 PMCID: PMC7703445 DOI: 10.1136/bmjopen-2020-041339
Source DB: PubMed Journal: BMJ Open ISSN: 2044-6055 Impact factor: 2.692
Figure 1Flow of studies.
Sample characteristics
| Number | Authors | Year (country) | Objective | Qualitative method (analysis) | Sample (age range) |
| 1 | Ahmad | 2009 (Canada) | To explore the views of Southeast Asian immigrant women with experiences of IPA and the meaning of help-seeking and reasons for/against help-seeking | Focus groups (thematic analysis) | n=22 (29–68) |
| 2 | Bacchus | 2016 | To explore women’s views and experiences of being screened for IPA during perinatal home visits in rural and urban contexts in the USA | Interviews (thematic analysis) | n=26 (16–35) |
| 3 | Bradbury-Jones | 2011 (Scotland) | To explore the healthcare experiences of women living with IPA, specifically in relation to the primary care setting | Interviews (thematic analysis) | n=17 |
| 4 | Buchbinder and Barakat | 2014 | To understand the relationships between Arab–Israeli abused women with social workers in community health clinics | Interviews (content analysis) | n=12 (27–56) |
| 5 | Chang | 2005 | To describe what women want from IPA healthcare interventions and to understand why they found certain interventions useful or not useful | Interviews (grounded theory) | n=21 (22–62) |
| 6 | Damra | 2015 (Jordan) | To explore the experiences of pregnant women disclosing IPA and seeking help from public hospitals in Jordan | Interviews (thematic analysis) | n=25 (20–42) |
| 7 | Dienemann | 2005 | To increase understanding of abused women’s preferences concerning HCP response when they disclose IPA | Focus groups (thematic analysis) | n=26 (21–65+) |
| 8 | Evans and Feder | 2014 | To explore pathways to support for IPA victim/survivors and their experiences of barriers and facilitators to disclosure and help-seeking | Interviews (thematic analysis) | n=31 (20–65) |
| 9 | Jack | 2012 (Canada) | To develop an IPA intervention to embed within a nurse family partnership | Interviews (content analysis) | n=20 (mean age 21) |
| 10 | Keeling and Fisher | 2015 | To gain a deeper understanding of women’s experiences of disclosure of IPA to HCPs | Interviews (thematic analysis) | n=15 (21–54) |
| 11 | Kelly | 2004 | To describe experiences Latina women receiving healthcare, and expectations of HCPs and healthcare systems when experiencing IPA | Interviews (interpretive phenomenological analysis) | n=17 (19–53) |
| 12 | Larsen | 2014 (Germany) | To listen to the voices of female victim/survivors exposed to IPA in Germany | Interviews | n=6 |
| 13 | Lundell | 2017 (Mexico) | To describe how women in Mexico who have suffered from IPA experience their encounters with HCP | Interviews (thematic analysis) | n=7 (age not specified) |
| 14 | Lutz | 2006 | To explore how IPA during pregnancy influences women’s decisions about seeking care and disclosing abuse and their preferences for HCP responses | Interviews (grounded theory) | n=12 (18–43) |
| 15 | Malpass | 2014 | To understand women’s experiences of disclosure of IPA in general practice settings and subsequent referral by their GP or practice nurse to a domestic violence advocate | Interviews (thematic analysis) | n=12 (27–81) |
| 16 | Narula | 2012 (Canada) | To understand how women affected by IPA felt their family physicians cared for them and to identify where gaps in care exist | Interviews (content analysis) | n=10 (40–73) |
| 17 | Naved | 2009 (Bangladesh) | To understand how women affected by IPA found an initiative to use paramedics as the first-level mental health counsellors of abused women in rural Bangladesh | Interviews (thematic analysis) | n=30 (not stated) |
| 18 | Nemoto | 2006 | To explore Japanese women’s experiences of healthcare after disclosing IPA | Interviews and focus groups (content analysis) | n=6 (20–60) |
| 19 | Nemoto | 2006 | To explore Japanese women’s experiences of healthcare after disclosing IPA | Interviews (content analysis) | n=6 (20–60) |
| 20 | Nicolaidis | 2008 | To explore what IPA victim/survivors believe about the relationship between mental health and physical symptoms and to elicit their recommendations for addressing depression | Focus groups (thematic analysis) | n=23 (age not specified) |
| 21 | Olive | 2017 | To explore women’s emotional responses following attendance to emergency department after an incident of IPA | Interviews (thematic analysis) | n=6 (age not specified) |
| 22 | Örmon | 2014 (Sweden) | To elucidate how women subjected IPA experience care provided at a general psychiatric clinic after the disclosure of abuse | Interviews (content analysis) | n=9 (20–55) |
| 23 | Pratt-Eriksson | 2014 (Sweden) | To gain a deeper understanding of women’s lived experience of IPA and their encounters with HCP, social workers and police following IPA | Interviews (thematic analysis) | n=12 |
| 24 | Ragavan | 2017 | To explore the opinions of women and adolescents residing at a transitional housing programme for adult female IPA victim/survivors and their children | Focus groups (thematic analysis) | n=25 (26–45+) |
| 25 | Reeves and Humphreys | 2018 | To develop knowledge on women victim/survivors' HCP experiences | Interviews (thematic analysis) | n=14 (22–63) |
| 26 | Reisenhofer and Seibold | 2012 (Australia) | To explore healthcare experiences of Australian women living with IPA and consider how these influence their understanding of IPA and sense of self | Interviews (grounded theory) | n=7 (35–50) |
| 27 | Spangaro | 2019 (Australia) | To explore Aboriginal women’s perceptions of the impact of IPA enquiry on themselves or their family, and the conditions associated with positive or nil positive impact | Interviews (grounded theory) | n=12 (20–36) |
| 28 | Spangaro | 2020 (Australia) | To refine and extend a model and understand the pathways leading to perceptions of positive impact of screening | Interviews (thematic analysis) | n=32 (17–41) |
| 29 | Tower | 2006 (Australia) | To explore the health and HCP of women affected by IPA in order to interrogate current health service responses. | Interviews (thematic analysis) | n=9 |
| 30 | Watt | 2008 | To describe the potential for social support for IPA victim/survivors in healthcare settings, according to a woman’s stage of readiness to disclose and take action to address her safety | Interviews (thematic analysis) | n=16 (19–47) |
| 31 | Zink | 2004 | To better understand the experiences and needs of older victim/survivors of IPA in the healthcare setting | Interviews (thematic analysis) | n=38 (55–90) |
GP, general practitioner; HCP, healthcare provider; IPA, intimate partner abuse.
Methodological assessment of contributing studies
| Author and year | Statement of aims? | Qualitative methodology appropriate? | Research design appropriate? | Recruitment strategy appropriate? | Relationship between researcher and participants adequately considered? | Ethical issues taken into consideration? | Data analysis sufficiently rigorous? | Findings supported by evidence? | Other limitations? | Overall assessment of methodological quality |
| Evans and Feder | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | N/A | No or very minor concerns |
| Keeling and Fisher | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | N/A | No or very minor concerns |
| Örmon | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | N/A | No or very minor concerns |
| Reeves and Humphreys | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | N/A | No or very minor concerns |
| Spangaro | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | N/A | No or very minor concerns |
| Zink | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | N/A | No or very minor concerns |
| Ahmad | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | Community workers recruited participants, potential conflict of interest | Minor concerns |
| Bacchus | Yes | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Purposive sampling may create bias | Minor concerns |
| Bradbury-Jones | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Partial | N/A | Minor concerns |
| Chang | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | No limitations acknowledged and quotes not given any identifier (strength of themes unclear) | Minor concerns |
| Damra | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | N/A | Minor concerns |
| Dienemann | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Partial | No limitations acknowledged and quotes not given any identifier (strength of themes unclear) | Minor concerns |
| Jack | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Unclear | No primary data reported on women’s expectations, only author interpretations | Minor concerns |
| Larsen | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Minor concerns | |
| Lundell | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | Low response rate | Minor concerns |
| Malpass | Yes | Yes | Yes | Yes | Yes | Yes | Partial | Yes | Low response rate | Minor concerns |
| Narula | Yes | Yes | Yes | Yes | Yes | Partial | Partial | Yes | Questionable approach to recruitment could have created a selection bias | Minor concerns |
| Olive | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | N/A | Minor concerns |
| Pratt-Eriksson | Yes | Yes | Yes | Yes | No | Yes | Yes | Yes | Recruit methods not outlined | Minor concerns |
| Spangaro | Yes | Yes | Yes | Yes | Unclear | Yes | Yes | Yes | Minor concerns | |
| Tower | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Small sample size | Minor concerns |
| Buchbinder and Barakat | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Partial | Although 12 women were interviewed twice, results (quotes) from only five women are reported. | Moderate concerns |
| Kelly | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Not always clear what the overarching and subthemes were | Moderate concerns |
| Lutz | Yes | Yes | Partial | Partial | Yes | Yes | Partial | Unclear | N/A | Moderate concerns |
| Nemoto | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Partial | Inconsistent/patchy reporting of data in findings | Moderate concerns |
| Nemoto | Yes | Yes | Partial | Partial | Yes | Yes | Partial | Yes | N/A | Moderate concerns |
| Nicolaidis | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | No limitations acknowledged and quotes not given identifiers (strength of themes unclear) | Moderate concerns |
| Ragavan | Yes | Yes | Yes | Yes | Unclear | Yes | Unclear | Yes | Concerns about how the data analysis was performed, without statement of which theory was used | Moderate concerns |
| Reisenhofer and Seibold | Yes | Yes | Yes | Yes | Unclear | Yes | Unclear | Yes | Lack of detail around how rigor was ensured in analysis. | Minor concerns |
| Watt | Yes | Yes | Yes | Yes | Unclear | Yes | Unclear | Yes | N/A | Moderate concerns |
| Naved | Yes | Yes | Partial | Partial | Partial | Partial | No | Partial | Lack of detail on sampling and methods | Serious concerns |
N/A, not applicable.
CERQual evidence profile table
| Summary of review finding | Studies contributing to the review finding | Assessment of methodological limitations by theme | Assessment of coherence | Assessment of adequacy | Assessment of relevance | Overall CERQual assessment of confidence in the evidence | Explanation of CERQual assessment |
| Connection through kindness and care | |||||||
| Kindness and empathy | Studies 2, 5, 7, 11, 12, 15, 17, 18, 19, 21, 22, 23, 25, 26, 29, 30 |
No or very minor concerns (studies 10, 22, 25, 28). Minor concerns (studies 1, 2, 3, 5, 6, 7, 9, 12,13, 15, 16, 21, 23, 26, 29). Moderate concerns (studies 11, 14, 18, 19, 24, 30). Serious concerns (study 17). | No or very minor concerns about coherence (26 studies). | No or very minor concerns about adequacy (26 studies) | No or very minor concerns about relevance (26 studies) | High confidence | This finding was graded as high confidence as it is likely that the finding is a reasonable representation of women’s experiences and expectations after disclosure of IPA to a HCP. |
| Trust & respect | Study 1, 3, 11, 13, 16, 17, 18, 20, 21, 23, 24, 26, 29, 30 | ||||||
| Ongoing support/continuity of care | Studies 6, 7, 9, 10, 14, 15, 16, 24, 28 | ||||||
| See the evil, hear the evil, speak the evil | |||||||
| Being heard and understood | Studies 1, 2, 6, 9, 11, 12, 13, 16, 17, 19, 29, 30, 20, 22, 23, 24, 27, 28, 31 |
No or very minor concerns (studies 10, 22, 25, 28, 31). Minor concerns (studies 1, 2, 3, 5, 6, 7, 9, 12, 13, 15, 16, 21, 23, 26, 27, 29). Moderate concerns (studies 4, 11, 14, 18, 19, 20, 24, 30). Serious concerns (study 17). | No or very minor concerns about coherence (28 studies). | No concerns about adequacy (28 studies). | No or very minor concerns about relevance (28 studies) | High confidence | This finding was graded as high confidence as it is likely that the finding is a reasonable representation of women’s experiences and expectations after disclosure of IPA to a healthcare provider. |
| Making time to listen | Studies 6, 7, 13, 18, 21, 23, 25, 26 (eight studies) | ||||||
| Being non-judgemental | Studies 1, 6, 7, 13, 17, 22, 26, 29 | ||||||
| Validating experiences | Studies 9, 10, 12, 14, 15, 16, 20, 22, 26, 29, 3, 4, 14, 16, 6, 11, 18, 19, 23, 25, 13, 31 | ||||||
| Raising awareness/naming | Studies 5, 7,14,15, 26, 31, 27, 28 | ||||||
| Do more than just listen | |||||||
| Action and advocacy | Studies 10, 11, 15, 18, 19, 25, 30, 7, 12, 14, 16, 5 (12 studies) |
No or very minor concerns (studies 8, 10, 25. Minor concerns (studies 2, 3, 15, 6, 7, 9, 12, 16, 5, 29, 23, 26). Moderate concerns (studies 11, 18, 19, 30, 14). | No or very minor concerns about coherence (16 studies). | No or very minor concerns about adequacy (16 studies). | No or very minor concerns about relevance (16 studies). | Moderate confidence | This finding was graded as moderate confidence as it is likely that the finding is a reasonable representation of women’s experiences and expectations after disclosure of IPA to a healthcare provider. |
| Safety planning | Studies 2, 9, 10, 14 (four studies) | ||||||
| Response needs to match needs | Studies 6, 8, 10, 11, 12, 16, 18, 19, 26, 29 (10 studies) | ||||||
| Connect me to resources | Studies 2, 3, 8, 9, 11, 15, 7, 9, 10, 11, 12, 14, 15, 23, 30 (15 studies) | ||||||
| Planting the right seed | |||||||
| My life is my own. | Studies 4, 5, 7, 9, 11, 12, 13, 14, 30, 27 (10 studies) |
No or very minor concerns (studies 10, 25, 28). Minor concerns (studies 2, 5, 7, 9, 12, 15, 27, 29). Moderate concerns (studies 4, 11, 14, 20, 30). Serious concerns (study 17). | No or very minor concerns about coherence (16 studies). | No or very minor concerns about adequacy (16 studies). | No or very minor concerns about relevance (16 studies) | Moderate confidence | This finding was graded as moderate confidence as it is likely that the finding is a reasonable representation of women’s experiences and expectations after disclosure of IPA to an HCP. |
| Meet me where I'm at. | Studies 2, 4, 5, 7, 9, 11, 14, 15, 20, 30 | ||||||
| Power imbalance HCP/patient | Studies 10, 15, 20, 25, 17 | ||||||
| You don't need to fix things. | Studies 5, 11, 14, 29 (four studies) | ||||||
CERQual, confidence in the evidence from reviews of qualitative research; HCP, healthcare provider; IPA, intimate partner abuse.
Summary of analytical themes, HCP actions and emotional impacts on women if absent from care
| Theme | HCP actions | Emotional impact on women if absent from care | Example quotation |
| Connection through kindness and care | Demonstrate kindness, caring, empathy and respect to build trust. | Retraumatised | I think had she (HCP) had a better bedside manner, that experience wouldn’t have been as traumatic…she just wasn’t very kind |
| Untouchable | It’s as if you’ve got some kind of disease, nobody wants to come close to you, nobody wants to catch it. | ||
| Ignored, abandoned and neglected | She (HCP) made it clear to me that she didn’t care about the situation that I was in. | ||
| Intimidated | It was a bit intimidating because of the midwife, her attitude. I don’t think she was having a good day. | ||
| Sustain personal engagement to maintain support. | Alone | How can they help when they do not know me? | |
| Feeling like time was wasted | …you get one lady that asks you about that type of stuff and then you talk to that person and you go to your next visit but THAT lady has no idea and then you go to your NEXT visit and then THAT person has no idea | ||
| See the evil, hear the evil, speak the evil. | When listening to women, strive to understand the dynamics and context of their situation. | Dismissed | She asked my children, ‘Where is your father?’ … She just avoided my feelings and kept saying they have to see their father and I should not stop that opportunity. |
| Silenced | Most of the time, they (physicians) think you are just getting a little carried away, you are a little high-strung, you are very nervous, you have always been this way, so calm down | ||
| Name the abuse and validate experiences. | Feelings of self-blame and guilt | If you are not left black and blue or (do not) have physical injuries, (then) it feels that it does not count. As if you should be able to take a few bad words or insults because it is normal. | |
| Feeling ignored and disrespected | I told the physician that this (injury) was caused by my husband… But his response was like, ‘So what? What do you want me to examine? ’It was like he was asking me why I had gone there (the ER) with such a minor injury… He seemed to be annoyed that I had come to the ER due to marital quarrels | ||
| Distress | That’s one of the most distressing things about going to see doctors… you know that something’s not right but… they tell you you’re fine… You just want to take them by their shoulders and be like ‘no, I promise you that I’m not!’ | ||
| Do more than just listen. | Action and advocacy guided by women’s needs | Feeling like time was wasted | (the HCP) only offered pills, no conversation, no therapy or counselling… nothing, only pills. |
| Let down | My solicitors were sending letters to my doctor. My doctor wasn’t doing nothing for me though, you know tests for the courts and stuff, he wouldn’t do nothing like that… He has not done nothing for me, you know what I mean, and that’s what caused me problems. | ||
| Betrayed | I trusted him (the physician) because he took care of my body when I was pregnant. However, I finally realised that I had made a mistake in choosing a person to talk to about (my problems with IPV). I never visited that clinic again | ||
| Connect women with services in the community for health, safety and well-being. | Vulnerable, helpless | You are a bit helpless at the beginning. You don’t know which kind of help you can get at all, which (help) makes sense. | |
| Planting the right seed | Tailor responses to women’s individual circumstances. | Disappointed | Most of them (HCPs) have been neutral when I′ve talked about it (IPV). Someone has said that I’ve been strong, you are smart and intelligent, and you’ll make it. I′m so tired of hearing that! |
| Facilitate women’s empowerment, choice and control. | Infantilised | I don’t do well with paternalistic doctors who just wanna tell you what to do and you’re supposed to just say ‘yes ma’am, yes sir’ and do it | |
| Oppressed | I came to talk to a male nurse for some time, but he would always reprimand me. It was like he got angry when I did not do the things he told me to do; it was like the situation felt oppressive. | ||
| Overwhelmed | I was traumatised all the time. Everybody’s opinion was better than my opinion and I never took time to think of what I wanted or what I needed. Nobody asked me what I wanted. Everybody told me, ‘You should, you should, you should. |
HCP, healthcare provider.
Figure 2Care model.