Literature DB >> 21171753

Trajectories of emotional well-being in mothers of adolescents and adults with autism.

Erin T Barker1, Sigan L Hartley, Marsha Mailick Seltzer, Frank J Floyd, Jan S Greenberg, Gael I Orsmond.   

Abstract

Raising an adolescent or adult child with a developmental disability confers exceptional caregiving challenges on parents. We examined trajectories of 2 indicators of emotional well-being (depressive symptoms and anxiety) in a sample of primarily Caucasian mothers (N = 379; M age = 51.22 years at Time 1) of adolescent and adult children with an autism spectrum disorder (ASD; M age = 21.91 years at Time 1, 73.2% male). We also investigated within-person associations of child context time-varying covariates (autism symptoms, behavior problems, residential status) and maternal context time-varying covariates (social support network size and stressful family events) with the trajectories of emotional well-being. Data were collected on 5 occasions across a 10-year period. Average patterns of stable (depressive symptoms) and improved (anxiety) emotional well-being were evident, and well-being trajectories were sensitive to fluctuations in both child and maternal context variables. On occasions when behavior problems were higher, depressive symptoms and anxiety were higher. On occasions after which the grown child moved out of the family home, anxiety was lower. Anxiety was higher on occasions when social support networks were smaller and when more stressful life events were experienced. These results have implications for midlife and aging families of children with an ASD and those who provide services to these families. PsycINFO Database Record (c) 2011 APA, all rights reserved.

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Year:  2011        PMID: 21171753      PMCID: PMC3074104          DOI: 10.1037/a0021268

Source DB:  PubMed          Journal:  Dev Psychol        ISSN: 0012-1649


  38 in total

1.  Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder.

Authors:  Paul T Shattuck; Marsha Mailick Seltzer; Jan S Greenberg; Gael I Orsmond; Daniel Bolt; Sheilah Kring; Julie Lounds; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2006-12-05

2.  Mother-child relationship quality among adolescents and adults with autism.

Authors:  Gael I Orsmond; Marsha Mailick Seltzer; Jan S Greenberg; Marty Wyngaarden Krauss
Journal:  Am J Ment Retard       Date:  2006-03

3.  Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism.

Authors:  Richard P Hastings; Hanna Kovshoff; Nicholas J Ward; Francesca degli Espinosa; Tony Brown; Bob Remington
Journal:  J Autism Dev Disord       Date:  2005-10

4.  Latent trajectory classes of depressive and anxiety disorders from adolescence to adulthood: descriptions of classes and associations with risk factors.

Authors:  Thomas M Olino; Daniel N Klein; Peter M Lewinsohn; Paul Rohde; John R Seeley
Journal:  Compr Psychiatry       Date:  2009-08-27       Impact factor: 3.735

5.  Stability and interpersonal agreement of the interview-based diagnosis of autism.

Authors:  A Hill; S Bölte; G Petrova; D Beltcheva; S Tacheva; F Poustka
Journal:  Psychopathology       Date:  2001 Jul-Aug       Impact factor: 1.944

6.  Associations of social support and hardiness with mental health among mothers of adult children with intellectual disability.

Authors:  H Ben-Zur; I Duvdevany; L Lury
Journal:  J Intellect Disabil Res       Date:  2005-01

7.  Mothers of young adults with intellectual disability: multiple roles, ethnicity and well-being.

Authors:  A Eisenhower; J Blacher
Journal:  J Intellect Disabil Res       Date:  2006-12

8.  The contribution of marital quality to the well-being of parents of children with developmental disabilities.

Authors:  J Kersh; T T Hedvat; P Hauser-Cram; M E Warfield
Journal:  J Intellect Disabil Res       Date:  2006-12

9.  Stability and change in health, functional abilities, and behavior problems among adults with and without Down syndrome.

Authors:  Anna J Esbensen; Marsha Mailick Seltzer; Marty Wyngaarden Krauss
Journal:  Am J Ment Retard       Date:  2008-07

Review 10.  Epidemiological surveys of autism and other pervasive developmental disorders: an update.

Authors:  Eric Fombonne
Journal:  J Autism Dev Disord       Date:  2003-08
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  42 in total

1.  Daily health symptoms of mothers of adolescents and adults with fragile x syndrome and mothers of adolescents and adults with autism spectrum disorder.

Authors:  Leann E Smith; Marsha Mailick Seltzer; Jan S Greenberg
Journal:  J Autism Dev Disord       Date:  2012-09

2.  Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders.

Authors:  Leann E Smith; Jan S Greenberg; Marsha Mailick Seltzer
Journal:  J Autism Dev Disord       Date:  2012-09

3.  Differential sensitivity to life stress in FMR1 premutation carrier mothers of children with fragile X syndrome.

Authors:  Marsha Mailick Seltzer; Erin T Barker; Jan S Greenberg; Jinkuk Hong; Christopher Coe; David Almeida
Journal:  Health Psychol       Date:  2011-12-12       Impact factor: 4.267

4.  Stressful life events and daily stressors affect awakening cortisol level in midlife mothers of individuals with autism spectrum disorders.

Authors:  Jen D Wong; Marsha M Seltzer; Jan S Greenberg; Jinkuk Hong; David M Almeida; Christopher L Coe
Journal:  Aging Ment Health       Date:  2012-05-29       Impact factor: 3.658

5.  Maternal Depression and Early Intervention: A Call for an Integration of Services.

Authors:  Shanna L Alvarez; Samantha Meltzer-Brody; Marcia Mandel; Linda Beeber
Journal:  Infants Young Child       Date:  2015 Jan-Mar

6.  TARGETED TREATMENTS IN AUTISM AND FRAGILE X SYNDROME.

Authors:  C Kağan Gürkan; Randi J Hagerman
Journal:  Res Autism Spectr Disord       Date:  2012-10-01

7.  Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts.

Authors:  Kristin A Long; Monica Gordillo; Gael I Orsmond
Journal:  Autism Adulthood       Date:  2020-09-03

8.  Psychometric properties of the EuroQol Five Dimensional Questionnaire (EQ-5D-3L) in caregivers of autistic children.

Authors:  Rahul Khanna; Krutika Jariwala; John P Bentley
Journal:  Qual Life Res       Date:  2013-04-25       Impact factor: 4.147

9.  Respite care, marital quality, and stress in parents of children with autism spectrum disorders.

Authors:  Amber Harper; Tina Taylor Dyches; James Harper; Susanne Olsen Roper; Mikle South
Journal:  J Autism Dev Disord       Date:  2013-11

10.  Stress and family quality of life in parents of children with autism spectrum disorder: parent gender and the double ABCX model.

Authors:  Rebecca L McStay; David Trembath; Cheryl Dissanayake
Journal:  J Autism Dev Disord       Date:  2014-12
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