Jeffrey R Hanna1, Eilís McCaughan2, Esther R Beck1, Cherith J Semple1,3. 1. School of Nursing, Ulster University, Newtownabbey, UK. 2. School of Nursing, Ulster University, Coleraine, UK. 3. South Eastern Health and Social Care Trust, Cancer Services Ulster Hospital, Belfast, UK.
Abstract
OBJECTIVE: Parents often feel ill-equipped to prepare their dependent children (<18 years old) for the death of a parent, necessitating support from professionals. The aim of this study is to explore health and social care professionals' (HSCPs) experiences and perceptions of providing supportive care to parents regarding their children, when a parent is dying from cancer. METHODS: Semi-structured qualitative interviews were conducted with 32 HSCPs, including nurses, allied health professionals, social workers and doctors from specialist or generalist roles, across acute or community sectors. RESULTS: HSCPs' perceptions of the challenges faced by many families when a parent is dying from cancer included: parental uncertainties surrounding if, when and how to tell the children that their parent was dying, the demands of managing everyday life, and preparing the children for the actual death of their parent. Many HSCPs felt ill-equipped to provide care to parents at end of life concerning their children. The results are discussed under two themes: (1) hurdles to overcome when providing psychological support to parents at end of life and (2) support needs of families for the challenging journey ahead. CONCLUSIONS: There appears to be a disparity between HSCPs' awareness of the needs of families when a parent is dying and what is provided in practice. HSCPs can have a supportive role and help equip parents, as they prepare their children for the death of their parent. Appropriate training and guideline provision could promote this important aspect of end of life care into practice.
OBJECTIVE: Parents often feel ill-equipped to prepare their dependent children (<18 years old) for the death of a parent, necessitating support from professionals. The aim of this study is to explore health and social care professionals' (HSCPs) experiences and perceptions of providing supportive care to parents regarding their children, when a parent is dying from cancer. METHODS: Semi-structured qualitative interviews were conducted with 32 HSCPs, including nurses, allied health professionals, social workers and doctors from specialist or generalist roles, across acute or community sectors. RESULTS:HSCPs' perceptions of the challenges faced by many families when a parent is dying from cancer included: parental uncertainties surrounding if, when and how to tell the children that their parent was dying, the demands of managing everyday life, and preparing the children for the actual death of their parent. Many HSCPs felt ill-equipped to provide care to parents at end of life concerning their children. The results are discussed under two themes: (1) hurdles to overcome when providing psychological support to parents at end of life and (2) support needs of families for the challenging journey ahead. CONCLUSIONS: There appears to be a disparity between HSCPs' awareness of the needs of families when a parent is dying and what is provided in practice. HSCPs can have a supportive role and help equip parents, as they prepare their children for the death of their parent. Appropriate training and guideline provision could promote this important aspect of end of life care into practice.
Keywords:
dying; end of life; health professionals; oncology; parental cancer; parental life-limiting illness; parents; psycho-oncology; psychosocial support; qualitative research
Authors: Jeffrey R Hanna; Elizabeth Rapa; Mary Miller; Madeleine Turner; Louise J Dalton Journal: Am J Hosp Palliat Care Date: 2021-09-19 Impact factor: 2.090
Authors: Jeffrey R Hanna; Elizabeth Rapa; Louise J Dalton; Rosemary Hughes; Tamsin McGlinchey; Kate M Bennett; Warren J Donnellan; Stephen R Mason; Catriona R Mayland Journal: Palliat Med Date: 2021-03-30 Impact factor: 4.762