Literature DB >> 27976535

Patient goals in rheumatoid arthritis care: A systematic review and qualitative synthesis.

Elizabeth Hulen1, Ayla Ervin1, Allison Schue1, Gina Evans-Young2, Somnath Saha1,3, Edward H Yelin2, Jennifer L Barton1,3.   

Abstract

OBJECTIVE: During the clinical encounter, rheumatoid arthritis (RA) patient goals for care often go unexplored. The aim of the present systematic review was to identify needs, goals and expectations of RA patients in order better to guide systematic elicitation of patient goals in clinical encounters.
METHODS: An academic librarian searched MEDLINE, PsychINFO and the Cochrane Library using a specialized algorithm developed to identify articles about patient goals for RA care. Investigators screened search results according to prespecified inclusion criteria and then reviewed included articles and synthesized the evidence qualitatively, utilizing an inductive approach.
RESULTS: A total of 909 titles were retrieved in the literature search, of which 871 were excluded after a title/abstract screen. Of the remaining 38, 22 papers were included in the final review. Investigators identified four major themes in the literature: (a) the bodily experience of RA; (b) achieving normalcy and maintaining wellness; (c) social connectedness and support; and (d) interpersonal and healthcare system interactions.
CONCLUSION: Patients' goals when receiving care for RA are multidimensional and span several facets of everyday life. Goals for RA care should be collaboratively developed between patients and providers, with particular attention to the patient's life context and priorities.
Copyright © 2016 John Wiley & Sons, Ltd.

Entities:  

Keywords:  Goals; patient-centred care; patient-physician communication; rheumatoid arthritis

Mesh:

Year:  2016        PMID: 27976535      PMCID: PMC5471121          DOI: 10.1002/msc.1173

Source DB:  PubMed          Journal:  Musculoskeletal Care        ISSN: 1478-2189


  37 in total

Review 1.  Goal-setting for behavior change in primary care: an exploration and status report.

Authors:  Thomas Bodenheimer; Margaret A Handley
Journal:  Patient Educ Couns       Date:  2009-06-27

Review 2.  Review: treat to target in rheumatoid arthritis: fact, fiction, or hypothesis?

Authors:  Daniel H Solomon; Asaf Bitton; Jeffrey N Katz; Helga Radner; Erika M Brown; Liana Fraenkel
Journal:  Arthritis Rheumatol       Date:  2014-04       Impact factor: 10.995

3.  It means everything: continuing normality of everyday life for people with rheumatoid arthritis in early remission.

Authors:  T M Kristiansen; J Primdahl; R Antoft; K Hørslev-Petersen
Journal:  Musculoskeletal Care       Date:  2012-05-24

4.  Rheumatology outcomes: the patient's perspective.

Authors:  Alison Carr; Sarah Hewlett; Rod Hughes; Helene Mitchell; Sarah Ryan; Maggie Carr; John Kirwan
Journal:  J Rheumatol       Date:  2003-04       Impact factor: 4.666

5.  Impact of computer-generated personalized goals on cholesterol lowering.

Authors:  Claresa S Levetan; Karen R Dawn; James F Murray; Jeffrey J Popma; Robert E Ratner; David C Robbins
Journal:  Value Health       Date:  2005 Nov-Dec       Impact factor: 5.725

6.  What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Authors:  T Sanderson; M Morris; M Calnan; P Richards; S Hewlett
Journal:  Arthritis Care Res (Hoboken)       Date:  2010-05       Impact factor: 4.794

7.  Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority.

Authors:  Turid Heiberg; Tore K Kvien
Journal:  Arthritis Rheum       Date:  2002-08

8.  Expectations of new treatment in rheumatoid arthritis: developing a patient-generated questionnaire.

Authors:  Darija Hofmann; Fowzia Ibrahim; Diana Rose; David L Scott; Andrew Cope; Til Wykes; Heidi Lempp
Journal:  Health Expect       Date:  2013-04-25       Impact factor: 3.377

9.  Patient priorities of care in rheumatology outpatient clinics: a qualitative study.

Authors:  Vicky Ward; Jackie Hill; Claire Hale; Howard Bird; Helen Quinn; Ruth Thorpe
Journal:  Musculoskeletal Care       Date:  2007-12

10.  When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make?

Authors:  Michele Heisler; Sandeep Vijan; Robert M Anderson; Peter A Ubel; Steven J Bernstein; Timothy P Hofer
Journal:  J Gen Intern Med       Date:  2003-11       Impact factor: 5.128

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  8 in total

1.  Experience and Context Shape Patient and Clinician Goals For Treatment of Rheumatoid Arthritis: A Qualitative Study.

Authors:  Jennifer L Barton; Elizabeth Hulen; Allison Schue; Edward H Yelin; Sarah S Ono; Anais Tuepker; Christopher J Koenig
Journal:  Arthritis Care Res (Hoboken)       Date:  2018-11       Impact factor: 4.794

2.  High-Need Patients' Goals and Goal Progress in a Veterans Affairs Intensive Outpatient Care Program.

Authors:  Kristie Y Hsu; Cindie Slightam; Jonathan G Shaw; Aaron Tierney; Debra L Hummel; Mary K Goldstein; Evelyn T Chang; Derek Boothroyd; Donna M Zulman
Journal:  J Gen Intern Med       Date:  2019-05-28       Impact factor: 5.128

3.  A 30-Day Adjunct Wellness Intervention for the Management of Extra-Articular Symptoms of Rheumatoid Arthritis: A Formative Study.

Authors:  Tara Hutson; Nicole Murman; Donna Rolin; Rakesh Jain; Andrew J Laster; Steven P Cole; Saundra Jain
Journal:  J Evid Based Integr Med       Date:  2022 Jan-Dec

Review 4.  Patients' perceptions with musculoskeletal disorders regarding their experience with healthcare providers and health services: an overview of reviews.

Authors:  Alan Chi-Lun-Chiao; Mohammed Chehata; Kenneth Broeker; Brendan Gates; Leila Ledbetter; Chad Cook; Malene Ahern; Daniel I Rhon; Alessandra N Garcia
Journal:  Arch Physiother       Date:  2020-09-24

5.  Are We on the Same Page?: A Cross-Sectional Study of Patient-Clinician Goal Concordance in Rheumatoid Arthritis.

Authors:  Jennifer L Barton; Sheila Markwardt; Meike Niederhausen; Allison Schue; Jacob Dougherty; Patricia Katz; Somnath Saha; Edward H Yelin
Journal:  Arthritis Care Res (Hoboken)       Date:  2021-09-27       Impact factor: 4.794

6.  Living life precariously with rheumatoid arthritis - a mega-ethnography of nine qualitative evidence syntheses.

Authors:  Fran Toye; Kate Seers; Karen Louise Barker
Journal:  BMC Rheumatol       Date:  2019-02-06

7.  "You can't touch, you can't bond": Exploring COVID-19 pandemic impacts on rheumatoid arthritis patient goals and communication with clinicians.

Authors:  Elizabeth Hulen; Christopher Larsen; Rachel Matsumoto; Patricia Katz; Jennifer L Barton
Journal:  Musculoskeletal Care       Date:  2022-09-08

Review 8.  New galaxies in the universe of shared decision-making and rheumatoid arthritis.

Authors:  Jennifer L Barton; Simon Décary
Journal:  Curr Opin Rheumatol       Date:  2020-05       Impact factor: 4.941

  8 in total

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