Literature DB >> 32928046

Demographic and Clinical Characteristics Associated With Adherence to Guideline-Based Polysomnography in Children With Down Syndrome.

Philip D Knollman1,2, Christine H Heubi1,2,3, Susan Wiley4,5, David F Smith1,2,3, Sally R Shott1,2, Stacey L Ishman1,2,3, Jareen Meinzen-Derr5,6.   

Abstract

OBJECTIVES: To compare the demographic and clinical characteristics of children with Down syndrome who did and did not receive polysomnography to evaluate for obstructive sleep apnea after publication of the American Academy of Pediatrics' guidelines recommending universal screening by age 4 years. STUDY
DESIGN: Retrospective cohort study.
SETTING: Single tertiary pediatric hospital.
METHODS: Review was conducted of children with Down syndrome born between 2007 and 2012. Children who obtained polysomnography were compared with children who did not, regarding demographic data, socioeconomic status, and comorbidities.
RESULTS: We included 460 children with Down syndrome; 273 (59.3%) received at least 1 polysomnogram, with a median age of 3.6 years (range, 0.1-8.9 years). There was no difference in the distribution of sex, insurance status, or socioeconomic status between children who received polysomnography and those who did not. There was a significant difference in race distribution (P = .0004) and distance from home to the medical center (P < .0001) between groups. Among multiple medical comorbidities, only children with a history of hypothyroidism (P = .003) or pulmonary aspiration (P = .01) were significantly more likely to have obtained polysomnography.
CONCLUSIONS: Overall, 60% of children with Down syndrome obtained a polysomnogram. There was no difference between groups by payer status or socioeconomic status. A significant difference in race distribution was noted. Proximity to the medical center and increased medical need appear to be associated with increased likelihood of obtaining a polysomnogram. This study illustrates the need for improvement initiatives to increase the proportion of patients receiving guideline-based screening.

Entities:  

Keywords:  Down syndrome; birth cohort; disparities; obstructive sleep apnea; polysomnography; sleep study

Mesh:

Year:  2020        PMID: 32928046      PMCID: PMC9066126          DOI: 10.1177/0194599820954837

Source DB:  PubMed          Journal:  Otolaryngol Head Neck Surg        ISSN: 0194-5998            Impact factor:   5.591


  28 in total

1.  Predicting the presence of sleep-disordered breathing in children with Down syndrome.

Authors:  Joy Nehme; Robert LaBerge; Mary Pothos; Nick Barrowman; Lynda Hoey; Andrea Monsour; Madelaine Kukko; Sherri Lynne Katz
Journal:  Sleep Med       Date:  2017-05-31       Impact factor: 3.492

2.  Obstructive Sleep Apnea in Children With Down Syndrome: Screening and Effect of Guidelines.

Authors:  Adam Hsieh; Amir Gilad; Kevin Wong; Michael Cohen; Jessica Levi
Journal:  Clin Pediatr (Phila)       Date:  2019-04-29       Impact factor: 1.168

3.  National profile of children with Down syndrome: disease burden, access to care, and family impact.

Authors:  Robert J McGrath; Michelle L Stransky; W Carl Cooley; John B Moeschler
Journal:  J Pediatr       Date:  2011-06-12       Impact factor: 4.406

4.  Screening for obstructive sleep apnea in children with Down syndrome.

Authors:  Sandi C Lin; Margot J Davey; Rosemary S C Horne; Gillian M Nixon
Journal:  J Pediatr       Date:  2014-03-25       Impact factor: 4.406

5.  Use of Electronic Health Record Integration for Down Syndrome Guidelines.

Authors:  Stephanie L Santoro; Thomas Bartman; Clifford L Cua; Stephanie Lemle; Brian G Skotko
Journal:  Pediatrics       Date:  2018-09       Impact factor: 7.124

6.  Adherence to Guidelines for Screening Polysomnography in Children with Down Syndrome.

Authors:  Philip D Knollman; Christine H Heubi; Jareen Meinzen-Derr; David F Smith; Sally R Shott; Susan Wiley; Stacey L Ishman
Journal:  Otolaryngol Head Neck Surg       Date:  2019-03-26       Impact factor: 3.497

7.  Health supervision for children with Down syndrome.

Authors:  Marilyn J Bull
Journal:  Pediatrics       Date:  2011-07-25       Impact factor: 7.124

8.  Contributions of a specialty clinic for children and adolescents with Down syndrome.

Authors:  Brian G Skotko; Emily Jean Davidson; Gil S Weintraub
Journal:  Am J Med Genet A       Date:  2013-02-07       Impact factor: 2.802

9.  A predictive model for obstructive sleep apnea and Down syndrome.

Authors:  Brian G Skotko; Eric A Macklin; Marco Muselli; Lauren Voelz; Mary Ellen McDonough; Emily Davidson; Veerasathpurush Allareddy; Yasas S N Jayaratne; Richard Bruun; Nicholas Ching; Gil Weintraub; David Gozal; Dennis Rosen
Journal:  Am J Med Genet A       Date:  2017-01-26       Impact factor: 2.578

10.  Low adherence to national guidelines for thyroid screening in Down syndrome.

Authors:  Mark A Fergeson; John J Mulvihill; G Bradley Schaefer; Kristi A Dehaai; Jamie Piatt; Kathleen Combs; Brianna C Bright; Barbara R Neas
Journal:  Genet Med       Date:  2009-07       Impact factor: 8.822

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