| Literature DB >> 33198678 |
Shivani Mathur Gaiha1,2, Tatiana Taylor Salisbury3, Mirja Koschorke4, Usha Raman5, Mark Petticrew6.
Abstract
BACKGROUND: Globally, 20% of young people experience mental disorders. In India, only 7.3% of its 365 million youth report such problems. Although public stigma associated with mental health problems particularly affects help-seeking among young people, the extent of stigma among young people in India is unknown. Describing and characterizing public stigma among young people will inform targeted interventions to address such stigma in India, and globally. Thus, we examined the magnitude and manifestations of public stigma, and synthesised evidence of recommendations to reduce mental-health-related stigma among young people in India.Entities:
Keywords: India; Mental health; Stigma; Systematic review; Youth
Year: 2020 PMID: 33198678 PMCID: PMC7667785 DOI: 10.1186/s12888-020-02937-x
Source DB: PubMed Journal: BMC Psychiatry ISSN: 1471-244X Impact factor: 3.630
Search strategy for studies of youth mental-health-related stigma in India
| Category | Search terms |
|---|---|
| Stigma | (stigma or knowledge or awareness or myth or stereotypa or attitude or prejudice or negativa or discriminata or exclusion or “social distance” or “intended behaviour” or avoida or victima or violena or isolata) |
| AND | |
| Mental health | (mental OR psychiatra OR psychola OR anxiety OR panic OR bipolar OR “personality disorder” OR depression OR dissociative OR alcohola OR dependency OR schizophrenia OR mania OR “learning disability” OR obsessive AND compulsive OR self AND harm OR self-harm OR paranoia OR phobiaa OR “post traumatic stress” OR insomniaa OR suicida OR addictia OR bereavea OR “attention deficit” OR body AND dysmorphic OR delirium OR delusiona OR hallucinata OR hyperactiva OR delinquena OR aggressa OR “substance use” OR “substance abuse”) |
| AND | |
| India | (India) |
aSymbol of truncation in order to search keywords with varying endings and plural forms
Fig. 1PRISMA Flow diagramme for youth stigma associated with mental health in India
Summary of study characteristics from youth-assessments of stigma in India
| Abraham et al., 2014 [ | Nomophobia - fear of being without or being unable to use one’s phone | 200 (U) | 18–23 | NR | Karnataka | College students | K | 89% had poor knowledge | – | – |
| Aggarwal et al., 2016 [ | Mental illness | 289 (U) | 20.5 | 54.7 | Delhi | Medical, psychology & other college students | KAB | Causes of mental illness - genetic, brain damage; God’s punishment, stress, biological factors and physical and sexual abuse | Mentally ill tend to be ‘mentally retarded’ and of low intelligence; need prescription drugs to control; marriage or psychotherapy can successfully treat mental illness | Majority would not maintain a friendship and would feel ashamed if they were related to a person with mental illness |
| Ahuja et al., 2017 [ | Mental illness | 50 (U) | 18–21 | 54 | Delhi-National Capital Region | College students of History, English, Business and Journalism | A | – | 15% negatively labelled mental health problems and 77% used negative descriptions such as ‘stubborn, untidy and unclean’ | – |
| Bell et al., 2010 [ | Mental illness | 106 (U) | 20/19–23 | 57 | Maharashtra | Pharmacy | AB | – | Perception that people will never recover | 18.75+/− 3.57 |
| Bell et al., 2008 [ | Epilepsy | 106 (U) | 21/19–24 | 58 | Maharashtra | Pharmacy | A | – | People with depression will never recover and people with schizophrenia will never recover | – |
| Bhise et al., 2016 [ | Mental illness | 94 (U) | 21.9 (0.7); 20.6 (0.8) | 44.6;88.3 | Maharashtra | Psychiatry and physiotherapy | A | – | 3.3–3.4 (0.94, Kruskal Wallis | – |
| Chawla et al., 2012 [ | Mental illness | 210 (U) | 20.2 (1.63) | 30.9 | NR | Undergraduate medical students | KA | Mental illness - occurs among people who have excessive emotions (66%) or are lonely (52%); is caused by past sins/evil spirits (16%); is not treatable (7%). | 46% felt fear, anger or hatred when they met a psychiatric patient | |
| D’Sa et al., 2016 [ | Substance use | 487 (U) | < 18 | NR | Mangalore, Karnataka | School students and college students | K | 58% knew where people can access alcohol | – | – |
| Etzersdorfer et al., 1998 [ | Suicide | 100 (U) | 18.4 | 51.5 | Chennai, India | Medical students | A | – | 70% said suicide by someone most near was cowardly; 37% said it was deliberate | 18% would likely commit suicide because they had a mental illness |
| Gulati et al., 2014 [ | Mental illness | 135 (NR) | 20.3 | 57.3 | North India | Medical students (yr. 1 and 2) and interns - upper middle class and middle class | KA | 29–65% felt that people with mental illness are easy to recognize, and are different from patients suffering from other illness | 68% felt that persons with mental illness should not be treated in the same hospital with people with physical illness. 65–75% prefer locking such patients. | – |
| Hiremath & Wale, 2017 [ | Adjustment problems | 100 (U) | 22–25 | 70 | Tumkur, Karnataka | Third-year B.Sc. Nursing students | KA | 15% had poor knowledge about adjustment problems | 20% had negative attitudes regarding adjustment problems | |
| Joshi et al., 2012 [ | Epilepsy | 798 (U) | 14–16 | 33.2 | Bareilly, Uttar Pradesh | School students | KAB | Cause of epilepsy: 36% did not know that epilepsy is a brain disorder. 5% believed that epilepsy is infectious. 69% felt that epilepsy can be cured. 4% felt it can be treated by a spiritual healer. Perceived causes for epilepsy: inherited (71%), non-vegetarian diet (49%), evil spirits (5%). | 40% believed that average IQ of an epileptic patient is less than a normal person. Most (89%) of the students felt pity/sad for an epileptic patient, and 37% of them thought that an epileptic patient is dangerous. 72% thought that children with epilepsy should study in a special school. | During a seizure, 51.5% of the students would take the person to the hospital, 23.43% would throw water on the person and 22.69% would make the person smell a shoe or an onion. |
| Kalra, 2012 [ | Mental illness | 11 (U) | NR | NR | Mumbai, Maharashtra | Psychiatry trainees | A | – | Society stereotyping psychiatrists as ‘mad doctors’ Other medical colleagues do not take them seriously and they felt ‘stigmatized along with the psychiatric patients’ | – |
| Kodakandla et al., 2016 [ | Mental illness | 176 (U) | 23.2 years (1.06) | 81.25 | Hyderabad, Telangana | Participants wereInterns, who completed their psychiatry rotation | KA | 31% believed that psychological illness is unlikely to becured regardless of the treatment. 76% believed that psychological disorder is recurrent. 68% were of the opinion that people who have once received psychologicaltreatment are likely to need further treatment in the future. | 76% believed that a mentally ill person is more likely to harm others. 62% believed that it may be difficult for mentally ill patients to follow social rules and that they are less likely to function well as parents (63%). 82% believe that mentally ill patients should have a job with minor responsibilities. 79% felt that behaviour of patients with psychologicaldisorder is unpredictable. | |
| Madhan et al., 2012 [ | Mental illness | 212 (U) | NR | NR | Guntur, India | Dental students | A | – | Regard was the highest for persons with intellectualdisability, followed by acute mental illness, and substance misuse. | – |
| Mahto et al., 2009 [ | Mental illness | 100 (U) | 18–35 | 50 | Ranchi, Jharkhand | postgraduate department college | A | – | Females had more neutral attitudes compared to males, although no significant difference overall. | – |
| Mehrotra et al., 2013 [ | Mental illness | 536 (NR) | 21(2.3)/ 17–30 | 59 | NR | Graduate and undergraduate college students | K | Mental health defined positively, although cognitive functioning was stressed. | – | – |
| Nebhinani et al., 2017 [ | Suicide | 205 (U) | 21.9 | 46 | Rohtak, Haryana | Final year medical students | A | – | 23% perceived that people with serious suicidal intent do not talk about it. Suicide as attention-seeking. | – |
| Nebhinani et al., 2013 [ | Substance use | 192 (U) | 16.57 (1.63); 19.49 (1.24) | 49 and 38% | Chandigarh | College and school students | KA | More college studentsconsidered substance related harm as temporary (7%vs. 1%); 26% considered no treatmentfor substance use. | 15% had negative attitude towards substance abusers (labelled them ‘bad people’and added that they should not be helped). and 81% felt that subjects may quit substance with willpower, despite a longer duration of intake. | – |
| Poreddi et al., 2016 [ | Mental illness | 271 (U) | 20.9 (1.7) | 80.9 | Bangalore, Karnataka | Medical and nursing undergraduates after a psychiatry course | A | – | People with mental illness - should have limited input in to deciding medication to be used (44%); can’t handle too much responsibility (41%). | – |
| Poreddi et al., 2017 [ | Mental illness | 322 (U) | 19.57–20.87 | 83.9 | Bangalore, Karnataka | Medical and nursing undergraduates after completing psychiatry course | AB | – | Medical students reported better attitudes than nursing students regarding stereotyping, restrictiveness, benevolence and pessimistic prediction. Nursing students had better attitude regarding separatism. | Stigmatization among medical students 8.37 ± 2.81) and 9.27 ± 2.48) among nursing students |
| Poreddi et al., 2015 [ | Mental illness | 116 (U) | 20.96 (0.90) | 98.3 | NR | Nursing undergraduate | A | – | 80% said people with mental illness are unpredictable. 71% said they cannot handle too much responsibility, 84% felt they are more likely to commit offences or crimes and 44% believe they are more likely to be violent. | – |
| Prasad & Theodore, 2016 [ | Mental illness | 400 (U) | NR | 82.75 | Bangalore, Karnataka | B.Sc. nursing students | K | 70% had inadequate knowledge of human rights related to mental illness | – | – |
| Ram et al., 2017 [ | Suicide | 339 (U) | 17–31 (21.80 ± 2.18) | 68.7 | Mysuru, Karnataka | Undergraduate, postgraduate and interning medical students and paramedical students | KA | 36% were unable to identify symptoms of depression; 64% felt that talking about suicide increases risk of suicide, 62% more men commit suicide than women; 65% happens to few people; 52% of people with depression need to be hospitalized. | 45.42% would not disclose suicidal ideation; 49.55% - people with mental illness change their mind quickly | |
| Roy et al., 2017 [ | Substance use | 379 (U) | 13.6 | NR | Patiala, Punjab | Nr | KA | 19% did not know that alcohol is a drug. 22% assumedthat smaller doses of alcohol do no harm. | 8% expected alcohol to improvetheir sexual activity. | – |
| Shanthi et al., 2015 [ | Substance use | 100 (U) | 14–17 | 0 | Mangalore, Karnataka | School students | K | Regarding alcoholism and its effects: 80% had average knowledge, 17% hadpoor knowledge and 3% had good knowledge | – | – |
| Sureka et al., 2016 [ | Epilepsy | 411 (U) | NR | NR | Jaipur, Rajasthan | Nursing and medical students | KAB | Causes of epilepsy: epilepsy is a mentalillness (27–40%); birthdefect and blood disorder (25%); family history (21–39%) and supernatural power (5%) Symptoms of epilepsy: loss ofconsciousness and convulsions (55–58%) Treatment by allopathic medicine, followed by ayurvedic and homeopathic (40–50%) | Epilepsy is a hindrance in life (50–76%). An “epileptic person” should not marry (25–33%). Among both groups, most participants would like to play/study with epileptic child. 23% thoughtepileptics have committed sins in past life. | During an epileptic attack, majority would take a patient to the hospital and 16%in one group would put water/ shoe/ onion on the person’sface. |
| Thakur & Olive, 2016 [ | Nomophobia - fear of being without or being unable to use one’s phone | 100 (U) | NR | NR | Jalandhar, Punjab | College students of nursing, technology and engineering | K | 68% had poor knowledge of nomophobia | – | – |
| Thomas et al., 2015 [ | Substance use | 60 (U) | 13–15 | 50 | Malkapur, Maharashtra | School students | K | 23% had poor knowledge regarding substance use | – | – |
| Vijayalakshmi et al., 2013 [ | Mental illness | 268 (U) | NR | 100 | Bangalore, Karnataka | Nursing and management students | KAB | Stereotyping sub-scale: 22% ( | Separatism sub-scale: more nursing students ( | More nursing students ( |
Youth Stigma in India: Risk of bias assessment (Y Yes, N No, NA Not applicable, NR Not reported)
| 1. Was the research question or objective clearly stated? | Y | Y | Y | Y | Y | Y | Y | N | Y | Y |
| 2. Was the study population clearly specified and defined? | Y | Y | N | Y | Y | Y | N | Y | Y | Y |
| 3. Was the participation rate of eligible persons at least 50%? | NR | Y | NR | Y | Y | Y | NR | Y | Y | Y |
| 4. Were all subjects selected or recruited from the same or similar populations? | N | Y | N | Y | Y | Y | Y | Y | N | Y |
| 5. Was a sample size justification, power description, or variance and effect estimates provided? | N | N | N | N | N | N | N | Y | N | N |
| 6. Were exposure(s) of interest measured prior to the outcome(s) being measured? | N | N | Y | N | Y | Y | Y | Y | Y | Y |
| 7. Was the timeframe sufficient so that one could reasonably expect to see an association between exposure and outcome if it existed? | NR | NR | NR | NR | NA | NA | NR | NA | NR | NR |
| 8. For exposures that can vary in amount or level, did the study examine different levels of the exposure as related to the outcome? | Y | Y | N | Y | Y | N | Y | NR | Y | Y |
| 9. Were exposure measures clearly defined, valid, reliable, and implemented consistently across all participants? | Y | N | Y | N | N | N | N | NR | N | Y |
| 10. Was the exposure(s) assessed more than once over time? | N | N | N | N | N | N | N | N | N | N |
| 11. Were the outcome measures clearly defined, valid, reliable, and implemented consistently across all participants? | N | Y | Y | N | Y | N | N | Y | Y | |
| 12. Were outcome assessors blinded to the exposure status of participants? | Y | N | N | N | N | N | N | N | N | N |
| 13. Was loss to follow-up after baseline 20% or less? | NA | NA | NA | NA | Y | Y | NA | Y | NA | NA |
| 14. Were key potential confounding variables measured and adjusted statistically for their impact on the relationship between exposure(s) and outcome(s)? | Y | Y | N | N | N | N | N | N | N | N |
| 1. Was the research question or objective clearly stated? | Y | Y | Y | Y | Y | N | Y | Y | Y | Y |
| 2. Was the study population clearly specified and defined? | Y | Y | Y | Y | Y | N | Y | Y | Y | Y |
| 3. Was the participation rate of eligible persons at least 50%? | N | NR | Y | NR | NR | NR | Y | Y | NR | Y |
| 4. Were all subjects selected or recruited from the same or similar populations? | Y | Y | Y | Y | Y | N | Y | Y | Y | Y |
| 5. Was a sample size justification, power description, or variance and effect estimates provided? | N | N | N | N | N | N | N | N | N | N |
| 6. Were exposure(s) of interest measured prior to the outcome(s) being measured? | Y | Y | N | Y | N | Y | N | N | N | N |
| 7. Was the timeframe sufficient so that one could reasonably expect to see an association between exposure and outcome if it existed? | NR | NA | NA | NA | NR | NR | NR | N | NR | N |
| 8. For exposures that can vary in amount or level, did the study examine different levels of the exposure as related to the outcome? | Y | NR | NR | Y | N | Y | N | N | Y | N |
| 9. Were exposure measures clearly defined, valid, reliable, and implemented consistently across all participants? | N | N | N | Y | N | N | Y | N | N | N |
| 10. Was the exposure(s) assessed more than once over time? | N | N | NA | N | N | N | N | N | N | N |
| 11. Were the outcome measures clearly defined, valid, reliable, and implemented consistently across all participants? | N | N | N | Y | Y | Y | Y | Y | Y | Y |
| 12. Were outcome assessors blinded to the exposure status of participants? | N | N | N | N | N | N | N | N | N | N |
| 13. Was loss to follow-up after baseline 20% or less? | NA | NA | NA | NA | NA | NA | NA | NA | NA | NA |
| 14. Were key potential confounding variables measured and adjusted statistically for their impact on the relationship between exposure(s) and outcome(s)? | N | N | N | N | N | N | N | N | N | N |
Fig. 2Pooled outcomes of poor knowledge, negative attitude and discriminatory intended behaviour
Characterizing mental-health-related public stigma: common conceptual gaps and perceptions among Indian youth
| H | 8 [ | 2 [ | ||
| Low I.Q. | M | |||
| Difficult to identify | M | |||
| Likely to harm others/ violent | M | |||
| Unpredictable behaviour | S | |||
| Withdrawn/ passive | S | |||
| Unable to manage emotions | S | |||
| Life satisfaction | S | |||
| Speak differently | S | |||
| Differences in sleeping, eating and memory | S | |||
| Multiple personalities associated with depression | S | |||
| H | 7 [ | 4 [ | ||
| Unlikely to be cured (recurrent, lifelong) | M | |||
| Marriage as a social intervention | M | |||
| Treatment by a spiritual healer | S | |||
| Heavy/ multiple medication/ hospitalisation needed | S | |||
| H | 3 [ | 5 [ | ||
| Genetic/ hereditary/ birth defect | M | |||
| Evil spirits and bad deeds | M | |||
| Brain damage | S | |||
| Stress | S | |||
| Social environment | S | |||
| Infectious transmission | S | |||
| Physical/ sexual abuse | S | |||
| Non-vegetarian diet | S | |||
| M | 4 [ | 3 [ | ||
| Associated with temporary harm | M | |||
| Locations to access | S | |||
| Prevalence of youth substance use | S | |||
| Treatment/ cessation services | S | |||
| Associated with suicide | S | |||
| S | 2 [ | – | ||
| Mental illness can happen to anyone | S | |||
| Suicide happens to few people | S | |||
| Suicide occurs more among women | S | |||
| H | 6 [ | 7 [ | ||
| Should not marry or should be married | ||||
| Unlikely to be good parents | S | |||
| Unable/ incapable of having a job | S | |||
| Cannot take decisions in their own treatment | S | |||
| Voting | S | |||
| Poor interpersonal or social skills | – | |||
| M | 4 [ | 4 [ | ||
| Likely to be violent | M | |||
| Likely to commit crimes (need punishment to prevent future attacks) | S | |||
| Intolerant of suicidal ideation | S | |||
| M | 3 [ | 1 [ | ||
| Desired physical separation (should be treated in different hospitals from people with physical illness, kept locked, in special schools) | M | |||
| H | 8 [ | 5 [ | ||
| Shame and blame (cowardly, inferior, lacking will power, should not | H | |||
| disclose illness, deliberately acting so) | ||||
| Fear | S | |||
| Pity/ sadness | S | |||
| Low status of psychiatry/ psychiatrists | S | |||
| Attention-seeking | S | |||
| M | 3 [ | 2 [ | ||
| People who use are ‘bad’ | S | |||
| Improves sexual activity | S | |||
| Proximity to users increases risk of substance use | S | |||
| Alcohol as a status symbol/ celebratory product | – | |||
| Use is common in social scenarios | – | |||
| M | 2 [ | 2 [ | ||
| Not taking a person with an epileptic seizure to the hospital, throwing | S | |||
| water on them or making them smell a shoe | ||||
| Treatment should be separate from physical problems or confinement | S | |||
| S | 2 [ | 2 [ | ||
| Not maintaining friendships | S | |||
| Laughing at persons with mental illness | S | |||
| S | 1 [ | 2 [ | ||
| Commit suicide if diagnosed with a mental illness | S | |||
| Not disclose own mental illness | S |