Literature DB >> 33004505

How to fix the GDPR's frustration of global biomedical research.

Jasper Bovenberg1, David Peloquin2, Barbara Bierer3, Mark Barnes2,4, Bartha Maria Knoppers5.   

Abstract

Mesh：

Year:  2020        PMID： 33004505     DOI： 10.1126/science.abd2499

Source DB:  PubMed          Journal:  Science        ISSN： 0036-8075            Impact factor:   47.728


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  6 in total

Review 1.  International data governance for neuroscience.

Authors:  Damian O Eke; Amy Bernard; Jan G Bjaalie; Ricardo Chavarriaga; Takashi Hanakawa; Anthony J Hannan; Sean L Hill; Maryann E Martone; Agnes McMahon; Oliver Ruebel; Sharon Crook; Edda Thiels; Franco Pestilli
Journal:  Neuron       Date:  2021-12-15       Impact factor: 18.688

2.  The Data Governance Act and the EU's move towards facilitating data sharing.

Authors:  Mahsa Shabani
Journal:  Mol Syst Biol       Date:  2021-03       Impact factor: 11.429

3.  Coming Out to Play: Privacy, Data Protection, Children's Health, and COVID-19 Research.

Authors:  Michael J S Beauvais; Bartha Maria Knoppers
Journal:  Front Genet       Date:  2021-04-14       Impact factor: 4.599

4.  Revolutionizing Medical Data Sharing Using Advanced Privacy-Enhancing Technologies: Technical, Legal, and Ethical Synthesis.

Authors:  James Scheibner; Jean Louis Raisaro; Juan Ramón Troncoso-Pastoriza; Marcello Ienca; Jacques Fellay; Effy Vayena; Jean-Pierre Hubaux
Journal:  J Med Internet Res       Date:  2021-02-25       Impact factor: 5.428

5.  Digital phenotyping and sensitive health data: Implications for data governance.

Authors:  Ignacio Perez-Pozuelo; Dimitris Spathis; Jordan Gifford-Moore; Jessica Morley; Josh Cowls
Journal:  J Am Med Inform Assoc       Date:  2021-08-13       Impact factor: 4.497

Review 6.  Three decades of genetic privacy: a metaphoric journey.

Authors:  Bartha Maria Knoppers; Michael J S Beauvais
Journal:  Hum Mol Genet       Date:  2021-10-01       Impact factor: 6.150
  6 in total

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