Literature DB >> 33229997

Caring for Family Caregivers: Perceptions of CARE Act Compliance and Implementation.

Juleen Rodakowski1, Cassandra Leighton, Grant R Martsolf, A Everette James.   

Abstract

BACKGROUND: The Caregiver Advise, Record, Enable (CARE) Act encourages inclusion of family caregivers in the hospitalization process for patients. Translating the state laws into meaningful changes within the health care delivery system can be challenging and requires time. This study sought to examine early compliance with and implementation of the CARE Act reported by hospitals in the Commonwealth of Pennsylvania.
METHODS: We sent an online survey to hospital executives in Pennsylvania in 2017. Descriptive statistics were computed to examine hospital characteristics and used to assess compliance and implementation of the CARE Act tenets.
RESULTS: Most hospitals reported that changes have been and are being made to comply with the CARE Act (90.9%). Hospital executives reported that the family caregiver designation is available in 63.6% of the hospitals and notification of patient discharge is available in 45.5%. Hospital executives reported that family caregiver education and instruction is occurring in 31.8% of all inpatient stays. Hospital executives indicated that they are still developing processes to comply with the legislation and to integrate family caregivers into hospital systems and processes.
CONCLUSIONS: Our findings suggest that hospitals are complying with the legislation, while fully operationalizing the components of the CARE Act is a work in progress.
Copyright © 2020 Wolters Kluwer Health, Inc. All rights reserved.

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Year:  2021        PMID: 33229997      PMCID: PMC7844420          DOI: 10.1097/QMH.0000000000000278

Source DB:  PubMed          Journal:  Qual Manag Health Care        ISSN: 1063-8628            Impact factor:   1.147


  15 in total

1.  Continuity of Care: The Transitional Care Model.

Authors:  Karen B Hirschman; Elizabeth Shaid; Kathleen McCauley; Mark V Pauly; Mary D Naylor
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2.  Valuing the invaluable: a new look at the economic value of family caregiving.

Authors:  Mary Jo Gibson; Ari Houser
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3.  Assessments for Caregivers of Hospitalized Older Adults.

Authors:  Beth Fields; Rose L Turner; Maharsi Naidu; Richard Schulz; Everette James; Juleen Rodakowski
Journal:  Clin Nurs Res       Date:  2018-12-10       Impact factor: 2.075

Review 4.  Caregiver Integration During Discharge Planning for Older Adults to Reduce Resource Use: A Metaanalysis.

Authors:  Juleen Rodakowski; Philip B Rocco; Maqui Ortiz; Barbara Folb; Richard Schulz; Sally C Morton; Sally Caine Leathers; Lu Hu; A Everette James
Journal:  J Am Geriatr Soc       Date:  2017-04-03       Impact factor: 5.562

5.  Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients.

Authors:  Richard Schulz; Scott R Beach; Esther M Friedman; Grant R Martsolf; Juleen Rodakowski; A Everette James
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

6.  Informal caregivers in hospitals: Opportunities and threats.

Authors:  Mohammadreza Amiresmaili; Zahra Emrani
Journal:  Int J Health Plann Manage       Date:  2018-05-20

7.  The Insiders as Outsiders: Professionals Caring for an Aging Parent.

Authors:  Robert M Kaiser; Susan L Kaiser
Journal:  Gerontologist       Date:  2016-08-06

8.  A National Profile of Family and Unpaid Caregivers Who Assist Older Adults With Health Care Activities.

Authors:  Jennifer L Wolff; Brenda C Spillman; Vicki A Freedman; Judith D Kasper
Journal:  JAMA Intern Med       Date:  2016-03       Impact factor: 21.873

Review 9.  Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs.

Authors:  Eric A Coleman
Journal:  J Am Geriatr Soc       Date:  2003-04       Impact factor: 5.562

10.  Role and Influence of the Patient's Companion in Family Medicine Consultations: "The Patient's Perspective".

Authors:  Marie Andrades; Samreen Kausar; Aisha Ambreen
Journal:  J Family Med Prim Care       Date:  2013-07
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  4 in total

1.  Improving Transitions in Care for Patients and Family Caregivers Living in Rural and Underserved Areas: The Caregiver Advise, Record, Enable (CARE) Act.

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Journal:  J Aging Soc Policy       Date:  2022-02-13

2.  "We need to bring them out from the shadows:" A qualitative study of safety net physician leaders' perspectives on caregivers.

Authors:  Wagahta Semere; Anupama G Cemballi; Dean Schillinger; Alejandra Casillas; Miya Lemberg; Courtney R Lyles
Journal:  Patient Educ Couns       Date:  2021-10-23

3.  Associations Between Implementation of the Caregiver Advise Record Enable (CARE) Act and Health Service Utilization for Older Adults with Diabetes: Retrospective Observational Study.

Authors:  Yaguang Zheng; Bonnie Anton; Juleen Rodakowski; Stefanie C Altieri Dunn; Beth Fields; Jacob C Hodges; Heidi Donovan; Connie Feiler; Grant Martsolf; Andrew Bilderback; Susan C Martin; Dan Li; Alton Everette James
Journal:  JMIR Aging       Date:  2022-06-21

4.  Evaluating the Appropriateness and Feasibility of the Care Partner Hospital Assessment Tool (CHAT).

Authors:  Madeline Carbery; Richard Schulz; Juleen Rodakowski; Lauren Terhorst; Beth Fields
Journal:  Int J Environ Res Public Health       Date:  2021-12-18       Impact factor: 3.390

  4 in total

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