| Literature DB >> 32983572 |
Alan Chi-Lun-Chiao1, Mohammed Chehata1, Kenneth Broeker1, Brendan Gates1, Leila Ledbetter2, Chad Cook3, Malene Ahern4, Daniel I Rhon5, Alessandra N Garcia6.
Abstract
OBJECTIVES: This overview of reviews aimed to identify (1) aspects of the patient experience when seeking care for musculoskeletal disorders from healthcare providers and the healthcare system, and (2) which mechanisms are used to measure aspects of the patient experience. DATA SOURCES: Four databases were searched from inception to December 20th, 2019. REVIEWEntities:
Keywords: Healthcare; Musculoskeletal disorder; Patient experience; Systematic review
Year: 2020 PMID: 32983572 PMCID: PMC7517681 DOI: 10.1186/s40945-020-00088-6
Source DB: PubMed Journal: Arch Physiother ISSN: 2057-0082
Modified themes of patients’ perceptions with musculoskeletal disorders regarding their experience with healthcare providers and health services
| Relational aspects | Functional aspects |
|---|---|
| (1) Psychological and emotional support from healthcare providers with empathy, compassion, respect, and kindness | (1) Effective, timely and individualized treatment |
| (2) Healthcare providers understanding of patient expectations, values, beliefs, preferences, and concerns regarding their condition and treatment | (2) Patients’ perceptions of healthcare providers’ expertise, professional competence, and clinical skills |
| (3) Patients information needs of their conditions, treatment options, benefits, and harms | (3) Physical support and environmental needs (e.g., clean, safe, comfortable facilities) |
| (4) Involvement and engagement of patients and their family during decision-making process | (4) Continuity and coordination between transitions of care |
| (5) Transparent and clear communication between patients and healthcare providers focused on tone and honesty | (5) Privacy when seeking health services |
Fig. 1Study flow diagram
Descriptive characteristics of the included reviews. (n = 30)
| Review | Systematic or scoping review | Country | Settings | No. of studies | Designs of the included studies | Musculoskeletal disorder | Outcomes |
|---|---|---|---|---|---|---|---|
| Verbeek, 2004 [ | Systematic review | The Netherlands | Not reported | 20 | 12 qualitative, 8 quantitative | Non-specific low back pain | Relational and functional aspects |
| O’Neill, 2007 [ | Systematic review and meta-synthesis | United Kingdom | Hospitals, a church or a senior center, or orthopedic surgeons waiting lists | 10 | All 10 articles are qualitative studies. Four of the studies applied a Grounded Theory approach to analyze the data; four adopted a Content Analysis approach, one applied Interpretative Phenomenology and one Interpretative Phenomenological Analysis. | Patients with osteoarthritis who either have already received total knee replacement or are on the waiting lists of knee replacement surgery or do not want to have surgery. | Relational and functional aspects |
| Slade, 2010 [ | Systematic review | United Kingdom | Not reported | 11 | Not reported | Low back pain | Relational and functional aspects |
| Campbell, 2011 [ | Systematic review | United Kingdom | Not reported | 17 | 7 cohort studies, 10 cross-sectional studies | Non-specific spinal pain | Relational and functional aspects |
| Hush, 2011 [ | Systematic review and meta-analysis | Australia | Private clinics, hospital outpatient clinics, spine clinics, and an athlete rehabilitation clinic | 15 | 9 cross-sectional patient surveys, 2 clinical trials, 1 longitudinal cohort study, and 3 qualitative studies | Seven studies investigated patients with mixed musculoskeletal or soft tissue injuries, 6 studies investigated patients with back pain, and one study investigated athletes with lower-limb injuries. | Relational and functional aspects |
| Doyle, 2013 [ | Systematic review | United Kingdom | Primary and secondary care including hospitals and primary care centers. | 55 | 15 systematic reviews/meta-analysis, 40 individual studies | Varied (cardiac, cancer, diabetes, pulmonary, acute, hypertension, chronic, pain, mental health, general, other) | Relational and functional aspects |
| Hopayian, 2014 [ | Scoping review | United Kingdom | Spinal triage service, general practice, pain clinic, back clinic (osteopath and acupuncturist), physiotherapy, X-ray department, physiotherapy, and acute care services, chiropractic, university campus, community, back pain rehabilitation | 28 | Qualitative studies, mixed-method studies, questionnaire surveys using open questions to collect and interpret data qualitatively, and qualitative studies that were parallel to or imbedded in trials or observational studies. | Low back pain, sciatica | Relational and functional aspects |
| Slade, 2014 [ | Systematic review and meta-analysis | United Kingdom | Not reported | 15 | 15 qualitative studies | Chronic non-specific chronic low back pain | Relational and functional aspects |
| Zuidema, 2015 [ | Scoping review | The Netherlands and Belgium | Not reported | 17 | Cross-sectional studies, and a single group longitudinal design | Rheumatoid arthritis | Relational and functional aspects |
| Fu, 2016 [ | Systematic review | United Kingdom | Not reported | 10 | Not reported | Chronic back pain | Relational and functional aspects |
| O’Keeffe, 2016 [ | Systematic review and meta-synthesis | Ireland and Australia | Not reported | 13 | 5 used semi-structured interview, 5 used focus group, 1 used Cross-case analysis/interview, 1 used nominal group technique interview, and 1 used mixed-methods | Patients with subacute, chronic, non-specific or intermittent low back pain, neck pain, or musculoskeletal conditions. Physical therapists working in primary care, for patients who have undergone torture or specializing in Norwegian psychomotor physical therapy | Relational and functional aspects |
| McMurray, 2016 [ | Systematic review | Canada | Outpatient rehabilitative care, inpatient rehabilitative care hospital, rehabilitation in acute care hospitals and hospital to the community | 33 | 14 used a quantitative method, 2 used survey, 10 used Cross-sectional, 4 used mixed methods, 1 used comparative psychometric testing, 1 used randomized controlled trial and 1 is a descriptive, structured literature review. | Heterogeneous, described as those characterized by issues with musculoskeletal disorders, stroke/neurology, frail/older adults and medical complexity, multiple sclerosis, occupation-related musculoskeletal disorders, cardiopulmonary disorders, or rheumatologic disorders or were discharged patients, inpatients, patients with stroke and their caregivers, patients and their physicians, patients, patients receiving unspecified rehabilitative care, or amputees | Relational and functional aspects |
| Wluka, 2016 [ | Scoping review | Australia | Not reported | 323 | Not reported | Inflammatory arthritis specifically rheumatoid arthritis and ankylosing spondylitis, osteoarthritis, back pain, neck pain, and osteoporosis | Relational and functional aspects |
| Chou, 2017 [ | Scoping review | Australia | Rheumatology clinics, outpatient screening unit at a teaching hospital, fracture clinic of a large teaching hospital, health maintenance organization, centers performing bone densitometry, outpatient clinics in osteoporosis centers, emails, advertisements in a tertiary hospital medical center newsletter, National Osteoporosis Society support groups, osteoporosis exercise classes, South Asian community centers, urban fracture clinic, academic primary care sites | 33 | 19 studies used quantitative methods, 14 used qualitative methods | Osteoporosis (patients were classified as having osteoporosis based on bone densitometry in 7 studies, requiring prescription medications in 6 studies or based on previous fragility fractures or high risk of osteoporotic fractures in 8 studies. The diagnosis of osteoporosis or osteopenia was unspecified in 13 studies) | Relational and functional aspects |
| Papandony, 2017 [ | Scoping review | Australia | Public and private hospitals, acupuncture clinics, pharmacies, outpatient orthopedic clinic at local hospital, private general practice clinic, retirement, own home, primary care community clinics, solo practitioners’ walk-in clinics, hospital-based family medicine units, participants from long-term studies, ambulatory care clinic, regional orthocenter, single surgeon practice, university medical center | 21 | 9 studies used quantitative methods, including written questionnaires, computer questionnaires or interviews. 12 studies used qualitative methods including focus groups and individual interviews. 1 study employed both quantitative and qualitative methods with interviews, patient diaries, and group teaching sessions | Osteoarthritis | Relational and functional aspects |
| Wijma, 2017 [ | Systematic review | Belgium and the Netherlands | Private physiotherapy practices, health sciences center in a university, respondent’s or researcher’s workplace, home, onsite observation in an academic medical center, or national health service hospital; physiotherapy practices, rehab centers in various countries | 14 | 4 used grounded theory; 1 used nominal group technique; 2 used ethnography; 1 used a descriptive qualitative approach; 1 used phenomenography; 2 used phenomenology; and 3 have no specific design | Studies recruited participants not limited to patients with musculoskeletal disorders as well as therapists working in various fried of rehabilitation setting | Relational and functional aspects |
| Hulen, 2017 [ | Systematic review | United States | Hospitals, rehab centers, clinics | 22 | Qualitative ( | Rheumatoid arthritis | Relational and functional aspects |
| Gillespie, 2017 [ | Scoping review | United Kingdom and Canada | Pre-hospital care, acute medical ward, Medical Specialties, Obstetric Care, Hospital Care, geriatric care, General practice, Palliative care, Outpatient physiotherapy/ rehabilitation services, Outpatient physiotherapy/ rehabilitation services, Careers/Cancer service uses/ older people/ men’s health/ parents/ human immunodeficiency virus service users, Fertility clinic, Intensive care unit, Community hospice programs, Oncology, Primary care, Ambulatory care, Academic medical center, Psychiatric care, Lymphoma care, Geriatric ward, Palliative care, illicit drug users, regional hospital | 44 | Primary and secondary studies using qualitative, quantitative, and mixed-methods designs | Not reported | Relational and functional aspects |
| Chou, 2018 [ | Scoping review | Australia | Family care center in Memorial Hospital, general practitioner practices, outpatient clinics, chiropractic offices, physical therapy offices and departments, advertisements, community hospitals, rehab centers, pain centers, campus-wide emails and word of mouth, poster advertisements, senior centers, spinal clinics, and computerized databases | 43 | 30 qualitative, 12 quantitative, and 1 mixed-methods | Non-specific low back pain, with or without leg pain, excluding back pain from fractures, malignancy, infection, and inflammatory spinal disorders. | Relational and functional aspects |
| Chou, 2018 [ | Scoping review | Australia | Hospitals, rehab centers, clinics | 50 | 35 qualitative, 14 quantitative, 1 mixed-methods study | Chronic low back pain | Relational aspects |
| Chou, 2018 [ | Scoping review | Australia | Not reported | 30 | 16 qualitative, 11 quantitative and 3 mixed-methods studies | Osteoarthritis using American College of Rheumatology criteria in 3 studies, radiographic change and pain in 4 studies, self-report in 6 studies, chart review in 3 studies, clinical diagnosis in 4 studies, and by undefined methods in 8 studies | Relational aspects |
| Segan, 2018 [ | Scoping review | Australia | Hospital outpatient rheumatology clinics, nurse-led university hospital clinics, medical centers, the United States of America National Psoriasis Foundation, private rheumatology clinics, patients obtained through internet and email, patients recruited from outpatient rheumatoid arthritis clinics from National Health Service trusts, patients recruited from members of the United Kingdom National Rheumatoid Arthritis Society, private practices, patients recruited from arthritis database, | 27 | 16 qualitative, 9 quantitative, 2 mixed-methods | Inflammatory arthritis | Relational and functional aspects |
| Rothmann, 2018 [ | Systematic review and meta-synthesis | Denmark and Australia | Not reported | 10 | Individual interviews consisting of both face-to-face and telephone interviews ( | Osteoporosis & Individuals with at least one risk factor of osteoporosis & t-score ≤ − 2.5 or a fragility fracture & Individuals aged 45 years and above | Relational aspects |
| Raybould, 2018 [ | Systematic review | United Kingdom | Secondary care populations, primary care, community, or mixed settings. | 16 | 11 single semi-structured interviews and 6 focus groups | Osteoporosis, vertebral fracture, osteopenia. | Relational and functional aspects |
| Chou, 2018 [ | Scoping review | Australia | Not reported | 44 | 25 qualitative, 18 quantitative and 1 mixed-methods study | Low back pain | Relational and functional aspects |
| Rossettini, 2018 [ | Systematic review and meta-synthesis | Italy and Canada | Rheumatology outpatient clinics, inpatient wards, disease registries or databases, hospital outpatient clinics, private or community rheumatology clinics, inpatient, outpatient, databases | 11 | Not reported | Individuals experiencing musculoskeletal pain defined as the consequence of everyday activities that repeatedly or unusually stress the system, or due to either acute traumatic events or to chronic complaints | Relational and functional aspects |
| Lim, 2019 [ | Systematic review | Australia | Primary care practice, tertiary pain clinics, hospital or rehabilitation clinics, specialist spine or osteopathy clinics, general community, research centers, education forum, occupational health clinic | 41 | 33 qualitative, 5 quantitative and 3 used mixed methods | Non-specific low back pain, with or without leg pain, excluding back pain related to fractures, malignancy, infection, and inflammatory back conditions | Relational and functional aspects |
| Connelly, 2019 [ | Systematic review | Australia | Hospitals, rehab centers, clinics | 29 | 11 quantitative, 14 qualitative and 4 mixed methods | Rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, reactive arthritis, and other types of unspecified inflammatory arthritis | Relational and functional aspects |
| Asif, 2019 [ | Scoping review | Canada | Transitions of patients between settings (e.g., transfer of patient from an acute care facility to a nursing home, or rehabilitation to home) | 11 | Most included studies used a qualitative design ( | Hip fracture | Functional aspects |
| Davenport, 2019 [ | Systematic review | United Kingdom | Outpatient/community and an inpatient stay. | 18 | 10 qualitative design, 1 convergent mixed methods design, 1 interpretive phenomenology, 1 focused ethnographic design, 5 did not state a theoretical approach | Mixed, stroke ( | Relational aspects |
Methodological quality of included reviews. (AMSTAR-2a)
| Reviews | Q1 | Q2c | Q3 | Q4 | Q5 | Q6 | Q7 | Q8 | Q9c | Q10 | Q11c | Q12c | Q13c | Q14 | Q15c | Q16 | Qualityb |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Hopayian, 2014 [ | Y | NA | N | PY | Y | Y | N | PY | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Zuidema, 2015 [ | Y | NA | N | PY | Y | Y | N | N | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Wluka, 2016 [ | Y | NA | N | PY | N | N | N | PY | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Chou, 2017 [ | Y | NA | N | PY | Y | Y | N | Y | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Papandony, 2017 [ | Y | NA | N | PY | Y | Y | N | Y | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Gillespie, 2017 [ | Y | NA | N | PY | Y | Y | N | PY | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Chou, 2018 [ | Y | NA | N | PY | Y | N | N | Y | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Chou, 2018 [ | Y | NA | Y | PY | Y | Y | N | Y | NA | N | NA | NA | NA | N | NA | Y | Moderate |
| Chou, 2018 [ | Y | NA | Y | PY | Y | Y | N | Y | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Segan, 2018 [ | Y | NA | Y | PY | N | N | N | PY | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Chou, 2018 [ | Y | NA | Y | PY | Y | N | N | PY | NA | N | NA | NA | NA | Y | NA | Y | Moderate |
| Asif, 2019 [ | Y | NA | N | PY | Y | N | N | PY | NA | Y | NA | NA | NA | Y | NA | Y | Moderate |
| Verbeek, 2004 [ | Y | N | N | PY | N | Y | N | PY | N | N | NA | NA | N | Y | NA | Y | Low |
| Slade, 2010 [ | Y | N | Y | PY | N | N | N | N | N | N | NA | NA | N | Y | NA | Y | Critically low |
| Campbell, 2011 [ | Y | N | Y | PY | Y | N | N | PY | Y | N | NA | NA | N | Y | NA | Y | Low |
| Doyle, 2013 [ | Y | PY | N | N | N | N | N | Y | N | N | NA | NA | N | Y | NA | Y | Critically low |
| Fu, 2016 [ | Y | N | N | PY | N | N | N | N | N | N | NA | NA | Y | Y | NA | Y | Critically low |
| Hulen, 2016 [ | Y | N | Y | PY | Y | Y | PY | PY | N | N | NA | NA | N | N | NA | Y | Low |
| McMurray, 2016 [ | Y | N | N | Y | Y | Y | N | Y | N | N | NA | NA | N | Y | NA | Y | Critically low |
| Wijma, 2017 [ | Y | PY | Y | Y | N | N | N | Y | Y | N | NA | NA | Y | Y | NA | Y | Moderate |
| Raybould, 2018 [ | Y | N | N | PY | N | Y | N | PY | PY | N | NA | NA | N | N | NA | Y | Low |
| Lim, 2019 [ | Y | PY | Y | PY | Y | Y | N | PY | Y | N | NA | NA | Y | Y | NA | Y | Low |
| Connelly, 2019 [ | Y | PY | Y | PY | N | Y | Y | PY | Y | N | NA | NA | Y | N | NA | Y | Moderate |
| Davenport, 2019 [ | Y | N | Y | PY | Y | Y | N | PY | N | Y | NA | NA | N | Y | NA | Y | Critically low |
| O’Neill, 2007 [ | Y | N | N | N | N | N | N | Y | N | N | Y | N | N | Y | N | Y | Critically low |
| Hush, 2011 [ | Y | PY | Y | PY | N | Y | N | PY | N | N | Y | N | Y | Y | N | N | Low |
| Slade, 2014 [ | Y | N | Y | PY | Y | Y | N | PY | Y | N | Y | N | N | N | N | Y | Low |
| O’Keeffe, 2016 [ | Y | Y | Y | Y | Y | Y | N | PY | PY | N | Y | N | N | Y | N | Y | Low |
| Rothmann, 2018 [ | Y | Y | N | PY | N | N | N | PY | PY | N | Y | N | Y | Y | N | Y | Moderate |
| Rossettini, 2018 [ | Y | Y | Y | PY | Y | Y | Y | Y | Y | N | Y | Y | Y | Y | N | Y | Moderate |
aA MeaSurement Tool to Assess systematic Reviews (AMSTAR-2) tool. bcalculated by AMSTAR-2 checklist [36] Y yes, N no, PY partial yes, NA not applicable. cQ2, Q9, Q13 are not applicable for scoping reviews, and Q11, Q12, and Q15 are only applicable for studies with meta-analysis
Q1. Did the research questions and inclusion criteria for the review include the components of PICO? Q2. Did the report of the review contain an explicit statement that the review methods were established prior to the conduct of the review and did the report justify any significant deviations from the protocol? Q3. Did the review authors explain their selection of the study designs for inclusion in the review? Q4. Did the review authors use a comprehensive literature search strategy? Q5. Did the review authors perform study selection in duplicate? Q6. Did the review authors perform data extraction in duplicate? Q7. Did the review authors provide a list of excluded studies and justify the exclusions? Q8. Did the review authors describe the included studies in adequate detail? Q9. Did the review authors use a satisfactory technique for assessing the risk of bias in individual studies that were included in the review? Q10. Did the review authors report on the sources of funding for the studies included in the review? Q11. If meta-analysis was performed did the review authors use appropriate methods for statistical combination of results? RCTs Q12. If meta-analysis was performed, did the review authors assess the potential impact of RoB in individual studies on the results of the meta-analysis or other evidence synthesis? Q13. Did the review authors account for RoB in individual studies when interpreting/ discussing the results of the review? Q14. Did the review authors provide a satisfactory explanation for, and discussion of, any heterogeneity observed in the results of the review? Q15. If they performed quantitative synthesis did the review authors carry out an adequate investigation of publication bias (small study bias) and discuss its likely impact on the results of the review? Q16. Did the review authors report any potential sources of conflict of interest, including any funding they received for conducting the review?
Identified themes of the patient experience from included reviews
| Patient Experience Outcomes | Measure (data collection method) | No. of reviews (%) | Musculoskeletal disorders | Findings |
|---|---|---|---|---|
| Psychological support | Survey, questionnaires, interviews, telephone interviews, focus groups, narrative methods, mixed methods | 13 (43%) | Non-specific low back pain [ | Establishes rapport, enables emotional comfort, enables connectedness [ |
| Understanding (patient expectations) | Survey, questionnaire, interviews, telephone interviews, focus groups | 18 (60%) | Non-specific low back pain [ | Respect, being listened to, empathy, mutual understanding [ |
| Information needs (education) | Cross-sectional surveys, questionnaire, interviews, telephone interviews, focus groups, diaries, video recording | 24 (80%) | Non-specific low back pain [ | Patients’ perceived need to obtain health information from a variety of sources and health information content about the diseases [ |
| Shared decision-making (patient involvement and engagement) | Survey, questionnaire, interviews, telephone interviews | 12 (40%) | Non-specific low back pain [ | Shared decision-making [ |
| Communication | Survey, questionnaire, interviews, telephone interviews, dairies | 16 (53%) | Non-specific low back pain [ | Good communication skills [ |
| Effective, individualized treatment | Survey, questionnaire, interviews, telephone interviews, diaries | 12 (40%) | Non-specific low back pain [ | Individualized, patient-centered care [ |
| Trusted expertise | Cross-sectional surveys, questionnaire, interviews, telephone interviews, diaries, video recording, focus groups | 16 (53%) | Non-specific low back pain [ | Perception of the health professionals’ role [ |
| Physical and environmental needs (social support) | Survey, questionnaire, interviews, diaries | 16 (53%) | Non-specific low back pain [ | Social connectedness, context and social support [ |
| Continuity of care | Survey, questionnaire, interviews, diaries | 13 (43%) | Non-specific low back pain [ | Feasibility and availability of healthcare service [ |
| Privacy | Survey, questionnaire | 3 (10%) | Non-specific low back pain [ | Respect for patient privacy [ |