Siren Eriksen1,2, Ruth Louise Bartlett3,4, Ellen Karine Grov5, Tanja Louise Ibsen1, Elisabeth Wiken Telenius1, Anne Marie Mork Rokstad6,7. 1. Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway. 2. Lovisenberg Diaconal University College, Oslo, Norway. 3. Faculty of Health Studies, VID Specialized University, Oslo, Norway. 4. School of Health Sciences, University of Southampton, Southampton, United Kingdom. 5. Department of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway. 6. Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway, anne.marie.rokstad@aldringoghelse.no. 7. Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway, anne.marie.rokstad@aldringoghelse.no.
Abstract
INTRODUCTION: For people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia. METHOD: This article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis. RESULTS: Four categories were revealed: (1) rooted in the past - "I am the same as before"; (2) focussing on the present - "Nobody has tomorrow"; (3) thinking about the future - "What is going to happen to me?"; and (4) changes in the experience of self over time - "I used to…." The latent overall meaning was expressed as "being engaged with the dimensions of time." DISCUSSION/ CONCLUSION: The experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time. The Author(s). Published by S. Karger AG, Basel.
INTRODUCTION: For people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia. METHOD: This article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis. RESULTS: Four categories were revealed: (1) rooted in the past - "I am the same as before"; (2) focussing on the present - "Nobody has tomorrow"; (3) thinking about the future - "What is going to happen to me?"; and (4) changes in the experience of self over time - "I used to…." The latent overall meaning was expressed as "being engaged with the dimensions of time." DISCUSSION/ CONCLUSION: The experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time. The Author(s). Published by S. Karger AG, Basel.
Authors: Christoph Mueller; Pinar Soysal; Arvid Rongve; Ahmet Turan Isik; Trevor Thompson; Stefania Maggi; Lee Smith; Cristina Basso; Robert Stewart; Clive Ballard; John T O'Brien; Dag Aarsland; Brendon Stubbs; Nicola Veronese Journal: Ageing Res Rev Date: 2019-01-06 Impact factor: 10.895